Fampyra, any other benefits

Dalfampridine, or Ampyra, is a potassium channel blocker that is shown to improve visual function, motor skills and relieve fatigue in MS patients.
Post Reply
User avatar
Family Elder
Posts: 104
Joined: Tue Feb 16, 2010 3:00 pm
Location: Ireland

Fampyra, any other benefits

Post by gymbuff » Sat Aug 20, 2011 12:33 am

Hi all,

I was wondering if there are any other benefits associated with Fampyra other than improved walking speed. I am not particlarly concerned with my walking speed but with my walking. I really look like a wreck when I walk and can no longer walk unassisted. I also wonder about the side effects that caused a previous poster to cease after just one dose. Being able to walk better would be great but when I need to go to the toilet I need to get to the bathroom fast. Any improvement in bowel/bladder issues?
I will be having tysabri infusion 49 in 2 weeks and while I noticed a huge improvement in my stamina when I started but I seem to have levelled off since then.

User avatar
Family Elder
Posts: 301
Joined: Tue Oct 06, 2009 2:00 pm


Post by leetz » Sat Aug 20, 2011 6:17 pm

the 2x's daily recommendation increased pain and spasticity for me so now i take one pill a day...increases speed...for me i think that is all...
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...

User avatar
Family Member
Posts: 26
Joined: Mon Feb 01, 2010 3:00 pm

Re: Fampyra, any other benefits

Post by pmouse » Wed Mar 06, 2013 11:42 pm

I am on Fampira now for 5 weeks and I noticed next things:
- walking speed improved - 7,.. m in 3,8 s
- in 2 min I walked distance 187 metres
- I can more easy stand up from any position
- I am less tired - I have more energy
- my stability is better
- my nystazgmus is the same as before - I expected less nystagmus
- my urin urgency improved so I dont have to go to toilet at night
Anyway fampira is giving me an energy to be alive again and helps me coping with daily life.

But I was wondering is trere any analyse about the weight of person regarding Fampira dosge. I am taking 10 mg twice a day, buy I forgot few times and it was the same.
II have 63 kg and I would like to take it just in the morning.

Does anybody knows anything about that?



Posts: 1
Joined: Tue May 06, 2014 6:40 am

Re: Fampyra, any other benefits

Post by blavery » Tue May 06, 2014 6:59 am

I started using Ampyra 3.5 years ago. I didn't think it helped so I went off it. Then I realized how much it helped because my stamina took a nosedive. A year later I lost my insurance and could not use it again. Same thing, my endurance dropped immediately.

I managed to get back on it since. Before the drug I awoke every night with an urgency to urinate. In fact, that would come up during waking hours as well. Since the drug that has totally gone away. I sleep through the night and even on awakening I don't have to make a fast run to the washroom.

Post Reply
  • Similar Topics
    Last post