- Family Elder
- Posts: 118
- Joined: Fri Aug 20, 2010 2:00 pm
- Location: Calgary, Alberta, Canada
Starting from EDSS of 6.5, I did not expect a major improvement.
However if it does not work for you, then it probably won't. Most medication is like that (boo, hiss).
Still, if you are SPMS, what else is there to try except some of the off-the-wall treatments.
No constipation issues, but maybe (just maybe) Biotin has been responsible for increased spasticity in my legs.
This was no problem until after 6 months of Biotin - then both legs started going into hyperextension and relaxing again after 15-20 seconds.
I believe that this has been reported elsewhere.
After 2 years under biotin (1 year with Pure Bulk + 1 year with Qizenday) :
well, it's like "roller coaster".
Sometimes I feel really good and I even tend to forget about MS; sometimes I realize MS is still here...
From what I understood about biotin, it doesn't stop ms. It helps myelination (which is good)
However, I have to admit that globally, I feel much better.
For remyelination, my research has suggested:
- Vit K2 (high dose)
- Cogentin (Parkinson's anti tremor drug)
- Thyroid T3 hormone (Liothyronine)
Beware liothyronine (thyroid T3) side effects tho, Cogentin may be a preferable choice, plus reduces tremors as a bonus.