CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

I had a lengthy online meeting with Dr. Rosa today in which he reviewed many interesting cases with me including Chiari malformations, MS and Parkinson's. The imaging and findings are incredible. All of the cases are associated with Chiari 1 type malformation (cerebellar tonsillar ectopia) and maldirected CSF and blood flow. One case showed the tonsils of the cerebellum bouncing back and forth in the foramen magnum due to maldirected flow. Another case showed the cord getting displaced back and forth inside the spinal canal with each cardiac cycle. Several showed turbulance and backjets pounding on the brain and brainstem and compressing them. Several cases have upper cervical lesions where the maldirected CSF flow impacts the brainstem and cord. In some cases the maldirected CSF flow even caused erosion of the bones of the cranial vault. A couple of cases had structural design flaws in the clivus and base of the skull. In one case the clivus is very steep, which as I predicted, makes the brainstem susceptible to Chiari type malformations. That's the short version. Blood vessels are also affected. But that's another story.

My head is still swimming. I'm head'n down to the river for a dip and a little chill'n out.
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Re: CCSVI and CCVBP

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Fantastic news, its always good to find/see answers to predictions. :)

Dr.F I am best to book closer to September and do this right rather than fast. So can you please book me in and let me know how you get on. I am now on the edge of my seat looking forward to finding some real answers.

I've started spreading the news!

Thank you,
Nigel
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uprightdoc
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Re: CCSVI and CCVBP

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I will give you as much warning as possible next time Nigel and bring your friend. Cases like yours and Neava are important to study. There is much more to this story from my perspective. There is much more to discuss. I also discussed with Dr. Rosa how he got started. He got started following a forensic case involving whiplash in 2004. It is an interesting story. I will be posting it on my blog as soon as I can decipher my steno and get a little more background.
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NZer1
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Re: CCSVI and CCVBP

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Thanks Dr. this is the so called tip of the ice berg I guess, having the technology support at last!

It's your persistence and dedication that has inspired me,
and now the chickens are coming home landing at the roost next to your Solar panels.

Now that there this is knowledge on film as well as your Books, Blogs etc I can't wait to be part of the learning curve Part 2.

Thank you again,
Nigel
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msscooter
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Re: CCSVI and CCVBP

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I look forward to more !

LaFemmeMSketeer
I have been MSsooter but need to change my name after libration. Don't use a scooter anymore! I am LaFemmeMSketeer!
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uprightdoc
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Re: CCSVI and CCVBP

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Your welcome Nigel. It is the tip of the iceberg. I have waited a long time for the technology to actually see what I have seen recently from upright and cine MRI scans. Anyone who understands wind, current and waves as mariners and sea kayackers do, however, can predict the behavior of water around land masses and rocks. As I mention on my website, the brain is the land mass and CSF is the sea. While there is an general current and pressure in the brain there are local currents and pressures as well. Currents speed up as they get squeezed between land masses. The become turbulent when they encounter resistance. What I saw yesterday was the CSF flow getting squeezed and consequently jetting and back jetting into the brain, brainstem and bones resulting in chronic compression of the soft tissues and erosion of the bones of the cranial vault. The point of greatest resistance to CSF flow is through the foramen magnum. Structural abnormalities of the craniocervical junction are one of the primary causes of obstruction to CSF flow and subsequent backjets and turbulence.
Last edited by uprightdoc on Fri Jul 13, 2012 2:32 am, edited 1 time in total.
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NZer1
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Re: CCSVI and CCVBP

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Great to hear that Michael J Fox is looking at supporting the journey, almost to the day!

When I was lucid earlier I had a look back through 20 or so pages, your knowledge astounds me Dr F,
Thank You!

Nigel
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Re: CCSVI and CCVBP

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Hi Dr. Flanagan,

It's been a while... glad to know you're doing well.
My family and I always enjoy sailing past the Anthony's Nose that's on Lake George.

Amazing and frightening cases that Dr. Rosa discussed with you. I can almost hear the puzzle pieces clicking into place. Can't wait to read the results of last year's study (out of 40 patients enrolled, I was one of two MS patients who participated). Dr. Rosa performed my adjustment--he's a gem. You once told me that my entire spine is a "train wreck" and thought I might have a Chiari malformation... in light of your discussion with Dr. Rosa yesterday, I wonder if we now have the answer.

Best wishes for this year's MS-Parkinson's study. I hope that all goes well for all the patients (I won't be participating--Dr. Rosa already has my scans) and that the problems that caused the schedule to fall behind last year won't happen this year... many patients were at the imaging center for over eight hours! (Patients might want to bring food and drinks, just in case.)

Also, kudos for your work on Drs. Rosa's and Harshfield's research proposal for the Michael J. Fox Foundation for Parkinson's. They certainly are very, very deserving doctors.
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Re: CCSVI and CCVBP

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Hello Poet,
I have paddled around the nose and the tip of the tongue. The water around the nose is incredibly clear and more aqua in color when the sun is out. The water gets dicey around the tip of the tongue and across from the nose. I have run into four foot chop and incredible winds. It's fun to play in. The Hudson is similarly narrow and deep where it passes through the fjord and the water gets rough. I almost got swamped off Constitution Island by a rogue wave once. I didn't have my skirt on at the time. My bilge pump got a good workout.
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Re: CCSVI and CCVBP

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Poet,
You have problems from stem to stern due to spondylosis and scoliosis like many other cases I have reviewed. Spondylosis and scoliosis change the course of fluid flow through the spinal canal. It is my opinion that spondylosis can cause displacement (ectopia) of the brain inside the cranial vault especially in cases of head tilts, as well as cervical kyphosis and lordosis. I also suspect that it causes tethering of the cord. I haven't seen your scans but I would be surprised if you didn't have descent of the brainstem into the foramen magnum. I am sending a couple of more MS cases to the next study that are most likely due to spondylosis as well.
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Re: CCSVI and CCVBP

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Hi everyone,
Over night the thoughts about Lesions and their ability to change reminded me to put this back into the thinking pot. Is this alignment changes in action in everyday life of a person with flow problems?
What prompted me was the way a 16mm long lesion on my C2 spinal cord is not visible 2.5 years after it first rapidly appeared!
Regards
Nigel

From my page on FaceBook, https://www.facebook.com/pages/CCSVI-in ... 1636357984
Thanks Arne Kaminsky 24 months ago
Look at that: http://www.med.harvard.edu/AANLIB/cases ... 8/031.html That's how CCSVI looks like watched over one year!
Dr Franz told me that the Harvard video (especially around cine / slice 31) is showing perfectly the reflux in CCSVI and that’s why it doesn’t matter how many lesions you have because they come and go. Counting lesions/dots is real junk science! Much more important is the amount of iron deposit in your brain. A huge amount of iron deposit in your brain = means a huge amount of malfunctioned veins = means a more progressed CCSVI/MS.
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NZer1
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Re: CCSVI and CCVBP

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http://www.fonar.com/news/110211.htm
Diagnostic Breakthrough in Multiple Sclerosis with FONAR UPRIGHT MRI Leads to
Noninvasive Treatment that Results in Symptoms of MS Patient Subsiding

WoW,

Nigel
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NZer1
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Re: CCSVI and CCVBP

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http://ucstudies.wordpress.com/
Inventor of MRI has found possible cause of Multiple Sclerosis
15 January 2012Leave a comment

FONAR Upright MRI
We wait with baited breath to see if the inventor of the MRI has caught on to something groundbreaking – a possible cause (and evidence) to the presently unknown cause of Multiple Sclerosis. A noteworthy press release was sent out last fall that talks about the possible etiology of MS, including an eight-subject trial run at a non-invasive treatment.

If you have had a car accident, whiplash injury or head trauma from some other cause, your brain may be leaking. According to the study, head trauma like that seen in whiplash injuries causes obstruction of cerebral spinal fluid (CSF) thus increasing the pressure in the ventricles and leaking into the brain. This has become more visible on the new FONAR Upright MRI than the traditional lie-down-in-the-tube MRI.

The obstruction comes as the first few bones in your neck becomes misaligned and causes a backup of CSF. When this misalignment was corrected, the study shows pressure decreases by 28.6%! The flow also becomes uniform again once treatment is given. The idea of the fluid (CSF and blood) collecting in the brain due to the poor draining and improper position of these vertebrae is under review for a cause of Alzheimer’s and Parkinson’s disease as well.

You might think that because the CSF and other vessels are deep in the brain that surgery is required. Au contraire says Dr. Scott Rosa. Dr. Rosa preforms an upper cervical chiropractic technique called Atlas Orthogonal that corrects the malposition of the cervical spine without surgery or drugs. Did you hear that?! NO DRUGS! No prescription and no side effects. No cutting, scarring and recovering. This procedure alone is enough to allow CSF and blood flow to normalize and decrease the pressure that will diminish the risk of the person from developing MS. That is as long as draining remains clear.

Everybody knows that neck injuries present with varying degrees of severity. How long after an injury does it take to develop into a condition like MS? On average, the study showed an 11 year lap between the initial injury and the diagnosis of MS. That should change the way we understand and treat vehicle accidents, sport injuries and other injuries to the head and neck. There are growing numbers of studies and theories relating to decrease flow of CSF and venous blood from the brain. If this is an area of interest to you, check out this blog by Dr. Flanagan uprightdoctor.wordpress.com and continue to watch for an official study put out by FONAR and Dr. Rosa.

WoW again!

Nigel
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Re: CCSVI and CCVBP

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Nigel,
The reason why some "ms lesions" can come and go is because it isn't always clear what they are. Ischemia, edema and blocked CSF can come and go but degenerated or dead scar tissue doesn't.
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Re: CCSVI and CCVBP

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Nigel,
In reply to your PM, there is no link or information yet about Dr. Rosa's study. He just started looking into MRI to validate upper cervical injuries due to trauma in 2004. That's where his story begins. It is an interesting one as shortly thereafter he met Dr. Raymond Damadian and FONAR. I will be publishing a page on wordpress about it soon. The study just got started. I have sent many unusual cases with more to follow. It's about the role of structural abnormalities in the craniocervical junction in CSF flow and neurodegenerative diseases. The study confirms my theory. My theory goes back to 1984 while studying anthropological, pathological and comparative anatomical skull designs regarding fluid mechanics in the brain and hydrocephalus among other things. Skulls provide forensic evidence of fluid mechanics in the brain. Upright posture poses unqiue challenges that predispose humans to descent of the brainstem and cerebellum into the foramen magnum causing blockage of blood and CSF flow.
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