CCSVI and CCVBP

[uprightdoc]

Hello Francis,
I can not see enough detail in the MRI but the fragment of disc or bone does appear to be touching the cord. Your symptoms and physical exam findings are important to determine if the disc is the cause of the problem and if the condition is progressive. The disc may also be contributing to the expansion of the syrinx. Expansion of the syrinx, which is higher up in the cord could be causing your symptoms. If they can do endoscopic surgery on the T4/5 disc/bone, it is a good option. You have other symptoms, however, that aren't related to the disc. You need a good physical exam and closer inspection of upper cervical spine.

[Robnl]

Hi Francis,

I understand, but like dr.f. Says; when you are in a vertical position, and we are most of the day, gravity play a significant role.
Dr. F.can explain it and you can take his explanationto the neurosurgeon.

Sad thing; the fonar upright mri in Terneuzen is gone

In Amersfoort is another vertical mri, no fonar.

In germany are several fonar upright mri locations

[Robnl]

http://www.msdiscovery.org/forums/discu ... -pathology

more NPH

[NZer1]

I have in the past spoken by email to the Upright MRI Fonar people in Sydney Australia and explained that I had been following Damadiens studies and quoted his paper on atlas adjustments with Dr Rosa plus showed the Haacke protocol to them. They weren't aware of either and said they would look into what they could do so people could have their Upright MRI done with them. Soon after they replied and said they had found out they needed an updated program for their MRI which was not quite ready for production and distribution and that they would get back to me when it was available and due. They also said they had started to get more enquiries since my first call and wondered how that had started happening!

I actually haven't followed this up and it has been a year.

I wonder if this is similar with other Fonar Labs around the globe that the program isn't available 'yet'?


Nigel

[Robnl]

Hi Nigel,

I mailed Fonar last year and nthe marketng dude told me they were upgrading the Fonar machines worldwide with the CINE addon.

[mystery1980]

Good morning,

Dr. Flanagan I would tell you wat my complaints are but I'm sorry ( for everybody ) its a long list

Head and neck region:

- balance problems
- blurred spots ( flashes ) and diplopia to the eyes
- pressure on the skull / swelling behind left ear ( more than two years )
- stuffed lymph node on the left side at the jaw edge and in the neck
- concentration problems
- memory problems ( especially the short memory )
- headache from the neck ( especially on the left side )
- swallowing difficulty sometimes swallowed in saliva or drink / food or just very little saliva
- vertigo

Upper body:
- arms, hands and fingers ( especially on the right ) tingle and itch
- loss of strength in hands, especially grip strength
- "attacks" whats starts at the height of breast / ribs to the right as if a band is pulled tight and eventually goes right arm tingle and feel numb and often also the right leg

Lower body:
- power loss legs ( especially on the right )
- incontinence ( drops )
- distension ( according to the general practitioner PDS -> irritable intestine syndrome )
- "tingling", "itchy", "heavy", "numb spots" on the legs ( right knee feels more often "burning" )
- distance what I still can walk is approximately 5 min. before its going to hurt or the legs "bag"

General:
- very little energy / tired very quickly ( fatigue )
- no able to do two things at the same time
- "wrong" things to say / can not come on words
- unable to stand or sit in the same position for a while
- heat makes the complaints worse ( especially in the "head and neck region" )
- no more menstruation after I fall down the stairs ( before that well )
- not long above my power do something
- very low libido
- feeling on the left is different then on the right
- my vision is going backwards very quickly
- sensitive ( lower ) back
- not good against bustle, bright lights and noise be able ( to )
- cold / hot changes fast
- poor circulation
- sense of time is not right

I'm very curious if you could tell me if the most complaints are divided to Syringomyela?

@ Robnl what means the mRI in Amersfoort eventual for me?

Kind regards,

Francis

[uprightdoc]

Good morning Francis,

You have many signs and symptoms similar to MS.

The first group of symptoms are most likely due to an upper cervcial strain with cerebellar tonsillar ectopia (Chiari) caused by multiple injuries involving head and neck trauma. Many of the symptoms suggest possible intracranial pressure problems such as from the tonsillar ectopia.

The next group of symptoms in the upper body are probably due to the expanding syrinx (you don't have syringomyelia).

The lower body symptoms can be caused by the T4/5 disc/bone fragment. They can also be caused by the expanding syrinx.

The last group of symptoms is mostly related to the brain and probably due to an upper cervical strain with cerebellar tonsillar ectopia.

The cerebellar tonsillar ectopia (Chiari) is most likely making the syrinx worse and causing it to expand.

In my opinion your complaints are due to the Chiari malformation, syrinx and the herniated disc.

When did you first start to notice the symptoms?

[wallace]

I live in France and have an official diagnosis of chronic fatigue syndrome and Fibromyalgia. My Chiropractor is 80 years old and it doesnt surprise me that the old timers understand Dr Flanagans ideas!
Please ensure your new book is stocked by Amazon so us foreigners can buy it!!
I am slowly working through the last 280 pages of this thread!!

[wallace]

http://www.upcspine.com/books.htm

[mystery1980]

Hello Dr. Flanagan,

Can you please tell me what the different is with a syrinx and syringomyelia?
Because the neurosurgeon said a had syringomyelia?

I remember that even before I had the scooter accident I had very often little energy and was very quickly tired and had poor circulation ( I was in the meantime used to ).

After the car accident I had a lot more complaints and the complaints what has joined after I fell of the stairs are:

- the problems with my eyes are much worser
- pressure on the skull / swelling behind left ear
- stuffed lymph node on the left side at the jaw edge and in the neck
- swallowing difficulty sometimes swallowed in saliva or drink / food or just very little saliva
- vertigo
- arms, hands and fingers ( especially on the right ) tingle and itch ( I have noticed more then before I fell of the stairs )
- the loss of strength in hands especially grip strength ( I have noticed more then before I fell of the stairs )
- power loss legs ( especially on the right ) is much worser then before
- "tingling", "itchy", "heavy", "numb spots" on the legs ( I have noticed more then before I fell of the stairs ) and that the right knee feels more often "burning" on is a new complaint after I fell of the stairs
- distance what I still can walk is approximately 5 min. before its going to hurt or the legs "bag"
- not able to do two dings at the same time
- "wrong" things to say / can not come on words
- heat makes the complaints worse
- no more menstruation after I fell down the stairs ( before that well )
- feeling on the left is different then on the right ( I have noticed more then before I fell of the stairs )
- my vision is going backwards very quickly
- not very good against bustle, bright lights and noise be able ( to )
- cold / hot changes fast
- sense of time is not right

Because the specialists told me the complaints are psychic I was starting to believe it, but my feeling told me otherwise.
Do you believe that some of the complaints are psychic?

And you told in the beginning of your post that many symptoms are similar to MS, do you think that maby there is a connection with the back problems / syrinx / head problems?

[uprightdoc]

Hello Francis,

I apologize for the confusion. It was early in the morning and I misread what you wrote. I was referring to a meningocele. You don't have syringomyelocele or meningocele. You do have syringomyelia. Syringomyelia is the same as a syrinx. A syrinx or syringomyelia are the equivalent to hydrocephalus in the spinal cord. A syrinx is consequently sometimes referred to as hydromyelia. Myelia is the Latin term for the spinal cord. Hydrocephalus is water on the brain. Hydromyelia is water in the spinal cord. Syringomyelia is another term for hydromyelia.

You most likely have had a mild Chiari malformation and syrinx since the day you were born and probably before that. The Chiari and syrinx are signs of pressure and flow problems in the brain. The Chiari and syrinx affect your circulation. The decrease in circulation decreases your energy and makes you feel tired. The scooter and car accident made the Chiari worse. The Chiari then made the syrinx worse. Your symptoms are mostly due to the Chiari and syrinx. The herniated disc/ bone fragment is making matter worse. The disc/bone fragment are most likely due to the scooter accident. You probably landed hard on your back in a flexed position such as with your head and neck bent forward.

All of your signs and symptoms are related to the injuries to the spine that made a congenital problem worse. It would be wise to follow-up on the T4/5 disc problem and consider surgery but you also need to have a closer examination of your upper cervical spine. Correction of any potential structural strains in the upper cervical spine will allow CSF to flow better between the cranial vault and spinal canal. Better flow will help control the brain symptoms as well as drain the eye and possible improve vision before further damage is done. It will also relieve pressure on the hypothalamus and pituitary gland. Lastly, better flow between the cranial vault and spinal canal will redirect CSF away from the central canal of the cord and syrinx. Redirecting CSF flow away from the central canal will allow the syrinx to shrink in size.

[uprightdoc]

Hello Wallace,

The "old-timers" had more spunk and backbone. We should be building upon what the foundation of their work. Instead we are stuck in a morass of mediocrity, laziness and lack of interest.

I was a big fan of Henry Gillet and motion palpaiton. I started learning and using motion palpation while I was still in school.

http://dynamicchiropractic.com/mpacms/d ... p?id=44238

[wallace]

she cites Dr Flanagans work!http://www.prettyill.com/

Dr Hannah paints a rather dim view of the current Palmer College in his book on Upper Spinal care(he discovered it on his last day at College so it seems it is forgotton about there
!!!!). I see you went to Sherman. Wise Choice! I will mention Gillet to my chiro. He claims he treated all the Hollywood stars while he was at college in L.A in the 60's!

[uprightdoc]

There are many good reasons why the majority of the chiropractic profession rejected BJ Palmer and upper cervical chiropractic. One of the primary reasons is that most upper cervical chiropractors continue to maintain that all the problems in the lower spine are due to upper cervical misalignments, which is far from true. That said, specific upper cervical was BJ Palmer's greatest contribution and legacy to chiropractic and health care in general. There are other methods of treating the upper cervical spine and cranium, however, that also need further study. I no longer use upper cervical. I believe I have developed better methods of correction. In addition to counter strain-type structural correction methods, I also use blood and CSF mobilization methods as well as correction of the dural compartments, tunnels and canals etc. of the base, face and cranial vault. There are also some very good methods for working on, counter-straining and correcting the lower spine, which can cause of contribute to chronic upper cervical problems. Lastly, there are mechanical methods for moving blood and CSF in the lower spine such as the Cox 7 Flexion-distraction table I have mentioned many times as used by Robert's chiropractor. There are also other tables. They need further study for cases like Francis. The problem is most chiropractors are not adequately trained or prepared to handle a complex case like Francis. Her case should be jointly managed by a highly trained team of a neurologist, doctor of maunal medicine and neurosurgeon with a game plan and close monitoring.

[mystery1980]

Hello Dr. Flanagan,

Thank you for your detailed explanation!
I will send you tomorrow a pm with a little more information about "Chiari" and a question for you about that oke?

Also I have another question about another mRI image, why the liquor if I say it right have some weird stains in the spinal cord?



Kind regards,

Francis