Dear Dr. Flanagan,
I am not aware of any curvature problems but have never been checked for them nor has my dauthter. The ON for both of us was in the right eye. No pain just blurred vision that eventually resolved on its own. Neither of us used steroids since at the time we were nursing mothers. I Have never used the immunosuppresive drugs. My daughter did have a small hemangioma on her right forearm that she had removed when she was a child. I have foud out that that I have a venous cavernoma in the right temporal lobe that was not present on my 2006 mri. I was diagnosed with HBP about 3 years ago. Am taking 10 mg linosinopril for this. I'm not sure about my daughter but she has never been told that she has high or low BP. I hope I've answered your questions. Thank you.
CCSVI and CCVBP
Sure, sway me to your side by quoting drsclafani...works every time...NZer1 wrote:While it is fresh in my mind I will add that Dr. S has said you can look at the rings on Saturn with a pair of binoculars or a telescope. One will give more detail.
I appreciate the responses. My thought with the telescope is that we've been relying on our docs who are holding the telescope to tell us what they see. And they all see different things.
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uprightdoc
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Coach,
It's not easy remembering everything you told me but from what I recall, so far you have reported right eye, right ear and right shoulder pain along with difficulty writing with your right hand. It certainly sounds suspicious that you have a misalignment in your spine somewhere between the top and bottom. Does your daughter have a similar frame?
It's not easy remembering everything you told me but from what I recall, so far you have reported right eye, right ear and right shoulder pain along with difficulty writing with your right hand. It certainly sounds suspicious that you have a misalignment in your spine somewhere between the top and bottom. Does your daughter have a similar frame?
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uprightdoc
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Cece,
Ironically, a woman with MS just commented on my blog today under the button at the top of the page called "Whiplash and Trauma." The woman had MS that was fairly stable when was in a serious motor vehicle accident that caused her to go rapidly downhil.
Unfortunately, you can't sue for MS due to trauma in the US where American doctors still hold sway on the subject You can in certain countries in Europe where they have more common sense. The AMA's position is the tool that the lawyers use to sheild their clients and deprive victims of just compensation. Any of you who have a diagnosis of MS will be in the same positon as this woman should you get into a similar situation in the US.
The AMA's ongoing position is blatantly wrong and has left many victims of serious brain and cord injuries due to trauma defenseless.
Ironically, a woman with MS just commented on my blog today under the button at the top of the page called "Whiplash and Trauma." The woman had MS that was fairly stable when was in a serious motor vehicle accident that caused her to go rapidly downhil.
Unfortunately, you can't sue for MS due to trauma in the US where American doctors still hold sway on the subject You can in certain countries in Europe where they have more common sense. The AMA's position is the tool that the lawyers use to sheild their clients and deprive victims of just compensation. Any of you who have a diagnosis of MS will be in the same positon as this woman should you get into a similar situation in the US.
The AMA's ongoing position is blatantly wrong and has left many victims of serious brain and cord injuries due to trauma defenseless.
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blossom
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upright doc
dear dr. flanagan and to whom it might concern,
although i don't have the savy for all the right medical terms some do, but common sence has gotten me through life. we need both, and first, as we all know the drugs have done little or nothing for this many symptom disease that someone choose to call ms and put in one basket.
when i heard of ccsvi and the blood flow it made sence to me because of some of my symptoms. my symptoms as i have always maintained were due to a trauma. when i read that some blood flow problems with ccsvi could come from trauma i thought "bingo". i had the angioplasty done and really i was expecting to be told i had something pressing that was causing the stenosis. but, in my case they ballooned them and i was on my way with not much discussion. i really got not much out of it and am on decline with a worry of developing clots or scar tissue or maybe worse stenosis. i am not putting ccsvi or any of the dr.'s down. i'm grateful that some are good enough human beings to step out of the box. and, for many ms people it has helped and it seems to be the answer for them--but not everyone. but it is a work in progress.
had i known of you and your work before hand i would have tried what you are getting out there for ordinary people to understand. but through the yrs. and trying chiro.'s i had no info. i had no idea there were specialty chiro.'s etc. like you are so "graciously"makeing known. plus, the way you explain and demonstrate-it boggles my mind that chiropractics has been shoved in the background by the medical community. could be maybe there is less of a money trail? the same as ccsvi. good question because it has helped many people with many different problems for many years.
in no way am i knocking zambonni and ccsvi because it still amounts to good blood flow. but, as the pioneers and the dr.'s stepped out of the box for ccsvi, it would be a crying shame if dr.shelling's, dr. nado's your work and other great works would again be shoved under the rug by the medical world. i hope that the vascular doc.'s and ir's and neuro.'s are as open minded to this as they want to be treated. it should be all about the patient and helping us. multiple symptoms possible multiple treatments.
so, thank you for joining this site!!! thank goodness for the internet! thank goodness for the people that are asking questions! even the skeptics-- who are civil! thank you for your patience and passion.
although i don't have the savy for all the right medical terms some do, but common sence has gotten me through life. we need both, and first, as we all know the drugs have done little or nothing for this many symptom disease that someone choose to call ms and put in one basket.
when i heard of ccsvi and the blood flow it made sence to me because of some of my symptoms. my symptoms as i have always maintained were due to a trauma. when i read that some blood flow problems with ccsvi could come from trauma i thought "bingo". i had the angioplasty done and really i was expecting to be told i had something pressing that was causing the stenosis. but, in my case they ballooned them and i was on my way with not much discussion. i really got not much out of it and am on decline with a worry of developing clots or scar tissue or maybe worse stenosis. i am not putting ccsvi or any of the dr.'s down. i'm grateful that some are good enough human beings to step out of the box. and, for many ms people it has helped and it seems to be the answer for them--but not everyone. but it is a work in progress.
had i known of you and your work before hand i would have tried what you are getting out there for ordinary people to understand. but through the yrs. and trying chiro.'s i had no info. i had no idea there were specialty chiro.'s etc. like you are so "graciously"makeing known. plus, the way you explain and demonstrate-it boggles my mind that chiropractics has been shoved in the background by the medical community. could be maybe there is less of a money trail? the same as ccsvi. good question because it has helped many people with many different problems for many years.
in no way am i knocking zambonni and ccsvi because it still amounts to good blood flow. but, as the pioneers and the dr.'s stepped out of the box for ccsvi, it would be a crying shame if dr.shelling's, dr. nado's your work and other great works would again be shoved under the rug by the medical world. i hope that the vascular doc.'s and ir's and neuro.'s are as open minded to this as they want to be treated. it should be all about the patient and helping us. multiple symptoms possible multiple treatments.
so, thank you for joining this site!!! thank goodness for the internet! thank goodness for the people that are asking questions! even the skeptics-- who are civil! thank you for your patience and passion.
Cece I'm glad you liked my quote, I hope it makes more of us aware that one train of thought is not going to solve the MS mystery.
The advantage I see from reading Dr. F book is that he has approached this whole disease combination with the mind of a generalist rather than a specialist.
Because his search was for many things that could be the outcomes of skull shape and then skull deformities and then skull erosion he has been able to approach this whole irregularity from an open outcome perspective.
Until I read the Dr's book I was aware that there had to be connections in MS to European lineage, the skull shape had to be a clue, the Dr. has come across many connections where diseases have origin in skull and spine structures and aging.
The proof for causes of MS has in my view always been from autopsy studies. The most valid understandings have come from these studies throughout history in MS. The approach by the general scientific population where they use maths and then test tube studies has not advanced the search for cause of MS or the other diseases the Dr has written about. All the research has supported is the Pharmaceutical Industry who are in control of medical research direction.
The people who will advance MS knowledge will not be from inside the circle formed by the Pharmaceutical Industry.
The way to correct that is to change the advisers to MS Societies and find ways to correct the bias in Research Direction and purpose. More validated research outcomes for CCSVI will help turn this into reality.
We still have some little steps to do before we can advance, if you are going to have treatment for CCSVI, you will only benefit from being in a study and having follow up and further treatment if necessary, as well as looking at the other emerging insights such as Dr Flanagans work on the diseases he has come to understand.
Regards all, Nigel
The advantage I see from reading Dr. F book is that he has approached this whole disease combination with the mind of a generalist rather than a specialist.
Because his search was for many things that could be the outcomes of skull shape and then skull deformities and then skull erosion he has been able to approach this whole irregularity from an open outcome perspective.
Until I read the Dr's book I was aware that there had to be connections in MS to European lineage, the skull shape had to be a clue, the Dr. has come across many connections where diseases have origin in skull and spine structures and aging.
The proof for causes of MS has in my view always been from autopsy studies. The most valid understandings have come from these studies throughout history in MS. The approach by the general scientific population where they use maths and then test tube studies has not advanced the search for cause of MS or the other diseases the Dr has written about. All the research has supported is the Pharmaceutical Industry who are in control of medical research direction.
The people who will advance MS knowledge will not be from inside the circle formed by the Pharmaceutical Industry.
The way to correct that is to change the advisers to MS Societies and find ways to correct the bias in Research Direction and purpose. More validated research outcomes for CCSVI will help turn this into reality.
We still have some little steps to do before we can advance, if you are going to have treatment for CCSVI, you will only benefit from being in a study and having follow up and further treatment if necessary, as well as looking at the other emerging insights such as Dr Flanagans work on the diseases he has come to understand.
Regards all, Nigel
Dr. Flanagan,
Unfortunately most neurologists have the view that taking medicines to suppress your immune system is the only way to treat MS and they are very sceptical of any other possibilities. My daughter has been to 5 different doctors since her diagnosis and they have all pushed drugs.
I have always felt that the accident caused my daughter's MS. In fact she started to have leg weakness about 6 weeks after her accident and complained numerous times to the various doctors about it saying it felt like a misconnect between her brain and her legs. The focus was on her knee injuries at the time so in fact she had symptoms very soon after her accident.
The fact that people get injured and then get MS and cannot sue is a tragedy. My daughter is in that position and has had an ongoing case for 5 years which seems to be going nowhere. It is terribly sad as she sustained soft tissue injuries, etc. that have altered her life completely but they count for very little in the eyes of the law. If she had broken her little finger she would have a better change at compensation. Her lawyer would love a doctor to say her injuries caused MS. I am with you Dr. Flanagan it IS outrageous that nothing can be done because of the AMA's take on this - surely it is time for another study?
Drury
Unfortunately most neurologists have the view that taking medicines to suppress your immune system is the only way to treat MS and they are very sceptical of any other possibilities. My daughter has been to 5 different doctors since her diagnosis and they have all pushed drugs.
I have always felt that the accident caused my daughter's MS. In fact she started to have leg weakness about 6 weeks after her accident and complained numerous times to the various doctors about it saying it felt like a misconnect between her brain and her legs. The focus was on her knee injuries at the time so in fact she had symptoms very soon after her accident.
The fact that people get injured and then get MS and cannot sue is a tragedy. My daughter is in that position and has had an ongoing case for 5 years which seems to be going nowhere. It is terribly sad as she sustained soft tissue injuries, etc. that have altered her life completely but they count for very little in the eyes of the law. If she had broken her little finger she would have a better change at compensation. Her lawyer would love a doctor to say her injuries caused MS. I am with you Dr. Flanagan it IS outrageous that nothing can be done because of the AMA's take on this - surely it is time for another study?
Drury
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uprightdoc
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uprightdoc
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Drury,
I will gladly tell your lawyer that your daughter's MS was caused by the accident. Attorney's were part of my intended market for the book. Two chapters in my book cover the topic of MS and trauma and the AMA's indefensible position. It also covers a court case in which I was excluded as an expert witness because I was a chiropractor even though I knew far more about the subject than the neurologist for the defense. The case smelled of conspiracy and collusion.
Have your lawyer read my book and contact me. The last couple of chapters address the issue in laymen's terms. I have papers, sources and citations including Schelling's book and even more recent neurosurgeon and MR studies.
I will gladly tell your lawyer that your daughter's MS was caused by the accident. Attorney's were part of my intended market for the book. Two chapters in my book cover the topic of MS and trauma and the AMA's indefensible position. It also covers a court case in which I was excluded as an expert witness because I was a chiropractor even though I knew far more about the subject than the neurologist for the defense. The case smelled of conspiracy and collusion.
Have your lawyer read my book and contact me. The last couple of chapters address the issue in laymen's terms. I have papers, sources and citations including Schelling's book and even more recent neurosurgeon and MR studies.
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prairiegirl
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uprightdoc
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Prariegirl
No I am not making a diagnosis. The diagnosis has already been made. The patient has MS.
The question in these medicolegal cases is whether or not trauma can cause MS? The answer is, most likely. The next question is, does the type of trauma in this particular case make sense in light of the signs and symptoms? The answer is yes. The head and spine house the brain and cord and were clearly traumatized. It is reasonable to believe their contents may have been injured at the same time. The brain clearly was injured at the time when her head smashed into the windshield. The last question is, did the signs and symptoms start within a reasonable time period following the trauma? In this case the leg pains started weeks later and the diagnosis of MS was made about a year after the accident. In the UK this would be a solid case.
No I am not making a diagnosis. The diagnosis has already been made. The patient has MS.
The question in these medicolegal cases is whether or not trauma can cause MS? The answer is, most likely. The next question is, does the type of trauma in this particular case make sense in light of the signs and symptoms? The answer is yes. The head and spine house the brain and cord and were clearly traumatized. It is reasonable to believe their contents may have been injured at the same time. The brain clearly was injured at the time when her head smashed into the windshield. The last question is, did the signs and symptoms start within a reasonable time period following the trauma? In this case the leg pains started weeks later and the diagnosis of MS was made about a year after the accident. In the UK this would be a solid case.
I was in an accident after which I experienced my first definite neurological symptoms of MS. I do not believe my accident caused my MS. In light of CCSVI theory, I believe my MS was caused by a cascade of effects as a result of bilateral jugular outflow obstructions, recently identified by my doctor using doppler ultrasound. My accident was a secondary factor as the anatomical abnormality preceded it.
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prairiegirl
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Even with the above information presented, I do not believe that this would fly in Canada as a "solid case". There is so much we don't know about the causes and progression of what we call MS. I wish we knew all the answers, and am hopeful that we are getting closer to figuring out the puzzle. I respectfully stand by my view that you cannot determine with the information that you have, that the accident caused the MS.uprightdoc wrote: No I am not making a diagnosis. The diagnosis has already been made. The patient has MS.
prairiegirl: ...yes, I meant to say "the cause of the MS". I do believe that there are many potential causes of MS and trauma may indeed contribute to some cases.
The question in these medicolegal cases is whether or not trauma can cause MS? The answer is, most likely.
prairiegirl: Like Drury, I have a daughter who is the primary reason that I research this, and am grateful to everyone searching for answers. However, I maintain that the above quote "most likely" is a better answer than your original statement that the accident caused the MS.
The next question is, does the type of trauma in this particular case make sense in light of the signs and symptoms? The answer is yes. The head and spine house the brain and cord and were clearly traumatized. It is reasonable to believe their contents may have been injured at the same time. The brain clearly was injured at the time when her head smashed into the windshield. The last question is, did the signs and symptoms start within a reasonable time period following the trauma? In this case the leg pains started weeks later and the diagnosis of MS was made about a year after the accident. In the UK this would be a solid case.
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uprightdoc
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Prariegirl,
Thank-you for your opinion.
I hope you keep an open mind however for the victims sake. At the very least victims should be allowed to have their cases heard. You will also find that Drs. Poser, Schelling, Alperin, Woodfield and other experts would agree with my position and disagree with Canada's current position. The UK model makes more sense. What's more, Drs. Zamboni, Hubbard, Dake and Haake are pretty much on the same page. There is far move physiolgical evidence now in the form of MR, MRA and MRV, not to mention upright MR and cine MR to easily substantiate connections to trauma. There is also more and more evidence linking Parkinson's and Alzheimer's disease to trauma as well.
Thank-you for your opinion.
I hope you keep an open mind however for the victims sake. At the very least victims should be allowed to have their cases heard. You will also find that Drs. Poser, Schelling, Alperin, Woodfield and other experts would agree with my position and disagree with Canada's current position. The UK model makes more sense. What's more, Drs. Zamboni, Hubbard, Dake and Haake are pretty much on the same page. There is far move physiolgical evidence now in the form of MR, MRA and MRV, not to mention upright MR and cine MR to easily substantiate connections to trauma. There is also more and more evidence linking Parkinson's and Alzheimer's disease to trauma as well.