Research: Exercise and Physiotherapy for MS

Using exercise and physical therapy for recovery from the effects of MS, and for maintaining physical function.
jimmylegs
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Re: Research: Exercise and Physiotherapy for MS

Post by jimmylegs »

on tuesday i got back into the pool for the first time since lockdown last december. yikes! overdid it - needed help to walk to the car afterwards :O uhthoff: 1(00!), my wiring: 0.
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jimmylegs
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watch this! science said so

Post by jimmylegs »

Virtual Reality Glasses Displaying Exercise Give Similar Effects to Those Who Can’t Move
https://www.goodnewsnetwork.org/virtual ... niversity/

ok maybe it didn't quite say *this*, but it's still fun to do a little light mountain biking :D

GoPro: Backflip Over 72ft Canyon - Kelly McGarry Red Bull Rampage 2013
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Jaded
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Re: Research: Exercise and Physiotherapy for MS

Post by Jaded »

How is the trampolining going JL?

Writing from London where we are in midst of a heatwave. 36C at 6.15pm. I am indoors with a fan on. It's due to rise to 40C tomorrow and that will be a record high.

How are all you other heatwavers getting on?

Uhthoff was discussed on the radio and it took me nearly two decades to get what that meant. I knew my inability to walk properly (or, less easily) in the heat was MS related. Didn't know that it was called Uhthoff's phenomenon - thought that was when the back of my neck feels like someone is stroking the inside of my cervical spine....!

Keep safe everyone

J
Petr75
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Re: Research: Exercise and Physiotherapy for MS

Post by Petr75 »

2022 Jul 19
Physical Therapy, Louisiana State University Health Sciences Center, Shreveport, LA, USA
Blood flow restriction training for an individual with relapsing-remitting multiple sclerosis: a case report
https://pubmed.ncbi.nlm.nih.gov/35854431/

Abstract

Background and purpose: Individuals with Multiple Sclerosis (MS) often present with weakness, poor balance, and increased fatigue that affects physical function. Blood flow restriction training (BFRt) is a popular treatment method to improve strength in orthopedic patients. However, research is limited on the use of BFRt for individuals with MS. This case report describes the effects of BFRt for an individual with relapsing-remitting MS (RRMS).

Case description: A 30-year-old female with RRMS presented to physical therapy (PT) with weakness and balance difficulty. Initial PT interventions were ineffective at improving balance and strength to achieve specific functional standing and balance goals. BFRt was introduced at reevaluation and performed 2×/week for 8 weeks. Activities-specific Balance Confidence Scale, Modified Fatigue Impact Scale, Berg Balance, strength, and 10-meter walk were assessed at 4 and 8 weeks.

Outcomes: Measures of strength and balance improved with the addition of BFRt and no adverse events occurred. The addition of BFRt resulted in a meaningful improvement in the individual's ability to achieve her standing and balance goals.

Discussion: This case report describes the successful application of BFRt to improve function in an individual with RRMS. Further research is warranted for the use of BFRt for individuals with MS.
-------------------------------------

https://www.eboro.cz/book-of-ms-2/
jimmylegs
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Re: Research: Exercise and Physiotherapy for MS

Post by jimmylegs »

Jaded! sorry it's taken me almost a week to spot your post.
bouncing is going so-so. i need to work on consistent use, multiple short session per day. i'm also going to keep working on the 'balance on one foot for at least 10 seconds' objective.
yeah that uhthoff thing shouldn't be as under the radar as i think it generally tends to be. in early days, esp when b12 deficient, i was far more attuned to lhermitte's (i confess to actually having to look that one up today!?!) and knew more about uhthoff as lived xp, than by name.
i hope you're making it through the heat ok at this stage. the online forecast looks reasonable, at least.
if it's any use in future, one of my dad's useful tips for life without A/C was: use a wrung out bath towel as a light blanket, add the fan, and let evaporation do the rest. when needed, that trick really really helped me get to sleep at night!
it was pretty warm yesterday, and i had a pretty bad day mobility wise. better today, but by no means perfect. time for me to do some rebounding, before another day slips away!

Petr: that article definitely looks like it'll be worth a closer look! nice find.
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Jaded
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Re: Research: Exercise and Physiotherapy for MS

Post by Jaded »

Thanks for the tip JL. It's cooler today but seems there may be a heatwave coming from Europe

I accept it's partly ageing but I just don't go out when it's hot.

Yes, also thanks for that Petr. Might see if it works for SP :S

J
jimmylegs
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Re: Research: Exercise and Physiotherapy for MS

Post by jimmylegs »

hope it's not too hot this coming week!
i'm pleased to relay that i went looking for an ms-specific physiotherapist in my area, and it's actually en route to my local pool. first appointment tomorrow. :O
i'd be taking a copy of that cool internuclear ophthalmoplegia rehab protocol i used in the past few years, if my printer would behave. which it won't!
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