Test all coming back normal
Posted: Wed Apr 06, 2016 5:49 pm
The symptoms started two years ago when my face started tingling and going numb and my lower back started to hurt. From there then slowly started to have all the other symptoms. I have tingling/numbness in my face (hurts to smile) face feels swollen but no signs of it on the outside or inside, hands/feet do the same thing and now in my neck/collar bone with numbness/tingling with serious pain. I also have at time problems walking due to my legs feeling heavy like stone and have fallen at least three times in the past year. I am on lyrica for the pain but at times have to take toridol for the pain and at times that does not even work. At times I have problems swallowing and food scrapes my throat at times. I get dizzy at times, have blurry vision at times, and nausea to stomach at times. I am always tired, never have any energy, always feel weak in general, and at times problems with trying to say what I am thinking speech and some time hard time getting words out, and then memory as well.
All the test have come back normal. I have been tested for Lupus, MS, Lyme Disease, have had nerve test done, nerve biopsy done, CT's and MRI's of spine and brain everything normal. I have had a MRI on my neck and chest along with x-ray. I have had vitamins checked such as B12 and D both were low and take them now. I have hashimoto's disease and take synthroid for that. I take symbalta for anxiety which is controlled and medformin for PCOS - polystic ovarian syndrome - cysts in my vagina. Autoimmune disorders run in my family I have an aunt that has celicas disease, sister has Hashimoto's, another aunt has lupus, diabetes, graves, and sjogens, and then another aunt has Parkinson's disease. I have been tested for celicas disease and it was negative have tried the diet for a month and nothing change with my symptoms. The only test results that have come back high was my TPO - antibodies were high for my cells attacking my thyroid and my white blood cell count is a little high but not much. The Doc's say fibro. but I am not so sure about that because I feel that label of fibro just means that they can't find anything wrong with you so they call it that because none of the test results show anything. The only other test that I know for sure I have not had done is a spinal tap.
The ER doc's don't care, been to a endocrinologist, rehumtologist, three neurologist, and my primary doctor. It just seems as I get the run arounds and no one wants to actually find out what is causing me to have these symptoms that they just want to put a bandaid on it instead. I struggle on a daily basis and just want something to go on. I want to be able to help myself out but I have no direction to go in or what to do when the pain is so bad that nothing works.
Why are none of the test results coming back positive for anything if I am still having symptoms? Can anyone give me any ideas on what else this could be or any other ideas on test that I need to have done?
All the test have come back normal. I have been tested for Lupus, MS, Lyme Disease, have had nerve test done, nerve biopsy done, CT's and MRI's of spine and brain everything normal. I have had a MRI on my neck and chest along with x-ray. I have had vitamins checked such as B12 and D both were low and take them now. I have hashimoto's disease and take synthroid for that. I take symbalta for anxiety which is controlled and medformin for PCOS - polystic ovarian syndrome - cysts in my vagina. Autoimmune disorders run in my family I have an aunt that has celicas disease, sister has Hashimoto's, another aunt has lupus, diabetes, graves, and sjogens, and then another aunt has Parkinson's disease. I have been tested for celicas disease and it was negative have tried the diet for a month and nothing change with my symptoms. The only test results that have come back high was my TPO - antibodies were high for my cells attacking my thyroid and my white blood cell count is a little high but not much. The Doc's say fibro. but I am not so sure about that because I feel that label of fibro just means that they can't find anything wrong with you so they call it that because none of the test results show anything. The only other test that I know for sure I have not had done is a spinal tap.
The ER doc's don't care, been to a endocrinologist, rehumtologist, three neurologist, and my primary doctor. It just seems as I get the run arounds and no one wants to actually find out what is causing me to have these symptoms that they just want to put a bandaid on it instead. I struggle on a daily basis and just want something to go on. I want to be able to help myself out but I have no direction to go in or what to do when the pain is so bad that nothing works.
Why are none of the test results coming back positive for anything if I am still having symptoms? Can anyone give me any ideas on what else this could be or any other ideas on test that I need to have done?