Anybody else on Firategrast?
Yesterday I had another medical, 1 month after stooping taking the tablets.
Over the last 4 weeks I´ve felt that things have been going backwards, but at the same I had flu like symproms for about 2 weeks. I feel as if the coordination in my leaft foot and leg has regressed to near what it was at the start of the trial. My specialist however measured the strength in the leg a foot and said that they are near normal and suspects that any worsening that I have felt could have been caused by the flu.
I suppose the positive is that if I have gone backwards since coming of the treatment then that could imply that it was having a positive effect.
On the negative side I was told that GSK are pulling out of New Zealand so we don´t know how that will afftect my chances of joining an extended trial if that was to go ahead.
Over the last 4 weeks I´ve felt that things have been going backwards, but at the same I had flu like symproms for about 2 weeks. I feel as if the coordination in my leaft foot and leg has regressed to near what it was at the start of the trial. My specialist however measured the strength in the leg a foot and said that they are near normal and suspects that any worsening that I have felt could have been caused by the flu.
I suppose the positive is that if I have gone backwards since coming of the treatment then that could imply that it was having a positive effect.
On the negative side I was told that GSK are pulling out of New Zealand so we don´t know how that will afftect my chances of joining an extended trial if that was to go ahead.
Bob, nothing was written down or explicitly stated but it was hinted that if this trial shows promise then the trialists would be well placed to participate in extended, or longer duration trials.
My neurologist is not too happy about what is happening, apparently its not just NZ that they are withdrawing from. They are however comitted to the existing trials and he is exploring whether further trials could be conducted from Australia. The blood and urine samples are sent there now so it shouldn´t be a problem.
My neurologist is not too happy about what is happening, apparently its not just NZ that they are withdrawing from. They are however comitted to the existing trials and he is exploring whether further trials could be conducted from Australia. The blood and urine samples are sent there now so it shouldn´t be a problem.
They already check the blood and urine samples over there so I would hope that they would just send over the neurologist´s report and scans and run the administration from Oz, and send the medication back over here.
I can´t see that there should be a problem but I suppose politics and lawyers would probably find a way to scupper common sense.
I can´t see that there should be a problem but I suppose politics and lawyers would probably find a way to scupper common sense.
Firategrast in Sweden
Hi people, hope you have'nt stopped discussing in this forum... Just found it on the internet.
I'm living in in Stockholm, Sweden. I got my MS-diagnosis in november 2007 after have experienced some symptoms since 2001... I was immediately put on the on-going trial of Firategerast in Sweden. This is my first MS-treatment.
I'm living in in Stockholm, Sweden. I got my MS-diagnosis in november 2007 after have experienced some symptoms since 2001... I was immediately put on the on-going trial of Firategerast in Sweden. This is my first MS-treatment.
Hi Frutten
Frstly welcome and thanks for having the courage to join one of the many trials.
How are you finding the treatment? I stopped with the tablets around Nov 07 and I have just been having the follow up monthly medicals.
I had no relapses or worsening of the condition since starting the trial and my neurologist is of the opinion that I´m in better shape since we started. Thats not to say I don´t have any symptoms but I do feel stonger and more confident.
I don´t have another check up now for 3 months. I´ll be very interested to hear how you get on as people I have spoken are generally upbeat about this treatment.
Good luck and fingers crossed that this might be some genuine light at the end of the tunnel.
Frstly welcome and thanks for having the courage to join one of the many trials.
How are you finding the treatment? I stopped with the tablets around Nov 07 and I have just been having the follow up monthly medicals.
I had no relapses or worsening of the condition since starting the trial and my neurologist is of the opinion that I´m in better shape since we started. Thats not to say I don´t have any symptoms but I do feel stonger and more confident.
I don´t have another check up now for 3 months. I´ll be very interested to hear how you get on as people I have spoken are generally upbeat about this treatment.
Good luck and fingers crossed that this might be some genuine light at the end of the tunnel.
- RuSmolikova
- Family Elder
- Posts: 163
- Joined: Thu Nov 01, 2007 3:00 pm
- Location: Prague
Hi ElJacko,
happy to hear some news!
I´ve got the same experience as you do. I had no relapses or worsening since I have started the trial (september 2007). Soon will be at the end of the treatment (second lumbar puncture next week). My neuro cannot believe it but says that she has never faced any improvement of MS patients, but me. Small, but one!
happy to hear some news!
I´ve got the same experience as you do. I had no relapses or worsening since I have started the trial (september 2007). Soon will be at the end of the treatment (second lumbar puncture next week). My neuro cannot believe it but says that she has never faced any improvement of MS patients, but me. Small, but one!
- RuSmolikova
- Family Elder
- Posts: 163
- Joined: Thu Nov 01, 2007 3:00 pm
- Location: Prague
Frutten. Är intresserad av hur din medicinering med detta läkemedel går. Hade varit mycket snällt om du kan maila mig. Min sambo har MS och är just nu på Tysabri behandling.
Mvh Sami
samiban@hotmail.com
Mvh Sami
samiban@hotmail.com
- RuSmolikova
- Family Elder
- Posts: 163
- Joined: Thu Nov 01, 2007 3:00 pm
- Location: Prague
I had the final medical on Friday. I was assessed as been very much the same as when the treatment stopped a year ago. I still have the same problems as when the trial started but not as bad and if I take things easy I don't feel like there are any problems at all.
The doctor is hopeful that they will go on to an extended trial but I imagine that we'll have to wait for all the resuilts to come in first.
Good luck to all those still participating and I hope that we may be onto something here.
The doctor is hopeful that they will go on to an extended trial but I imagine that we'll have to wait for all the resuilts to come in first.
Good luck to all those still participating and I hope that we may be onto something here.