Tovaxin Users - Where are You?

[IHaveMS-com]

Hi Lars,

Sensationalism sells news papers and also gets people's attention. I guess I read your post quickly and should have used both sentences.

We are all well into this phase and I wonder if the lack of a major "Tim" story has everyone wondering and retreating until some bombshell news is posted. I still think Tims advice is accurate, we shouldn't expect a miracle.

Suggested reading -- my first post in the thread "results will vary"
http://www.thisisms.com/ftopic-4133-0.html Everyone's assignment is to go back and read or reread that post.

[MaggieMae]

Thank you all for responding and for the information.

I have read about Rituximab and also Revimmune, which I feel is a promising trial. Even though my husband's neurologist is the head of the MS center in our area, he is never very open to clinical trials. He always brings up that my husband would have to take the chance of being on a placebo or that the long term side effects aren't known. I started researching the internet (regarding MS) about two years ago. I've learned a lot since then. As a matter of fact, he was never very open to Tysabri. I'll have to find out what changed his mind when we have our appt later this month. I don't feel that comfortable with Tysabri, and I'm hoping that my husband won't be denied Tovaxin (if he is already on Tysabri).

I think you should all feel empowered because you took the chance with Tovaxin.