I got the blood tests and all (i gather you mean the baseline liver monitoring tests to prep for rebif) but then i decided not to fill the prescription and i'm going to fly drug free for a while and see how it goes.
Your supps sound great - i do the o3, vitamins, and lecithin, and am considering turmeric for the next trip to nutrition house.
I started taking a liver support pill (herbal blend) when I thought I would do the Rebif - haven't stopped yet - which you may want to consider also.
Vitamin D is good, my MS doc even said it would be good to take - your body puts it out when it needs to mediate immune response. I take 4000IU per day in lieu of sunlight, on the advice of my ND (i also have to get my reg doc to test my vit D saturation to make sure i'm not overdoing this fat-soluble vitamin). Will likely have to modify in summer.
B12 is neuroprotective and i take 1000mcg methylcobalamin (not cyanocobalamin) daily. My b12 was super low for years - as in, making me stagger low - out of pure dumb stubborn-ness, and i am now dutifully keeping it above 500 (it's 640 actually) since that's the min of the normal range in japan (where ppl don't get ms). to help w b12 metabolism i take 1 tbsp per day of a calcium liquid.
I was taking B-complex daily but had to cut back to q 3 weekly, coz my folate went through the roof and made me itch like mad around the shoulders - kinda glad i had lost sensory below that lol!
Lots of ppl are iron deficient too so watch out because you need it to get oxygen to your cells so they can do what they're supposed to like make myelin
and there's enough fatique associated w/ this disease without being anemic too. my hematocrit improved since i started adding iron too, so it's working!I take ginkgo biloba for the brain and circulation, and my ND said to look into OrthoMind when I run out.
I take acidophilus, digestive enzymes and 2g C daily to help ensure the bod is able to utilize everything.
Vitamin E is in there as part of my A-C-E antioxidant angle (i get A from many foods and the omega/cod liver oil supplements so I don't specifically take A)
Think that's about all. Oh there's a multi-mineral in there since i drink filtered water... I usually have a mega-pill-fest (~16) after lunch every day lol
I have seen big improvement since I started and it's just my C5 thru C8 dermatomes that are really messed up any more. stupid arms. stupid hands. T1 through T12 are WAY better, just a little of that tightness around the rib cage. kinda shaky but that should improve too.
My ND also said run cold water at the end of each shower to get the blood moving suddenly which is supposed to flush toxins. i said sure but in practise it is just not happening. so instead i am considering using niacin to get the body flush and move the blood around that way.
scoobyjude wrote:I am going through blood tests now and plan on starting Rebif soon. This frightens the heck out of me but I'm going to do all I can to help myself. I am currently taking Omega 3, a multivitamin and Lecithin as supplements and I was thinking of tumeric. Can anyone suggest anything else or have a reason why I shouldn't take these? My neuro did not seem to have much faith in supplements but I trust people who are dealing with this condition to have more informed info. I just love the overall positive research vibe of this forum and how helpful the members are and wanted to say so. Thanks
