Anybody take Interferon and has no side effects?

A board to discuss the Multiple Sclerosis modifying drug Avonex
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ElJacko
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Post by ElJacko » Fri Feb 11, 2011 9:25 pm

I don't know, I don't think that they'll tell me until the trial is complete, in 12 months or so.

The permutations are:

1. was on placebo and now only have mild or no side effects, or
2. Was on real and don't get side effects

All that I do know so far is that I'm lucky enough to not get the nasty flu symptoms that some other people get. Fingers crossed that it continues this way

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smokey
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Post by smokey » Sat Feb 12, 2011 4:10 pm

Fingers crossed for you!! Let us know how you go.....

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ElJacko
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Post by ElJacko » Mon Mar 28, 2011 12:09 am

Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore

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smokey
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Post by smokey » Tue Mar 29, 2011 12:30 am

ElJacko wrote:Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore
Sounds familiar! Although 2 years on, the side effects of the standard Avonex have lessened considerably.........hope your side effects ease off. Panadol is good!

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smokey
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Post by smokey » Tue Mar 29, 2011 12:31 am

ElJacko wrote:Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore
Sounds like it! Sounds familiar! Although I had distressing side effects for about 6 months, two years on they have significantly decreased. Hope yours ease. Panadol might help?

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NHE
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Re: Avonex side effects

Post by NHE » Tue Mar 29, 2011 2:49 am

ElJacko wrote:Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore
Acetaminophen, Tylenol, might help. However, I found ibuprofen to be much more effective when I was taking Avonex. Try 400 mg at the time of your shot and then 400 mg as needed every 4 to 6 hours after that.

NHE

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ElJacko
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Post by ElJacko » Wed Mar 30, 2011 12:30 am

Thanks for the tips guys, as part of the study we are directed to take paracetamol but I'll try some of the others as well.

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lovebug
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Re: Anybody take Interferon and has no side effects?

Post by lovebug » Sat Nov 19, 2011 7:53 pm

I have been on Avonex for about 2 years. No side effects and no site reactions. Sometimes I think I am injecting candy......... I have no idea if it helps. But than again do any of us pwMS know if these DMD`s really work? I am trying to find out more about the `interferon blood test`...........

awdesigns8
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Re: Anybody take Interferon and has no side effects?

Post by awdesigns8 » Tue Nov 22, 2011 12:46 pm

I TAKE AVONEX ITS BEEN 1 YEAR NO FLU LIKE SIDE EFFECTS NEVER HAD THEM I DO WONDER MY SELF IF IS THE AVONEX OR THE VITAMINS I TAKE LOVE APRIL

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ShootingStar
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Re: Anybody take Interferon and has no side effects?

Post by ShootingStar » Sun Jan 01, 2012 4:00 pm

The only issue I've had in 4 months on Avonex is a generally "blah" feeling on the morning after. Otherwise, it's been fine. I miss Tysabri though. :sad:

~Kim in NV

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