Not sure what to think

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.
vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

They only did the head, not the spine. I know this could be other things but with them ruling out MS could be related. It’s just like the article you attached. I have some shoulder pain from an old injury on the left side but this is something totally different. It’s annoying and it hurts. I’m trying ice and Motrin now. I still have to go back to work. Night 3 of 4 in a row
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jimmylegs
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Re: Not sure what to think

Post by jimmylegs »

i asked re spinal because i had searched for lhermitte's in assoc w cavernoma and this came up (only a case study but interesting)

Lhermitte’s sign in cavernous angioma of the cervical spinal cord
https://jnnp.bmj.com/content/65/6/954.2

hope the ice and meds help in time for work!
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vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

Thank you for looking that up! You’re awesome. I find it very interesting. It’s like I’m my own case study. My doctor will love when I bring in all this medical literature next week....;)
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jimmylegs
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Re: Not sure what to think

Post by jimmylegs »

np :)
and yep dr internet is everyone's favourite - said no doc ever lol
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vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

See neuro today at 4. Trying to think good thoughts
vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

Well I have “spots” on my mri. He wants a mri of neck and spine now. He’s says I’m too young to have these spots for no reason. So if I have spots on the next mri it’s pretty much MS. If not they will watch me closely.
I’m trying not to cry and waiting for another mri and the results is going to do me in
Side note: the cavernoma on my mri is normal he said. Been there since birth
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jimmylegs
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Re: Not sure what to think

Post by jimmylegs »

ok deep breaths then. lots you can control in order to not be like a typical ms patient. chin up!
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vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

I know it’s jyst scary. I don’t want to end up being a burden to my husband and kids
vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

I know I’ll have to change a lot of things and I will. I’ll be a damn warrior. But I get to have a pity party for a little
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jimmylegs
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Re: Not sure what to think

Post by jimmylegs »

you won't be a burden, rock on xena ;) !!!
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vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

:)
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jimmylegs
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Re: Not sure what to think

Post by jimmylegs »

so i had my super fun c-spine mri yesterday. it wasn't as annoying as cranial on wednesday.

one of the scans had a good beat, had me mentally accompanying it with 'safety dance' lol


results soon. i'm getting my own copy of the discs for both, including the reports. last time was a hot mess lol. what i get for being lazy w self care!
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vortexmama79
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Re: Not sure what to think

Post by vortexmama79 »

Thinking good thoughts! I created a little “beat” during my last MRI too! :)
Still waiting to schedule my next MRI
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jimmylegs
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Re: Not sure what to think

Post by jimmylegs »

hope results are good!
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Zyklon
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Re: Not sure what to think

Post by Zyklon »

During my last MRI, I listened Rammstein all the time. Next time Slipknot haha

Good luck ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
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