yes, costu, i know exactly what you mean. on bad days thinking that something has gone bad with the operation, i have restenosed, thinking that maybe the negative wing is right, that it is to far fetched. as i still have the bad days i know what you mean.
it can't fix all ready done damage, i think that is to much to hope for. i have after all been ill for more then 8 years now.
but i agree with you, main blood drainage from brain needs to be kept open. dizzyness that was my latest attack has cleared relativley well, and the urgency i was starting to feel a month or two before operation has gone. and fatigue is better, so i am very pleased. my optic nerve is giving me loads of bother today, almost starting to think it is a new attack, bu its same spot on the same eye, and there is no pains with it, so i think its just the old damage acting up again.
need to get confidence back after operation, we need to get used to it beeing stabile, and then we can go back to trusting our own health a bit.
my gp is giving me all sorts of follow ups i he possibly can, blood tests and values, so i am very pleased with that. getting me followuptreatment from vascular centers are probably not going to happen, but that is not up to him, unfortunately.
watched that uk web-cast yesterday, there wasn't much enthusiasm to find, just very very careful, and reluctant in whatever hope they would give us. its just so arrogant calling all our experiences anecdotal evidence. even if i was very happy with the treatment in bulgaria, i would prefer to get treated locally, and followed up every month with scans and such. if we are feeling worse or not improving it might be down to full or partial restenosis. even if we can't complain to much about the cost in bulgaria, but going back on a monthly basis i wouldn't be able to afford. nor would they have the capasity to see us all that often either.
no the risks of not treating us is far worse then giving us the oportunety to find out if this works or not. like they do in kuwait. i just don't get it.
big rant from me
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
