Any experiences out there???
Brad in Sarasota
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A friend of mine, not quite as old as I but only by a few years, had a son with Guillain-Barre syndrome. It was treated early this way (immediately after an early diagnosis), and seems to have made a complete recovery, though the one school he was about to enter when he was diagnosed, changed their minds while he was laid up. It moved very quickly, compared to "MS". He was in pretty bad shape. His mom used to be overweight, but has lost all the excess, and now goes to the gym all the time (her husband is a trainer). She was scared because she had had incidents that were thought to be possibly MS.Treatment
There is no cure for Guillain-Barre syndrome. However, many treatments are available to help reduce symptoms, treat complications, and speed up recovery.
When symptoms are severe, the patient will need to go to the hospital for treatment, which may include artificial breathing support.
In the early stages of the illness, treatments that remove or block the proteins that attack the nerve cells, called antibodies, may reduce the severity and duration of Guillain-Barre symptoms.
One method is called plasmapheresis, and it is used to remove the antibodies from the blood. The process involves taking blood from the body, usually from the arm, pumping it into a machine that removes the antibodies, and then sending it back into the body.
A second method is to block the antibodies using high-dose immunoglobulin therapy (IVIG). In this case, the immunoglobulins are added to the blood in large quantities, blocking the antibodies that cause inflammation.
Other treatments are directed at preventing complications.
Blood thinners may be used to prevent blood clots.
If the diaphragm is weak, breathing support or even a breathing tube and ventilator may be needed.
Pain is treated with anti-inflammatory medicines and narcotics, if needed.
Proper body positioning or a feeding tube may be used to prevent choking during feeding if the muscles used for swallowing are weak.
I wish to add that plasmapheresis removes more than just antibodies from the blood; I know that it removes calcium; I suspect it removes insulin also.One method is called plasmapheresis, and it is used to remove the antibodies from the blood. The process involves taking blood from the body, usually from the arm, pumping it into a machine that removes the antibodies, and then sending it back into the body.