My MS Mis-Diagnosis please read!!!

pegs · Post by **pegs** » Tue Mar 25, 2008 3:31 pm

I will get tested for Lyme disease....it makes sense to me because all my symptoms of MS started again when I stopped taking antibiotics(for acne) and I have pulled to many ticks from my body to remember how many!

andrewjf · Post by **andrewjf** » Tue Mar 25, 2008 4:15 pm

Hi Pegs!!!

You've pulled so many ticks from yourself that you cannot remember! That's scary!!! I was only bitten by one!!!

If you need any help or information please let me know! I will reply quicker if you email me!

andrewfacchin@hotmail.com

Thank you for reading my story and posting!

Andy

Grumpster · Post by **Grumpster** » Wed Mar 26, 2008 3:46 pm

Hey there, what was the CA lab? I have been negative for Lyme 2x, but that does not mean much eh? It may be worth another test.
Plenty of ticks in my life....some even are the actual insects
G

andrewjf · Post by **andrewjf** » Wed Mar 26, 2008 8:30 pm

Hi Grumpster,

The lab is called IGenex.

www.IGenex.com

1-800-832-3200

You can call that number and ask for Dr. Harris, you will have to leave him a message but he will get back to you!

It is true that those 2 Lyme tests you have had could be False Negatives. Your right it may be worth another test. However the test is not cheap it cost me about $380 Canadian! It was well worth it though! Especially if you know you have been bitten by ticks!

If you have anymore questions you can post here or email me,

andrewfacchin@hotmail.com

Thanks for reading my story, hope you are well.

Andy

Chris55 · Post by **Chris55** » Thu Mar 27, 2008 10:05 am

Pegs--and others--as of now, there is NO DEFINITIVE test for LD! IgeneX comes about as close as it gets. But just keep in mind, if you test neg or pos that's no guarantee it is accurate. I started researching LD when my daughter first started having problems. If you go to the testing protocal as stated by the FDA for LD, the criteria ix EXACTLY the same as for MS!

My daughter had so many non-MS symptoms that I was convinced she had LD. She ended up taking a natural treatment for strep bacteria infection and has been MS-free ever since.

The antibitoic LD treatment is highly controversial. There is apparently a wonderful treatment by a Chinese doctor. Users say it works as well as the antibiotics.

The best place to contact is your local LD chapter. They can refer you to Lyme literate docs and provide you with all kinds of really helpful info.

Good luck to you ALL! Chris

MattB · Post by **MattB** » Fri Mar 28, 2008 9:27 am

I've been tested for Lyme 3-4 times(all negs) and I think they did two different tests. I've been bitten by a few ticks and I wonder if the test would be available in my area to do. I don't think I could travel to Canada for a test either.

ssmme · Post by **ssmme** » Fri Mar 28, 2008 10:19 am

My neuro ruled out LD when my lesions were both brain and spinal cord. He told me LD only causes brain lesions. Has anyone else heard this? I really hate to get my hopes up that my MS diagnosis could be wrong.

Marcia

Sharon · Post by **Sharon** » Fri Mar 28, 2008 10:22 am

Chris -
You said in your post:

"My daughter had so many non-MS symptoms that I was convinced she had LD. She ended up taking a natural treatment for strep bacteria infection and has been MS-free ever since."

I would be interested in what the natural treatment for the strep bacteria infection was. I suffered with strep throat for many years (haven't had it recently), but my daughters who are in their late thirties get it at least once a year sometimes twice. And, of course anytime they are sick or stressed I say silent prayers to keep the MS away from them. Since the strep seems to "run in the family", I have had a major concern that it might be, or have been in my case, the MS trigger.

You may have posted the treatment on the site before, but I could not find.

Thanks,
Sharon

andrewjf · Post by **andrewjf** » Fri Mar 28, 2008 10:28 am

Hi MattB,

You can get tested from where ever you live. They send you the package through the mail, you get your blood taken at a clinic and then send it back.

Marcia, I am sorry I am not aware of lesions on both brain and spinal cord with Lyme Disease. It may be possible I just don't know.

Thanks everyone,

Andy

HUTTO · Post by **HUTTO** » Fri Mar 28, 2008 12:04 pm

Marcia,

After researching this it does cause brain lesions. With it being the cns. I would assume that regardless if it states it or not i would bet that if it can do it in the brain it can do it in the spinal cord. Its all the cns. This is a disease where they don't know much about. It can cause an array of similiar symptoms in other diseases..Gues what. Its more prevelant in the north. Anyway..Google lyme disease in canada. It will bring up a site called canlyme i believe. Click on symptoms. Look at all the symptoms they have associated with lyme..Kinda Scary..

HUTTO · Post by **HUTTO** » Fri Mar 28, 2008 12:22 pm

here ya go marcia.

There are multipel lesions in the spinal cord. This is another typical feature of MS .
By the way did you notice the lesion in the brainstem?
A spinal cord lesion together with a lesion in the cerebellum or brainstem is very suggestive of MS.
Spinal cord lesions are uncommon in most other CNS diseases, with exception of ADEM, Sarcoid, Lyme and SLE.

if i am reading this right it is stating that lesions in the spinal cord can happen with lyme. Or have i been up too long and it doesn't state that.

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Lyon · Post by **Lyon** » Fri Mar 28, 2008 12:32 pm

HUTTO · Post by **HUTTO** » Fri Mar 28, 2008 12:49 pm

no lyon..it was a very informative site..it had mri brain and spinal..i couldn't link the site..here is what i could find www.radiologyassistant.nl

i typed in "lyme disease and spinal cord lesions" and clicked images. finally found this site...i hope this helps...let me know what you think. i don't intrepret everything as good as you..

Lyon · Post by **Lyon** » Fri Mar 28, 2008 12:58 pm

Lyon · Post by **Lyon** » Fri Mar 28, 2008 1:17 pm