Wishing all a well & blessed day/evening!
Strength is up, energy is up & I withstood Legoland for a day in the sun! Enough sun to burn my shoulders yet the heat was NOT AN ISSUE! (For possibly the first time I was able to be out on a warm day, in the sun & play with my daughter Be well,
I hope you continue to have amazing days, and keep those infections away!!!
Wonderful side benefit of feeling better = more energy = means more activity (the daily stuff, not just libido!) = weight is starting to reach towards "normal".... still a long way to go but what a great treat to see the numbers go down for once. No doubt the reduction in steroid dependancy is also assisting the process.
Hope all are doing well, regardless of the therapy and I'll check back in during week #8.
Only 4 weeks till my 3 month birthday
Wishing all a good night & a great tomorrow!,
The walking well, let's just say I had all sorts of gait issues and did a lot of PT, mucho spasticity too. I was on vicodin, neurotin, lexapro, RX motrin, RX naprosen, and I forget the name of the last neuro pain med that threw on a RAPID 30lbs! (Lyrica!)...I was the person who was constantly pulled aside for the "CVS consult" b/c they could not believe I could be breathing on all that drug. Failed on Avonex, Beta-Serum, Copaxone, Rebiff, IVIG, Pulse steroids & LDN b/c my MRI's demonstrated a COSTANT level of inflamation & disease activity... so much so that I qualified for the HALT MS NIH study almost immediately. Was using a cane (have a collection of 3 so there is always 1 nearby) And had to stop working when the MS began to impair my cognitive function I was a Market Manager for a leading respiratory company (globally) & then stepped down into starting up the Market Research & development Division for that same company... u can imagine how had it was to have my manager sit me down to review my work and hear that he couldn't understanding while I was struggling running figures since I had been doing it for YEARS... so awful, but they understood why my MD put me out for good. Fatigue was a HUGE issue & I could no longer be 75% travel in my job either. Standing up for long periods of time... um, well, I still don't do that too often but at trade shows it it was awful! My vision has been quite challenged too - I suffer from duplopia on & off so often I elect NOT to drive anywhere though I do maintain a valid license.
Then thee is the general, bladder/bowel stuff, loss of libido & well, nerve pain from the uncomfortable tingly stuff to the "don't touch me" everything hurt stabbing pain.
The thing is I do have RRMS & many of thee things over time do return to acceptable levels of function for me - never quite to the starting point but close enough that I can accept, work around, & move on.
Many things seem to be turning around for me now - I continue with the PT routines b/c well, the stretching etc. is something we all need along with mild exercise but by far the greatest gain has been the lack of fatigue. Vision has improved, pain went away a few years back when I cult ALL diet foods, sodas etc. & ALL caffeinated products switching to an ayervedic menu which promotes the reduction on systemic inflammation so I cannot credit G for that but I will say it has not returned.
I hope this helps - do let me know if I can be more specific!
PS Pre G MRI as in taken less than a week prior to me first dose showed 7 NEW placks (
So I am MOST excited to see how they are doing now & will keep you posted!
Many blessing 's your way!
And more importantly, I survived the 90 degree & 80+ days we recently had in San Diego. We went from haveing the heat on one day to the AC the next...yuk. Normally I'd push through & pay for it the next day. This time I was able to get the shopping & errands run in the heat and held up fine for the days following! Wow.
I'm still shying away from the heat - force of habit I suppose, but not having been bed-ridden for days or so later was a real treat.
I'll try the tub another day...
Blood work later this week to see how low my white counts are. I have noticed that blemishes, bruises and small scratches do not heal very quickly anymore & are requiring peroxide & neosporin.
- Similar Topics
- Last post