Any thoughts would be greatly appreciated
Posted: Mon Jan 14, 2019 10:06 am
My wife has been having some health issues and we can not figure out what is happening, hoping that someone may have some insight or ideas for us.
This all started with severe vertigo, fatigue. Went to our PCP and was told she could have an ear infection or ear stones. Took meds, two rounds of prednisone and it eventually went away but not for several weeks.
Over the past 5 months all of the following symptoms have appeared. Some symptoms last for only minutes or hours while others have lasted weeks or months. There is no rhyme or reason to the symptoms that we can see.
Cognitive Issues – Problems finding words, feel like things are moving faster than I can process them. Feeling extremely confused and overwhelmed when in a busy or loud space. Unable to process what is happening around me or focus on a task or conversation because I am so overloaded with trying to process what is going on.
Vision Disturbances - Vision can range from being blurry, spotty or snowy, trailing images and seeing after images. Complete and thorough eye exam on 10/11/2018, (findings normal) and again on 12/14/2018 (findings normal). No optic neuritis has been found. The ophthalmologist said that he thought that the muscles that control my eyes were not functioning properly. The longest a vision problem has lasted was 4 or 5 days, often I have it for only a couple hours or a day.
Leg Spasticity –Legs feel stiff, heavy, hard and sore every day. Often they feel weak also. This has been consistent since the beginning and never stops.
Spasms –Toes, legs, arms and fingers move uncontrollably. Sometimes it is just once and other times it will be 5 or 6 times in a row, rhythmically. This also happens while I am asleep, all night long.
Internal Vibrations/shaking - I feel like I am shaking and vibrating from the inside.
Abnormal Sensations – Numbness, burning and tingling in arms and legs. Completely numb patches on chest and sometimes no vaginal sensation at all. Have a hard time feeling anything cold on my right side.
Urgent urination and leaking – Often has a large spot of urine in underwear, one time I could not make it onto the toilet before I started peeing on myself.
Heat Intolerance – A hot shower often makes me feel worse overall and makes my symptoms more pronounced.
Balance problems and Dizziness - Balance is off, I find myself holding on to walls or other objects because I feel unsteady. Going up stairs is sometimes impossible without railings.
Fatigue - Every task feels like it is at least 5 times harder than it used to be. Taking a shower requires me to rest for 20 minutes after word.
Jaw pain – Pain from back of jaw to chin, sometimes cheeks tingle also.
Chest tightness/Spasticity - Chest feels tight, like I am being squeezed or have something tight around my chest. Can effect right or left side or both.
Our PCP suspects MS, ordered an MRI of her brain and no issues were found.
Went to a neurologist and she told us that she may have silent migraines and prescribed her Trokendi XR. This caused severe cognitive issues.
Went to second neurologist and was told to stop taking the Trokendi. Had 169 blood tests done, here is a link to the results.
https://docs.google.com/document/d/1u2w ... sp=sharing
The neurologist told her to take D, B12 and iron along with her multi-vitamin. They were all low but not low enough to cause the issues she is having we were told.
Had EMG and nerve velocity test, normal.
Neurologist said she doesn’t know what’s wrong and that her symptoms do not line up with a particular disease or disorder.
Her PCP has ordered a C spine MRI, that is in 2 days.
Thank you for any thoughts you may have for us.
This all started with severe vertigo, fatigue. Went to our PCP and was told she could have an ear infection or ear stones. Took meds, two rounds of prednisone and it eventually went away but not for several weeks.
Over the past 5 months all of the following symptoms have appeared. Some symptoms last for only minutes or hours while others have lasted weeks or months. There is no rhyme or reason to the symptoms that we can see.
Cognitive Issues – Problems finding words, feel like things are moving faster than I can process them. Feeling extremely confused and overwhelmed when in a busy or loud space. Unable to process what is happening around me or focus on a task or conversation because I am so overloaded with trying to process what is going on.
Vision Disturbances - Vision can range from being blurry, spotty or snowy, trailing images and seeing after images. Complete and thorough eye exam on 10/11/2018, (findings normal) and again on 12/14/2018 (findings normal). No optic neuritis has been found. The ophthalmologist said that he thought that the muscles that control my eyes were not functioning properly. The longest a vision problem has lasted was 4 or 5 days, often I have it for only a couple hours or a day.
Leg Spasticity –Legs feel stiff, heavy, hard and sore every day. Often they feel weak also. This has been consistent since the beginning and never stops.
Spasms –Toes, legs, arms and fingers move uncontrollably. Sometimes it is just once and other times it will be 5 or 6 times in a row, rhythmically. This also happens while I am asleep, all night long.
Internal Vibrations/shaking - I feel like I am shaking and vibrating from the inside.
Abnormal Sensations – Numbness, burning and tingling in arms and legs. Completely numb patches on chest and sometimes no vaginal sensation at all. Have a hard time feeling anything cold on my right side.
Urgent urination and leaking – Often has a large spot of urine in underwear, one time I could not make it onto the toilet before I started peeing on myself.
Heat Intolerance – A hot shower often makes me feel worse overall and makes my symptoms more pronounced.
Balance problems and Dizziness - Balance is off, I find myself holding on to walls or other objects because I feel unsteady. Going up stairs is sometimes impossible without railings.
Fatigue - Every task feels like it is at least 5 times harder than it used to be. Taking a shower requires me to rest for 20 minutes after word.
Jaw pain – Pain from back of jaw to chin, sometimes cheeks tingle also.
Chest tightness/Spasticity - Chest feels tight, like I am being squeezed or have something tight around my chest. Can effect right or left side or both.
Our PCP suspects MS, ordered an MRI of her brain and no issues were found.
Went to a neurologist and she told us that she may have silent migraines and prescribed her Trokendi XR. This caused severe cognitive issues.
Went to second neurologist and was told to stop taking the Trokendi. Had 169 blood tests done, here is a link to the results.
https://docs.google.com/document/d/1u2w ... sp=sharing
The neurologist told her to take D, B12 and iron along with her multi-vitamin. They were all low but not low enough to cause the issues she is having we were told.
Had EMG and nerve velocity test, normal.
Neurologist said she doesn’t know what’s wrong and that her symptoms do not line up with a particular disease or disorder.
Her PCP has ordered a C spine MRI, that is in 2 days.
Thank you for any thoughts you may have for us.