A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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David1949
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by David1949 » Fri Oct 01, 2010 9:02 am
Many people on this forum report cold hands and or feet. The purpose of this poll is to see if people with MS are different than the general population in this respect.
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Coolcatcarrie
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by Coolcatcarrie » Fri Oct 01, 2010 2:06 pm
My feet are mostly freeeeeeeezing!x
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Coolcatcarrie
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by Coolcatcarrie » Fri Oct 01, 2010 2:07 pm
My feet are mostly freeeeeeeezing!x
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David1949
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by David1949 » Fri Oct 01, 2010 2:38 pm
I think we need some people without MS to respond as a control group. Spouses and friends are welcome.
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tiredloulou
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by tiredloulou » Sat Oct 30, 2010 1:51 pm
My feet and hands were so cold, you felt and others felt also
I had them in the freezer.... for past 6 yrs
after my ccsvi treatment...............yahoo
my hands/ feet are at normal temp............love it
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blossom
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by blossom » Sat Oct 30, 2010 9:01 pm
my hands and feet are like ice plus a bonus of purple swollen feet. except when i get up in the morning they are normal. got treated in albany they warmed up some for awhile but back to the same crap now and getting worse.
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1eye
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by 1eye » Sat Oct 30, 2010 10:08 pm
Maybe you should have a category for treated people. Do you think we still have 'MS'? I don't. My hands and feet are sometimes cold, sometimes warm. Depends on air temperature and what I am wearing.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
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NHE
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by NHE » Sun Oct 31, 2010 2:53 am
My right hand is usually cold. My left hand is usually warm.
NHE
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MS_HOPE
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by MS_HOPE » Sun Oct 31, 2010 2:17 pm
Similar to NHE, my right hand (and foot) are often cold, but not usually the left. Also, sometimes discolored (red/purple), but not very severely in my case.
CCSVI: Making Sense of MS
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David1949
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by David1949 » Tue Nov 02, 2010 1:23 pm
So far my poll is turning out to be a dud. It just shows that most people have cold hands and feet regardless of whether they have MS or not. Yet when I read the accounts of people with MS they have ice cold feet that sometimes are turning purple. That doesn't sound like anything seen in the general population.
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Ned
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by Ned » Wed Nov 03, 2010 2:09 am
Yep - the right side of my body is cooler than the left. It is also a different colour.
My right hand, leg & foot are troublesome
I've had angioplasty twice, the second time was only 9 days ago, but so far have had No improvement in my right side probs.
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Kinora
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by Kinora » Mon Mar 05, 2012 11:37 am
Yes. My feet are freezing. The only thing to get them back are hot baths and using my magnets helps.
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Gardenia
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by Gardenia » Mon Mar 05, 2012 1:37 pm
I have MS i am in a wheelchair 24/7 since breaking my leg. Prior to that about 4 years before I had developed dropped left foot. About two years ago my gp noticed my left foot was cold. It was summer, warm out. My right foot was warm. I had the angioplasty last April, and my azygous vein was the width of a few hairs for a short distance, 80% blockage. Doctor was only able to widen it by 30% Needless to say myh left foot turned warm ande has stayed warm since then, but still in wheelchair, muscles so weak. Im 35 and live in Canada, which says much. I hate this country with a passion.
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civickiller
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by civickiller » Mon Mar 05, 2012 8:16 pm
feet were ice cold then with upper cervical care they were warm but now my inexperienced ucc dr wont rexray me so now feet are cold again. hands always warm
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Cece
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by Cece » Tue Mar 06, 2012 8:40 am
Civickiller, your feet are cold in Hawaii? That is salt in the wound. In 80 degree weather.
My hands and feet were ice cold for as long as I can remember. After CCSVI venoplasty, they've warmed up. It might be an improvement to the autonomic nervous system, with improved ability to self-regulate temperature.
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Swollen ankles and feet
Replies: 30
First post
Feet are like football's so I looked and there it was again MS , is there anything ms doesn't cause ?
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Their open toed , my ankles make it hard. Here I am 54 and having my wife put on my compression stockings around my swollen twisted ankles ,the whole...
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