Not sure what to think
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
They only did the head, not the spine. I know this could be other things but with them ruling out MS could be related. It’s just like the article you attached. I have some shoulder pain from an old injury on the left side but this is something totally different. It’s annoying and it hurts. I’m trying ice and Motrin now. I still have to go back to work. Night 3 of 4 in a row
Re: Not sure what to think
i asked re spinal because i had searched for lhermitte's in assoc w cavernoma and this came up (only a case study but interesting)
Lhermitte’s sign in cavernous angioma of the cervical spinal cord
https://jnnp.bmj.com/content/65/6/954.2
hope the ice and meds help in time for work!
Lhermitte’s sign in cavernous angioma of the cervical spinal cord
https://jnnp.bmj.com/content/65/6/954.2
hope the ice and meds help in time for work!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
use the report button to flag problematic post content to volunteer moderators' attention.
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
Thank you for looking that up! You’re awesome. I find it very interesting. It’s like I’m my own case study. My doctor will love when I bring in all this medical literature next week....;)
Re: Not sure what to think
np
and yep dr internet is everyone's favourite - said no doc ever lol
and yep dr internet is everyone's favourite - said no doc ever lol
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
use the report button to flag problematic post content to volunteer moderators' attention.
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
See neuro today at 4. Trying to think good thoughts
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
Well I have “spots” on my mri. He wants a mri of neck and spine now. He’s says I’m too young to have these spots for no reason. So if I have spots on the next mri it’s pretty much MS. If not they will watch me closely.
I’m trying not to cry and waiting for another mri and the results is going to do me in
Side note: the cavernoma on my mri is normal he said. Been there since birth
I’m trying not to cry and waiting for another mri and the results is going to do me in
Side note: the cavernoma on my mri is normal he said. Been there since birth
Re: Not sure what to think
ok deep breaths then. lots you can control in order to not be like a typical ms patient. chin up!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
use the report button to flag problematic post content to volunteer moderators' attention.
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
I know it’s jyst scary. I don’t want to end up being a burden to my husband and kids
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
I know I’ll have to change a lot of things and I will. I’ll be a damn warrior. But I get to have a pity party for a little
Re: Not sure what to think
you won't be a burden, rock on xena ;) !!!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
use the report button to flag problematic post content to volunteer moderators' attention.
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
so i had my super fun c-spine mri yesterday. it wasn't as annoying as cranial on wednesday.
one of the scans had a good beat, had me mentally accompanying it with 'safety dance' lol
results soon. i'm getting my own copy of the discs for both, including the reports. last time was a hot mess lol. what i get for being lazy w self care!
one of the scans had a good beat, had me mentally accompanying it with 'safety dance' lol
results soon. i'm getting my own copy of the discs for both, including the reports. last time was a hot mess lol. what i get for being lazy w self care!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
use the report button to flag problematic post content to volunteer moderators' attention.
-
- Family Member
- Posts: 28
- Joined: Fri Aug 24, 2018 9:52 pm
Re: Not sure what to think
Thinking good thoughts! I created a little “beat” during my last MRI too!
Still waiting to schedule my next MRI
Still waiting to schedule my next MRI
Re: Not sure what to think
hope results are good!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
use the report button to flag problematic post content to volunteer moderators' attention.
Re: Not sure what to think
During my last MRI, I listened Rammstein all the time. Next time Slipknot haha
Good luck ;)
Good luck ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!