MS or what could this be?
Posted: Fri Aug 17, 2018 2:06 pm
Hello, I hope this board can help me figure out if this is MS or not.
Here's my history:
Age 23: MMR vaccine, numbness in arms and legs for 6 hours.
Age 44: Took Augmentin/Medrol and lost strength in arms and legs for 2 weeks.
Age 44: Breastfeeding my first baby and I get pregnant: I have what feels like hyperthyroidism and psychosis until I miscarry at 7.5 weeks
Age 46: Severe lower back pain after birth of 2nd baby which lasted about 90 days.
Age 47: Viral illness, on 7th day of illness, back of legs numb for 3 days.
Age 47: I begin to lose orientation (dizziness?) in brief episodes every now and then. I assume it is a B-12 issue so I take sublingual methyl B-12 and it stops after taking it.
Age 47.5: Severe lower back pain which lasted 60 days, no cause.
Age 48 (starting June 24 2018) and ONGOING TO NOW: Initial dizziness on waking the morning this began and extreme tiredness followed by arms and legs buzzing and weakness, unable to walk balanced. My muscles are twitching in some areas and some fingers and toes are clamped together like in a Charlie Horse. I go the ER, all tests normal. When I come home I get diarrhea 6 times and then for the next ten days off and on. I assume it's Norovirus. It also feels like I have some psychosis or I am on the verge of psychosis which stops when my period arrives.
The next few days it leaves my arms and I can do push-ups but legs are still affected and I can barely walk, only shuffle because I now have severe cramping pain in my calves only when I walk. I still have very high anxiety. Only on the first night of calf muscle cramping did it also affect me in my sleep. The extreme and severe calf cramping stops when I take a new probiotic (GI Balance - Bifido, and after having severe pain in the bowel area). I can now walk but with weakness as though the muscles or the nerves have been damaged? Also it later began moving into my upper arms which felt like the muscles were being squeezed and contracting with loss of strength.
These are my current and ongoing symptoms this this began on June 24: Forearms feel like I have carpal tunnel in both and become weak if I try to hold things up for too long. Dizziness gets worse as night approaches. Dizziness occurs off and on throughout the day. I can walk slowly and for about half a mile but my legs feel weak and that's my limit. The pain has shifted to my shins, especially my right shin. It feels tight and I developed sudden unexplained bursitis by my small toe on this foot (which is not going away after 5 weeks now). I had off and on pressure feeling under my right ribs and racing heart which has stopped for now. My muscles are now easily injured, sprained wrist just grabbing something, and now my ankle was easily twisted. My newest scariest symptoms are waking up to my left arm numb two times now which goes away quickly when I shake it, then my right leg did this I did acupuncture to see if it could help and my left side of my body had a reaction, my left side of my face contracted, and when the 30 minute session was finished my left arm was numb and dead feeling! (which I corrected by shaking it). This has never happened to me before in acupuncture. Also I have had rapid weight loss, from 125 to 107. I did start eating much less due to fear of what was wrong in my diet that caused this. I still have occasional nerve twitching in arms and legs in any location. I haven't been able to exercise now for almost 60 days due to weakness. If a neurologist tested me I think they would say I have perceived weakness, because I do have strength for short bursts but it feels like I don't and eventually I just feel like I can walk for much longer or use my arms for much longer. I have no bladder issues or vision, except I can't read very small print and it seems to have come on suddenly. I have two dental abscesses that I'm getting root canalled on Tuesday.
I am currently breastfeeding my almost 3 year old.
The tests I've had done so far:
Full thyroid panel and ultrasound - normal
Vitamin B-12= 1239 HIGH (am I not absorbing it?)
Lyme disease - negative
CBC with differential - normal
Comprehensive metabolic panel - normal
Magnesium - normal
Urinalysis - normal
EKG - normal
rheumatoid arthritis - negative
My diet is organic mostly raw and vegan gluten free, green smoothies, salads, tempeh, Kombucha. I take whole food vitamin complex, Vegan omega 3 DHA/EPA, flax oil, zinc, selenium, Vit A drops, B Complex, methyl B-12 sublingual and spray, D3 2500, milk thistle, calcium-magnesium, magnesium malate, magnesium chloride oil, evening primrose oil, Calm, progesterone cream, carnitine, ubiquinol, curcumin...
Is it possible I'm not absorbing B-12 or D3 and it's become critical? Or does this sound like MS? Thanks for your help, I feel like I'm in hell right now.
Here's my history:
Age 23: MMR vaccine, numbness in arms and legs for 6 hours.
Age 44: Took Augmentin/Medrol and lost strength in arms and legs for 2 weeks.
Age 44: Breastfeeding my first baby and I get pregnant: I have what feels like hyperthyroidism and psychosis until I miscarry at 7.5 weeks
Age 46: Severe lower back pain after birth of 2nd baby which lasted about 90 days.
Age 47: Viral illness, on 7th day of illness, back of legs numb for 3 days.
Age 47: I begin to lose orientation (dizziness?) in brief episodes every now and then. I assume it is a B-12 issue so I take sublingual methyl B-12 and it stops after taking it.
Age 47.5: Severe lower back pain which lasted 60 days, no cause.
Age 48 (starting June 24 2018) and ONGOING TO NOW: Initial dizziness on waking the morning this began and extreme tiredness followed by arms and legs buzzing and weakness, unable to walk balanced. My muscles are twitching in some areas and some fingers and toes are clamped together like in a Charlie Horse. I go the ER, all tests normal. When I come home I get diarrhea 6 times and then for the next ten days off and on. I assume it's Norovirus. It also feels like I have some psychosis or I am on the verge of psychosis which stops when my period arrives.
The next few days it leaves my arms and I can do push-ups but legs are still affected and I can barely walk, only shuffle because I now have severe cramping pain in my calves only when I walk. I still have very high anxiety. Only on the first night of calf muscle cramping did it also affect me in my sleep. The extreme and severe calf cramping stops when I take a new probiotic (GI Balance - Bifido, and after having severe pain in the bowel area). I can now walk but with weakness as though the muscles or the nerves have been damaged? Also it later began moving into my upper arms which felt like the muscles were being squeezed and contracting with loss of strength.
These are my current and ongoing symptoms this this began on June 24: Forearms feel like I have carpal tunnel in both and become weak if I try to hold things up for too long. Dizziness gets worse as night approaches. Dizziness occurs off and on throughout the day. I can walk slowly and for about half a mile but my legs feel weak and that's my limit. The pain has shifted to my shins, especially my right shin. It feels tight and I developed sudden unexplained bursitis by my small toe on this foot (which is not going away after 5 weeks now). I had off and on pressure feeling under my right ribs and racing heart which has stopped for now. My muscles are now easily injured, sprained wrist just grabbing something, and now my ankle was easily twisted. My newest scariest symptoms are waking up to my left arm numb two times now which goes away quickly when I shake it, then my right leg did this I did acupuncture to see if it could help and my left side of my body had a reaction, my left side of my face contracted, and when the 30 minute session was finished my left arm was numb and dead feeling! (which I corrected by shaking it). This has never happened to me before in acupuncture. Also I have had rapid weight loss, from 125 to 107. I did start eating much less due to fear of what was wrong in my diet that caused this. I still have occasional nerve twitching in arms and legs in any location. I haven't been able to exercise now for almost 60 days due to weakness. If a neurologist tested me I think they would say I have perceived weakness, because I do have strength for short bursts but it feels like I don't and eventually I just feel like I can walk for much longer or use my arms for much longer. I have no bladder issues or vision, except I can't read very small print and it seems to have come on suddenly. I have two dental abscesses that I'm getting root canalled on Tuesday.
I am currently breastfeeding my almost 3 year old.
The tests I've had done so far:
Full thyroid panel and ultrasound - normal
Vitamin B-12= 1239 HIGH (am I not absorbing it?)
Lyme disease - negative
CBC with differential - normal
Comprehensive metabolic panel - normal
Magnesium - normal
Urinalysis - normal
EKG - normal
rheumatoid arthritis - negative
My diet is organic mostly raw and vegan gluten free, green smoothies, salads, tempeh, Kombucha. I take whole food vitamin complex, Vegan omega 3 DHA/EPA, flax oil, zinc, selenium, Vit A drops, B Complex, methyl B-12 sublingual and spray, D3 2500, milk thistle, calcium-magnesium, magnesium malate, magnesium chloride oil, evening primrose oil, Calm, progesterone cream, carnitine, ubiquinol, curcumin...
Is it possible I'm not absorbing B-12 or D3 and it's become critical? Or does this sound like MS? Thanks for your help, I feel like I'm in hell right now.