Just had to share...I converted a local IR to treat me!

gothicrosie · Post by **gothicrosie** » Wed Jul 28, 2010 5:33 pm

I had an appointment with a local FSIR a couple of weeks ago and spent 1.5 hours with him discussing CCSVI. He was not totally convinced after the appointment but told me he would call Dr. Scalfani (because he knew him) and then get back with me.

I discovered he not only spoke with Dr. Scalfani, he went to the CCSVI symposium on Monday.

Well, he called me today, another long conversation, and he said he would treat me! Yippiee...

He is going to try and get insurance authorization and then will call me back to schedule my venoplasty.

happy dance happy dance

I converted another IR for the cause! YAY me! Yay CCSVI liberation fighters!

Trish317 · Post by **Trish317** » Wed Jul 28, 2010 6:08 pm

That's wonderful, Rosie! Congratulations!

CRHInv · Post by **CRHInv** » Wed Jul 28, 2010 6:23 pm

Way to go!!!! Good for you!!!

prairiegirl · Post by **prairiegirl** » Wed Jul 28, 2010 6:36 pm

Cece · Post by **Cece** » Wed Jul 28, 2010 6:43 pm

That is wonderful! Well done! And you get to be treated by someone who has at least done some legwork in terms of travelling to the symposium and learning and who is local! As my kids who watch too much Mickey Mouse Clubhouse would say, Hot Dog!

Guider · Post by **Guider** » Wed Jul 28, 2010 6:50 pm

That's great news. So glad for you.

Guider

garyak · Post by **garyak** » Wed Jul 28, 2010 7:30 pm

Tapping into that circle of physicians that know each other is awesome-interesting and great story.

gothicrosie · Post by **gothicrosie** » Wed Jul 28, 2010 9:50 pm

Hot Digittey dog!!

Oh yeah, totally awesome dude!!!

He is a researcher too, and seems to be interested in obtaining an IRB approval. I will work on convincing him of the merits of that, although I think he has already made a decision to do it. YAY.

I will update all when I am treated and what his decision is...and if he plans to treat others.

Rose2 · Post by **Rose2** » Wed Jul 28, 2010 9:59 pm

Good Work, Rosie!! Very good work!
Can you say if you are in Northern or Southern California?
Happy Dance, Yess!
Rose2 ;)

NotFound · Post by **NotFound** » Wed Jul 28, 2010 10:08 pm

Can you ask how he plans to treat you?

Is he going to be checking veins other than the "Holly Trinity" (2 jugulars + azygos)?

Would he enter through the right femoral or the left? (The left is more difficult, but may reveal other issues, like May-Thurner for example)

Yay to you for converting yet another specialist! Double yay because I am in California too

CureIous · Post by **CureIous** » Wed Jul 28, 2010 10:25 pm

Normally, one wishes the Dr. finds nothing and all is well.

In the CCSVI world, we congratulate each other on just the opposite, that something is there, which of course means there's something to go after.

You've done yourself and your fellow man a great great service in this, opening up the doors to others thru persistence and determination.

And he knows Dr. Sclafani to boot, sounds win/win to me. Good luck and keep us posted. IR's are great aren't they?

Mark.

gothicrosie · Post by **gothicrosie** » Thu Jul 29, 2010 6:46 am

*super big smile*

I am in the sunny land of SoCal.

He mentioned he is considering treating the lower IJVs like the doctor from Kuwait (?-who was at the symposium) with different specialty balloons. He will check the azygos...but we did not fully go into specifics...I think he was super excited about the research possibilities. Once he gets the insurance response we will discuss the treatment options, then I will pass on the details.

Fernie12 · Post by **Fernie12** » Thu Jul 29, 2010 7:13 am

So so awesome!!!

MS_HOPE · Post by **MS_HOPE** » Thu Jul 29, 2010 8:59 am

What superb news! You must be elated, to have someone local! Will you say where you live? Thanks!

BooBear · Post by **BooBear** » Thu Jul 29, 2010 9:35 am

Rosie, this made my day!