I know seizures are a big concern. It just seemed like I may be able to dust off the snowboard or at least walk straight when I started feeling better balance, walking, etc... that all went poof and I am grasping at straws now. I plan to discuss with my neuro, but do not expect much from that.
started 2x a day. 1st one at 5am getting up for work. Around 11am I was dragging
my arse around wishing for a nap - no energy. Started taking another dose around 1pm this enabled me to get through the rest of the work day. At 8pm I was usually exhausted and in bed. I stuck with this routine for a while. When my son married it was a busy day as you can imagine. At around 8pm I really started to dwindle and decided to take another dose. It perked me right up. Went to bed at 3am. It took me a while to figure it out but every 5 hours works for me. Its not that it miraculously makes me walk better but it for sure gives me more energy/stamina and a little pep in my step. I don't work anymore however continue with 3x a day. I take it on an empty stomach -this can make me a little jittery - I just eat something light and I'm fine.
I think I may need to try something like that after discussing with my neuro. Otherwise I may just stop taking it since I do not seem to get much benefit from the current dosage/frequency.