Thanks jimmylegs for your clarification.jimmylegs wrote:yes i was a strict vegetarian. although my spinal lesions were consistent with b12 deficiency (cervical and thoracic) my diagnosing docs ruled out b12 deficiency as a factor in my case, due to a glitch in the doc's computer system.
years after dx i did sit down with the doc and dug through the long text of my old results to show that i'd had a 'less than 75' b12 result in the mix (was the only time i had done a washout beforehand). the text 'less than 75' did not show up on the trend graph, so for me b12 was officially a non issue.
b12 aside, i had other things going on (eg cranial lesions including classic dawson fingers) which were not considered to be associated with b12 deficiency. at that time, i didn't know what other nutrients i should be monitoring. to this day i am not sure if some of my other findings might have been attributable to other nutrient imbalances/insufficiencies. whatever the case, quite early on a therapeutic multinutrient megadose protocol gave me the best short term improvements (3 days).
basically i would hope that anyone with any odd and seemingly inexplicable symptoms, ms or otherwise, would take steps to definitively rule out any lifestyle deviation from public health nutritional recommendations. esp for nutritional issues that are often seen in ms patients in particular.
we aren't properly taught to do this work for ourselves, and docs don't routinely refer patients to the pros who do have the right training to assist.
basically, my hope is that people don't muddy the medical diagnostic picture with the side effects of poor nutrition.
once nutrition has done all it can, if there are still problems, time to look elsewhere. for example in my case chronic neck and hip pain required physiotherapy.
I think it would be more helpful for MSers for you to clarify that your principal problem was nutritional. Your advice is great, well appreciated, but for many if not most they need to deal with the fluid circulation issue as well. The lab tests, blood work can take time and the recovery even more so, and in the meantime one isn't dealing with the CCSVI issue. For some all they may need is exercise, massage, acupuncture etc but most people need to be aware that their head stuffiness, heat intolerance, muscle cramps /spasms are probably due to a blood reflux.
Best regards, Vesta
