Global CCSVI Day- May 5th
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Global CCSVI Day- May 5th
Events happening in UK, Boston, Canada--
for information:
Link to Facebook:
http://www.facebook.com/pages/CCSVI-in- ... 0796282297
link to Liberation Day activities
Link to CCSVI locator for other local events--
http://ccsvi-ms.ning.com/
for information:
Link to Facebook:
http://www.facebook.com/pages/CCSVI-in- ... 0796282297
link to Liberation Day activities
Link to CCSVI locator for other local events--
http://ccsvi-ms.ning.com/
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- cheerleader
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- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
Watch Canada AM "live" tomorrow morning to hear information about Liberation Day across Canada--
http://www.ctv.ca/canadaam/
http://www.ctv.ca/canadaam/
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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- Location: southern California
Here is Diana Price-CCSVI activist-speaking about her diagnosis with dual jugular stenosis. Rallies are being held around the world today--get involved-
CCSVI is a vascular condition, with neurological consequences. Treat the vascular disorder and separate treatment from research studies. Because dual jugular stenosis is a serious condition. (Ask Jeff...)
cheer
link to interview on CTV
CCSVI is a vascular condition, with neurological consequences. Treat the vascular disorder and separate treatment from research studies. Because dual jugular stenosis is a serious condition. (Ask Jeff...)
cheer
link to interview on CTV
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- whyRwehere
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There's a picture in this ctv article that shows the size of the crowd:
http://www.cbc.ca/canada/story/2010/05/ ... llies.html
http://www.cbc.ca/canada/story/2010/05/ ... llies.html
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
- whyRwehere
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Great job everybody! It's very exciting to see!
It's so frustrating hearing the same old thing though - "needs to be proven". There have to be other ways to prove effectiveness than the old large-scale-double-blind-gosh-someone may only think that they don't need to sleep 16 hours a day anymore but it may be placebo-trial. For example, reports from treated patients should be documented by a research center now.
Incidentally, the Andy Weiler quoted in the CBC article I believe is the same person who started out as a news reporter in my small home-town in Ontario, nor has he reported on health for very long. I'm sure that he does not have a science background of any kind. Why is he sounding so authoritative about evidence-based medicine? I kind of thought he was a twerp when he was on TV, so it irked me to hear his comments. Just a personal bias, I guess.
It's so frustrating hearing the same old thing though - "needs to be proven". There have to be other ways to prove effectiveness than the old large-scale-double-blind-gosh-someone may only think that they don't need to sleep 16 hours a day anymore but it may be placebo-trial. For example, reports from treated patients should be documented by a research center now.
Incidentally, the Andy Weiler quoted in the CBC article I believe is the same person who started out as a news reporter in my small home-town in Ontario, nor has he reported on health for very long. I'm sure that he does not have a science background of any kind. Why is he sounding so authoritative about evidence-based medicine? I kind of thought he was a twerp when he was on TV, so it irked me to hear his comments. Just a personal bias, I guess.
Last edited by muse on Thu May 06, 2010 3:09 am, edited 1 time in total.
- whyRwehere
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- cheerleader
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- Posts: 5361
- Joined: Mon Sep 10, 2007 2:00 pm
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Boston had a rally on Beacon Hill as part of an MS awareness day. There was no press, but a group handed out information cards to attendees at the NMMS event, from Facebook-
cheerWearing our shirts and holding signs, giving out CCSVI cards and spreading the good word on CCSVI!
We got a great reception from the MS Society and found the fellow MSers and other attendees thirsty for the knowledge of CCVSI!
Spoke to Legislators and made some great connections with others here in Boston!
I also had the Kuwait information to hand-out and 2 page CCSVI info!
No media but the word is getting out!
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com