Cece's turn

Rokkit · Post by **Rokkit** » Tue Mar 08, 2011 1:34 pm

Cece wrote:I am trying to remember how long Dr. Dake kept his patients on Coumadin, I can't off the top of my head.

I was on coumadin for 2 months. Plavix for 6 months.

AMJ · Post by **AMJ** » Tue Mar 08, 2011 5:08 pm

Cece wrote:

I mentioned energy a few posts up, it is on my mind because I've been lower in energy than I would've hoped, but now in the last few days it seems to be picking up. I am doing really, really well today. More things seem possible and more is getting done....

Great to hear, I hope each day brings you more and more energy!

CD · Post by CD » Tue Mar 08, 2011 9:10 pm

Rokkit wrote:
Cece wrote:I am trying to remember how long Dr. Dake kept his patients on Coumadin, I can't off the top of my head.
I was on coumadin for 2 months. Plavix for 6 months.

Thank you for that information Rokkit. I was curious too.

Cece, you left your thong in Brooklyn?

I did the Coumadin (Warfarin) thing for three months, so I'm a big girl now and have graduated to 81 mg of Bayer Baby Aspirin for life. I had my US and consult. I am good to go.

No more Warfarin and blood tests for me. Yahoo! Everyone was so surprised with my improvements, just like my family was too, TG.
CD

drsclafani · Post by **drsclafani** » Wed Mar 09, 2011 6:41 am

CD wrote:Cece, you left your thong in Brooklyn?

i had no part in that!

Cece · Post by **Cece** » Wed Mar 09, 2011 11:08 am

drsclafani wrote:
CD wrote: Cece, you left your thong in Brooklyn?

i had no part in that!

This made me laugh!

CCSVIhusband, back on Feb 12th wrote:Thinking about you today cece ...

I can't even imagine you meeting Dr. Sclafani ... I'd imagine your husband was rather jealous ...

We keep this up, he might be....

drsclafani · Post by **drsclafani** » Wed Mar 09, 2011 6:00 pm

Cece wrote:
drsclafani wrote:
CD wrote: Cece, you left your thong in Brooklyn?

i had no part in that!
This made me laugh!

CCSVIhusband, back on Feb 12th wrote:Thinking about you today cece ...

I can't even imagine you meeting Dr. Sclafani ... I'd imagine your husband was rather jealous ...
We keep this up, he might be....

he is a great guy, full of love, caring and pride
a good father, i really enjoyed meeting him.

Cece · Post by **Cece** » Thu Mar 10, 2011 8:08 pm

We have been married thirteen years and going strong. He is a great guy, thank you for the kind words. We both very much enjoyed meeting with you as well.

I was supposed to get a picture and I was too busy enjoying the time, then having the procedure, then marveling at the world afterwards, I completely neglected to get that picture.

Cece · Post by **Cece** » Thu Mar 10, 2011 8:46 pm

CD wrote:I did the Coumadin (Warfarin) thing for three months, so I'm a big girl now and have graduated to 81 mg of Bayer Baby Aspirin for life. I had my US and consult. I am good to go.

No more Warfarin and blood tests for me. Yahoo! Everyone was so surprised with my improvements, just like my family was too, TG.
CD

Congrats, CD!! And you have had great improvements. It must be nice to be off of that Warfarin! The more I hear about it, the more I hope never to be on it.

I am taking a baby aspirin too, it seems a prudent thing to do.

Drury · Post by **Drury** » Sat Mar 12, 2011 9:44 pm

Cece

Great to hear your improvements continue!

Soapdiva884

Hope things went well with John and look forward to updates. Glad that you were able to get slotted in at such short notice.

Thanks everyone for the kind words about my daughter. She has had a rough time with what seems to be a flare-up this past two weeks since her accident.

Cece · Post by **Cece** » Sun Mar 13, 2011 6:59 am

Drury wrote:Thanks everyone for the kind words about my daughter. She has had a rough time with what seems to be a flare-up this past two weeks since her accident.

She is in my thoughts, Drury, I hope the flare-up settles quickly and that Dr. Sclafani is able to take care of her soon.

prairiegirl · Post by **prairiegirl** » Sun Mar 13, 2011 7:25 am

^Me, too. Sorry to hear of the flare. Take care, Drury. Hope things turn around for the better very soon.

Liberation · Post by **Liberation** » Mon Mar 14, 2011 11:32 am

......

Cece · Post by **Cece** » Mon Mar 14, 2011 2:43 pm

I don't think there is much of a waiting list, for cash-paying patients, right now. Last month Vivavie reported getting in with less than a week's notice, iirc.

There are a number of patients who are all waiting on insurance credentialing to finish. What a headache and a heartache. So depending on how many patients are waiting on insurance, if the insurance clears, that could fill up his schedule?

It is unusual to have just one vein dilated; most patients have more than one. My own procedure at an hour and fifteen minutes is probably about average for how long these procedures take, at any doctor? Dr. Sclafani's tend to run long because he interrogates with IVUS. Thirty minutes is very short. I can only think of Dr. Mehta who does procedures that short (he has said he is concerned about the amount of contrast dye usage with the length of radiation exposure.)

We'll wait for Nunzio to find this question and reply too.

(I also started working on a one-month update to post here, but the short update is that I am doing well!!)

Liberation · Post by **Liberation** » Tue Mar 15, 2011 2:48 am

.........

Cece · Post by **Cece** » Wed Mar 16, 2011 10:59 am

I am not as familiar with the places in Europe or I'd make suggestions.

Yes, getting everything checked seems crucial to me, especially in primary progressive MS. I can't say enough about his use of IVUS. I have a disk with my IVUS movie, it is something to see. Nunzio's procedure lasted over four hours, I don't think the good doctor was just wasting time there, there was just that much work to be done!