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My story

Posted: Mon Feb 08, 2021 3:36 pm
by Crywhileeating
Hi my name is Kay, I am a 31 year old female wife and mother. On Friday, January 22, 2020 I was sitting on my couch at home with my kids when I suddenly got very nauseas when I went to stand up my right arm was weak and stiff, I was also very dizzy. After about 20 minutes I felt a lot better and went to bed as I was exhausted. Saturday morning I felt so much better and went out for the morning, when I started driving I was good and then I started getting very hot again and my peripheral vision got all blurry, when I pulled over and stood up out of the car my right knee immediately buckled and became very stiff. I went to the urgent care in the city and they did a pregnancy test and tested my sugar, and a quick neuro test and saw no concern so they sent me home to follow up to PCP. I went home and slept all day (17 hours), the next day I woke up and my whole body was stiff (probably from sleeping all day). Monday, I had an appointment via Telehealth with my PCP and he sent me for a MRI / MRA and CT Scan along with blood work. Blood work the SED levels came back high, but all scans normal. Wednesday and Thursday, I had severe days where I was nauseas, dizzy and overall heavy feeling, I went to ER they did another CT scan and said that my symptoms pointed them to believe possible MS even though my MRI / CT Scan were clear. Friday and Saturday, I started getting a severe pain in my upper right back between by shoulder blades and down to my arm. My PCP told me I have to see a Neurologist and has placed a referral and said they would contact me. My PCP has now called me 4 times asking if I have heard from Neuro and I have not. I have been feeling better just some clumsiness in my right arm and hard to function fully like it used too, seems to take longer to do things.

I have been trying to rack my brain around a lot of things. Thinking back over time. About 2 years ago my skin itched so bad that I ended up with bruises all over my arms and legs, the doctors didn’t know why and eventually they went away. About 4 months ago I went partially color blind (more pinks and reds) but I didn’t even go to the doctor since my father was color blind and I hate going to the doctors and it I didn’t really see it as that serious. I also get spots in the peripheral vision, but not that often. And my sense of smell has skyrocketed. I now smell everything!!

I guess I will see what Neuro says, if I ever hear from them.

Re: My story

Posted: Mon Feb 08, 2021 4:05 pm
by Scott1
Hi Kay,
I'm not sure this is MS. The itching you had in the past might be relevant. If you have high SED level, they should also look at your C-reactive protein level. A bacterial or viral infection needs to be clearly ruled out but it doesn't sound like it has yet.
There are a lot of things that can produce a high SED level ( ... c-20384797 ) but infection is the first thing to ask about.
It will be very difficult to confirm that MS is the problem given your MRI's are clear. That 'overall heavy feeling' might be fatigue and it can have many causes.
Blood tests are just a way of asking a question. What they find will depend of what they have tested for. If they ask the wrong question, they get an irrelevant answer.
I think you should push for a range of tests looking for infection. It will be a process of elimination so it might require you to be forceful.
If your PCP has called 4 times then he or she realizes you are sick. You may need to be admitted to a hospital so they look more deeply. I would push very hard to be investigated in greater detail.


Re: My story

Posted: Mon Feb 08, 2021 4:21 pm
by Crywhileeating
Scott thank you so much for the reply. I will make sure to ask about infection and push to have more blood work done. He did a full CBC and Lyme test as well as my vitamin levels which were all WNL. At current I am feeling much better then what I was. I just hope that it never occurs again. Thanks so much for your reply though and I will be sure to request more blood work!