Neuromuscular Specialist?

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.
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LisaH
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Neuromuscular Specialist?

Post by LisaH » Tue Mar 06, 2018 9:34 am

Hello again everyone. I haven't posted in awhile but wanted to get some feedback on a potential referral. My neurologist hasn't been able to figure out what's causing my symptoms (primarily leg stiffness and widespread muscle twitching/spasms). My symptoms have been getting worse lately. My latest NCV test had some numbers out of the normal range but the EMG (needle) test apparently was fine so both tests were considered normal. I received a message from my neurologist today saying "I honestly feel as though a referral to a neuromuscular specialist would be the best option for you at this time." From what I've read, MS is one of the disorders under this specialty. Has anyone here had this type of referral from their neurologist? It still hasn't been determined what the parietal lesion found on my last MRI is. My neurosurgeon (who follows the cyst/tumor in my pituitary region) looked at the new lesion and said "Not sure without a biopsy what this lesion represents." Thanks in advance for any feedback.

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jimmylegs
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Re: Neuromuscular Specialist?

Post by jimmylegs » Tue Mar 06, 2018 9:58 am

short answer yes. first neuro referral from the gp over a decade ago now. who then forwarded me on to the ms clinic. rest is history.

did anyone ever run a serum mag test for you?

if not, that's still the lowest hanging fruit from where i sit.

worth taking the time to follow up. independently, if your docs have not been so inclined.

~$25 well spent imho. eg via somewhere like this:
http://www.lifeextension.com/Vitamins-S ... Blood-Test

not everyone has the good fortune to have such inexpensive access.

in my xp with TiMS members using such services, results are back in record time.

if you *have* had a serum mag level done, i'll be very interested to see your detailed results!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

LisaH
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Posts: 116
Joined: Tue May 09, 2017 3:05 pm

Re: Neuromuscular Specialist?

Post by LisaH » Tue Mar 06, 2018 10:31 am

No, jimmylegs, I haven't had a serum mag test. I posted my blood work results here (another post) that included things like vitamin D and B12. I received another message from my neurologist saying that general neurology doesn't have the tests and resources to figure out what's causing my worsening symptoms. They'll still be seeing me for my occipital and trigeminal neuralgia, though, she said.

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jimmylegs
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Re: Neuromuscular Specialist?

Post by jimmylegs » Tue Mar 06, 2018 11:18 am

ok pitter patter then. no sense failing to act on a potentially simple solution! assuming $25 is not limiting that is. i know it can be sometimes.
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

LisaH
Family Elder
Posts: 116
Joined: Tue May 09, 2017 3:05 pm

Re: Neuromuscular Specialist?

Post by LisaH » Tue Mar 06, 2018 11:47 am

Thanks... I'll pitter patter then. ;)

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jimmylegs
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Re: Neuromuscular Specialist?

Post by jimmylegs » Tue Mar 06, 2018 11:50 am

:D
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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