Hughes Syndrome

[babyblooeyes]

So, I was reading an article on Hughes syndrome and this has me intrigued. I remember a while back that I had the Lupus anticoagulant test and the antiphospholipid test done and it was actually positive for antibodies but was never asked to return for a recheck on these. However, I had another doctor (family friend) review the results and said I likely have antiphospholipid syndrome or sticky blood. It has dawned on me that maybe this is the issue and it isn't MS related. He wanted me to start aspirin therapy but it ended up I was allergic to aspirin. My rheumatologist blew the results off completely. Now I am curious and will be calling my GP to discuss this before setting up the appt for the neurologist or should I just go to the neurologist and ask him. I had another episode of heat exhaustion and I wasn't even a couple minutes into my workout but it was 90 degrees outside so I guess the walk from the car to the building must have upped my temp just enough. During my nap I was woken with a massage spasm in my thigh that actually became part of my dream before waking me... I dreamt someone was slowly sticking a large knife through my leg.... OUCH!

Does anyone have hearing issues? Like their hearing goes in and out and you only catch some of what someone is saying?

Anyway... off to do something else for now.

Theresa

[PointsNorth]

Hi babybloo,

I just read that 5% of people with MS actually have Hughes. Hypocoagulation is common across a wide swath of syndromes/diseases. I'm taking some blood tests currently. If I'm positive for hypocoag, heparin is a possible fix.

PN

[jimmylegs]

do you mean 'hyper', PN?

[PointsNorth]

Sorry Jimmy, HYPERcoag

[MSUK]

Hi, you might find this of use - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/736/

[NHE]

Will the INR be normal for someone with Hughes or will it be less than one?

NHE