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PPMS and Rebif

Posted: Wed Jul 20, 2016 11:34 am
by orphansparrow
Hi there,

My husband was diagnosed last week with what the neurologist believes is PPMS. But she also prescribed Rebif to him, which she wants him to inject 3x a week.

I was under the impression that Rebif is for RRMS patients. Is there a reason someone with PPMS should take it?

We go see her again in a couple days, and have decided to not start the Rebif yet. I want to make sure its the right decision.

Re: PPMS and Rebif

Posted: Thu Sep 08, 2016 10:49 pm
by jon123
orphansparrow wrote:Hi there,

My husband was diagnosed last week with what the neurologist believes is PPMS. But she also prescribed Rebif to him, which she wants him to inject 3x a week.

I was under the impression that Rebif is for RRMS patients. Is there a reason someone with PPMS should take it?

We go see her again in a couple days, and have decided to not start the Rebif yet. I want to make sure its the right decision.
It might be the case when there is no other alternative is suitable.

Re: PPMS and Rebif

Posted: Mon Nov 21, 2016 8:47 am
by HUD45
I have PPMS and was offered some of the CRAB drugs to try for effect.. I declined due to the side effects were probably worse than the benefit. Everyone is different though and has to decide for themselves.

Still looking for individual testimonials for Ocrevus (ocrelizumab)

HUD