Greetings:AmbiCat wrote: ↑Sat Apr 27, 2019 7:21 pmThank you guys for all the support. I don't remember if Vitamin D is one of the things he tested for, but I get tested for that on a yearly basis since I was deficient about 7 years ago pretty badly. I also make sure to take multivitamins with D3 in them, but I'm outside a lot more than I used to be now that I bike to work even in the winter regardless.
The hospital also tested for anemia since I was pretty badly anemic a few years ago, but I figured it would come out normal (and it did) because I've had none of the same symptoms I know from anemia - and absolutely no symptoms period before last Saturday.
I've had Fibromyalgia since I was 15, so I'm used to relapses or flares from that and am pretty vigilant about noticing them. I'm also very cognizant of staying physically active and eating healthy - I know from growing up with FM that not being active makes me feel worse pretty quickly, but if I stay active it keeps the exhaustion and pain at bay. I eat healthy breakfasts, bring my own easy-to-make lunches to work, and cook a couple times a week unless the FM is flaring, in which case I do what I can.
I felt perfectly okay Friday and just wasn't on Saturday, spiraling ever since. The tremors in my right leg today almost kept me from walking period. A family member took me to the store to get some easy-to-eat things that might help me eat more even if I'm not hungry, and I was hugging the shopping cart the whole time because I was getting tremors in the bottom of that leg with almost every step.
Still having to force myself to eat. Can't eat more than twice a day (and one of those a day has just been my family forcing me to eat something they get me), but at least I'm eating a meal to get the pills down. Fingers aren't as stiff tonight, so I'm holding out hope that these steroids will work without me having to go to the hospital for an IV on Monday - it's just the
second day of them so far.
My neurologist has been really great at helping keep my very stubborn migraine disorder under control over the past 5 years, so I'm confident I'm in good hands with him, especially with him pushing out all the tests so quickly after these symptoms started.
I have a very physically active job, so I'm going a bit stir crazy being confined for a whole week, and I'm hoping no more steroids are needed after this so I can at least get back to work and figure out what to do in case the symptoms come back afterward.
Sorry about the walls of text >.<. I haven't really told many people in my life because it's such a serious thing, and I've been so terrified this whole week. Pretty much only a couple family members know, my boss, and a friend from work. I went in for a mandatory meeting at work on Thursday (it was a seminar-like thing for all staff, not actual work, so I was allowed to go). I ended up totally breaking down after the meeting because I couldn't walk well or use my hands much at all, and coming clean to two of the higher ups on what the diagnosis was leaning toward. That was, of course, before I found out the MRI test results, which only made the anxiety worse later that day. My boss has been totally supportive, but I'm an overachiever at heart so I feel extremely guilty for being out of work.
I think I'll at least feel better once I can start getting back to work once the symptoms subside, even if it may return. This has definitely been the scariest experience of my life, and there's a massive difference from just being too tired to get out of bed (Fibromyalgia) to literally not being in control of your own movements. I couldn't even turn my toothbrush off last night, and started crying when I couldn't open a bottle of water. I just want this episode to end, whether it comes back or not.
I stopped my first big attack with a Shiatsu massage. I believe the spine was under attack by a blood back jet and the massage stopped it. It took awhile to recover function, but I felt so relieved afterwards.
Even if that solution is unorthodox, getting a thorough massage which relieves tension in the back can do you no harm and may help enormously. If nothing else ask a friend to give you a good back massage.
Best regards, Vesta
The following preciously published on my site:
MY SEVEN STEPS TO MULTIPLE SCLEROSIS HEALTH
1. ENHANCE BLOOD/CEREBRO-SPINAL FLUID CIRCULATION
My analyses and emphasis on the fluid circulation issue set me apart from other alternative healing sites. I insist it is of vital importance.
If had known that my MS is essentially a pathology characterised by obstructed central nervous system fluid flows – blood and cerebrospinal fluid – I wouldn’t need a cane to walk today. That one simple concept changed my life forever, but it came too late to save me from handicap. It came in time to slow progression.
My research has concluded there exist three fundamental fluid obstructions. 1) skeletal obstructions of fluid flows – bones, ligaments, muscles, arteries. 2) spasms in the veins’ middle smooth muscle layer which obstruct blood flow and 3) stenosed veins in need of being ballooned open to overcome interior obstructions, the CCSVI issue.
Before undergoing venoplasty for CCSVI by an Interventional Radiologist (issue 3), I think one should verify that there is no skeletal obstruction (issue 1). The best diagnostic tool for that is a cinematic upright FONAR MRI. Chiropractors are probably the best therapists to determine and treat skeletal obstructions and may be able to suggest tools less expensive than the FONAR MRI. Issue number 2 may be the easiest to treat through relaxation techniques (yoga) or simple blood/cerebrospinal fluid circulation therapies such as massage, acupuncture, neuro-muscular electrical stimulation, osteopathy, or swimming. The injection by an MD of a mixture of dexamethasone/lidocaine/thiamine used to treat trigeminal neuralgia may be considered.
After a lifetime of eating badly, ingesting antibiotics and other toxic chemicals, exposure to heavy metals and nuclear fallout, toxins build up in the body and need to be flushed out in order to maximize the benefit of ideal, personalized foods and supplements. Check out DETOXIFY on the Internet to find your preferred protocol. One example:
want2bike (From Thisisms.com)suggested
“Dr. Hyman explains his 10 day detox diet.
I had the advice/assistance of a kinesiologist/nutritionist and won’t myself suggest a detox protocol. Dr. Hyman maintains that a simple diet change over 10 days will do the trick (or at least be a beginning) which is something anyone can try. So why not? (It takes 5 days to withdraw from a food allergy).
See also my Detoxification and Supplements post.
3. OPTIMAL ANTI-INFLAMMATORY NUTRITION.
See C-Reactive Protein – Key to MS Diet
Diet is critical to many diseases, particularly « auto-immune ». However, areas of vulnerability differ. For MSers it’s the vascular system linked to the central nervous system that matters. Diet impacts production of C-Reactive Protein (CRP) – which in turn impacts the endothelium of the vascular system. Secondly, proper diet acts to reduce cellular inflammation thereby preventing spasms in the veins’ smooth muscle layer. It follows that for MSers proper diet facilitates blood/cerebrospinal fluid circulation. For those without a serious veinous obstruction, diet/supplements alone may suffice to heal
I have been taking a customized Standard Process Supplement Protocol (with additions) recommended by my Kinesiologist/Nutritionist since 1984 so I won’t suggest a general plan.
As to Diet, consider my post Paleo-Macro-biotic diet.
As a general protocol consult Matt Embry’s excellent
http://www.mshope.com. (food, supplements, exercise, CCSVI).
5. SUNLIGHT OR UV RAYS on the skin at least 15 minutes daily to release Nitric Oxide essential to vascular health and blood circulation.
6. Homeopathic remedy Oscillococcinum by Boiron to head off a virus. IT WORKS (unless perhaps one is taking a toxic drug. Anti-biotics annul it for me.) Cost – 1 euro the dose, 1 or 2 doses will stop a sore throat, 6 doses maximum treatment over 3 days ($8).
7. EXERCISE BUILD UP PROGRESSIVELY (Consulting a Physical Therapist may help.)
Be moderate in terms of your current condition. Don’t do so much that you throw yourself into an « attack ». (Early on I stressed myself with a « performance » mentality.) Now I walk a minimum number of steps per day and swim when I can.
Be creative. Tif of ThisisMS.com has recovered function with Neuromuscular electrical nerve stimulation in the Onyx Body S haping and Slim Spa which uses “Madame and Monsieur Electro-Slim Technology”. Hugo Macia (www.secretosdelaesclerosismultiple.blogspot.com.es.) is testing on himself a German made Neuromuscular “jacket” to regain function. See https://www.miha-bodytec.com/en/product/