CCSVI BLOGS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
LR1234
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Joined: Wed Feb 11, 2009 3:00 pm
Location: California
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Post by LR1234 »

Is it worth making a blog directory a sticky. it doesn't have to be the messy one I have created but it would be nice to have one with every blog for us all to follow!
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Pepe
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Posts: 141
Joined: Sat Oct 17, 2009 2:00 pm
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Post by Pepe »

Hi,

Here you are a blog in Spanish:

http://creoeneldoctorzamboni.blogspot.com/

Regards,

Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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skipk
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Joined: Thu May 27, 2010 2:00 pm

my liberation

Post by skipk »

had it done yesterday in del mar, cali. went thru hubbard foundation. awesome experience. no soreness. 70% better next day. had 70% blockage in left vein, none in right, some in azygos vein.
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manojag22
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Joined: Fri Sep 18, 2009 2:00 pm
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Post by manojag22 »

I was liberated on last wk of Feb, my right IJV was stented (60 * 10mm) just below the ear, for last two weeks I'm having weakness, stiffness in right hand from shoulder to palm.. Not sure what is causing this ?? is this be MS or due to stent, Anyone have any idea, pls advise.. (One of my MS friend mentioned that it could be... due to acc nerve getting affected by size and location of stent). What could be option I have..
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Dave_NC
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Posts: 24
Joined: Tue Dec 29, 2009 3:00 pm
Location: North Carolina
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Post by Dave_NC »

Learning and living everyday to the fullest. dx'd Oct. 2008. On the list for Liberation!
http://www.liberatedave.com http://mylifewms.blogspot.com
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