Is this just a misunderstanding between my GP/Neuro?
I was put on the steroids due to being in a relapse when my neurologist "found me" during my diagnosis process, and did the LP the same day my steroids began, and the following day I had the migraine... so I was actually going through the steroids for the first time ever for the relapse.
Dx RRMS March 5, 2008.
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nenu did the steroids make you have mood swings? They were so bad on me i was mean even to little Dalton (my son) He would say "i'm not sitting beside you cause your mean" this was the worst part of having to take the steroids. Even the extra weight they put on didn't bother me as much as the bad mood it put me in.
Jimmy, to continue the discussion here...
I had burning mouth develop last summer/fall just after my first bout of intense vertigo (lasting 3 weeks). I had began my TMJ treatment wearing mouth splints I think 2 weeks before the burning mouth began. Now mind you, the vertigo sent me into a complete fit of stress, because the hospital was completely useless in understanding what was causing it at the time, and it was vertical vertigo (things bouncing before my eyes).
But yeah, I ended up getting this burning mouth, that as the stress increased, so did the intensity of the burning mouth. It got to a point where it was so bad, it was difficult to sleep, and my mouth was in constant pain. I had to avoid certain foods as a result (strawberries made it burn worse, really spicy stuff made it extremely painful). I eventually stopped wearing the TMJ devices, because it hurt to wear them, especially the one on the top of my mouth.
After my steroids, it seemed to calm down, but so did my stress level because I had my diagnosis. Now it's slowly coming back a little. It's no where near what it was before, but it also has not completely gone away.
I had burning mouth develop last summer/fall just after my first bout of intense vertigo (lasting 3 weeks). I had began my TMJ treatment wearing mouth splints I think 2 weeks before the burning mouth began. Now mind you, the vertigo sent me into a complete fit of stress, because the hospital was completely useless in understanding what was causing it at the time, and it was vertical vertigo (things bouncing before my eyes).
But yeah, I ended up getting this burning mouth, that as the stress increased, so did the intensity of the burning mouth. It got to a point where it was so bad, it was difficult to sleep, and my mouth was in constant pain. I had to avoid certain foods as a result (strawberries made it burn worse, really spicy stuff made it extremely painful). I eventually stopped wearing the TMJ devices, because it hurt to wear them, especially the one on the top of my mouth.
After my steroids, it seemed to calm down, but so did my stress level because I had my diagnosis. Now it's slowly coming back a little. It's no where near what it was before, but it also has not completely gone away.
Dx RRMS March 5, 2008.
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nenu i have to check if there's ALA in your compound, i forget.
Burning Mouth Syndrome
* Double blind controlled study
* Alpha lipoic acid for 2 months
* Significant symptomatic improvement
* Improvement maintained at 1 year in over 70%
* Famiano J Oral Pathol Med May, 2002
i went looking for vertigo too, with "deficiency" and so far i'm seeing hints of b vitamins, b12, iron and magnesium
http://neurology.org/cgi/content/abstract/45/8/1608
NEUROLOGY 1995;45:1608-1610
© 1995 American Academy of Neurology
`Anesthesia paresthetica'
Nitrous oxide-induced cobalamin deficiency
A man with a subclinical cobalamin deficiency developed syncope, vertigo, paresthesias, and ataxia after two exposures to nitrous oxide anesthesia... Clinicians should consider this entity when confronted with patients with neuropathic symptoms after surgical or dental procedures.
http://www.mayoclinic.com/health/magnes ... cy/AN01191
Magnesium deficiency (hypomagnesemia) may cause involuntary shaking (tremors) of the tongue, arms and legs. Other signs and symptoms of magnesium deficiency include:
* Sudden, involuntary muscle twitches or jerks (myoclonus)
* Muscle weakness
* Sudden sensations of spinning (vertigo)
* Fatigue
* Abnormal heart rhythms (arrhythmia)
so hopefully your more recent regimen will help keep this stuff at bay in future!
Burning Mouth Syndrome
* Double blind controlled study
* Alpha lipoic acid for 2 months
* Significant symptomatic improvement
* Improvement maintained at 1 year in over 70%
* Famiano J Oral Pathol Med May, 2002
i went looking for vertigo too, with "deficiency" and so far i'm seeing hints of b vitamins, b12, iron and magnesium
http://neurology.org/cgi/content/abstract/45/8/1608
NEUROLOGY 1995;45:1608-1610
© 1995 American Academy of Neurology
`Anesthesia paresthetica'
Nitrous oxide-induced cobalamin deficiency
A man with a subclinical cobalamin deficiency developed syncope, vertigo, paresthesias, and ataxia after two exposures to nitrous oxide anesthesia... Clinicians should consider this entity when confronted with patients with neuropathic symptoms after surgical or dental procedures.
http://www.mayoclinic.com/health/magnes ... cy/AN01191
Magnesium deficiency (hypomagnesemia) may cause involuntary shaking (tremors) of the tongue, arms and legs. Other signs and symptoms of magnesium deficiency include:
* Sudden, involuntary muscle twitches or jerks (myoclonus)
* Muscle weakness
* Sudden sensations of spinning (vertigo)
* Fatigue
* Abnormal heart rhythms (arrhythmia)
so hopefully your more recent regimen will help keep this stuff at bay in future!
hey nenu i went back and checked your compound dealie. no ALA, so maybe that could help with the mouth issues??
i don't take it, probably should but i'm just not read up on it yet. here's what it does for BMS - but i still don't know exactly what it does, or how it does it!
Burning mouth syndrome (BMS): controlled open trial of the efficacy of alpha-lipoic acid (thioctic acid) on symptomatology.
...The Test group were given ALA (thioctic acid; Tiobec) for 30 days, as 600 mg per day orally for 20 days followed by 200 mg per day for 10 days. The Control group were given cellulose starch 100 mg per day as placebo for 30 days. All BMS patients were reviewed at 10-day intervals and scored for changes in symptomatology. RESULTS: Significant improvements were shown in the symptomatology of BMS in up to two-thirds of patients with BMS receiving alpha-lipoic acid, in about 15% of those using placebo and also in up to two-thirds of those who, having tried placebo, were switched to ALA.
i don't take it, probably should but i'm just not read up on it yet. here's what it does for BMS - but i still don't know exactly what it does, or how it does it!
Burning mouth syndrome (BMS): controlled open trial of the efficacy of alpha-lipoic acid (thioctic acid) on symptomatology.
...The Test group were given ALA (thioctic acid; Tiobec) for 30 days, as 600 mg per day orally for 20 days followed by 200 mg per day for 10 days. The Control group were given cellulose starch 100 mg per day as placebo for 30 days. All BMS patients were reviewed at 10-day intervals and scored for changes in symptomatology. RESULTS: Significant improvements were shown in the symptomatology of BMS in up to two-thirds of patients with BMS receiving alpha-lipoic acid, in about 15% of those using placebo and also in up to two-thirds of those who, having tried placebo, were switched to ALA.
I really don't know what it is. It happens mostly on the right side (is there daily) and can sometimes occur on the left (very mild compared with the right side). I also have the burning pain in my neck on the right occasionally in addition to this.AllyB wrote:Nenu
Don't mean to butt in here - but is your burning mouth and pain in the cheek not perhaps trigeminal neuralgia? This can be a part of ms...If so, meds for rneuropathic pain may help (neurontin, lyrica etc).
Just a thought.
All the best
Dx RRMS March 5, 2008.
i think nutritionist. as far as i can tell it's an antioxidant manufactured in your own body??
easy to mix up ALA alpha lipoic acid with ALA alpha linoleic acid which as u know is the omega fatty acid deal.
"food sources" of ALipoicA include "spinach, broccoli, beef, yeast (particularly Brewer's yeast), and certain organ meats (such as the kidney and heart)"
(coincidentally, in combo a pretty good set of magnesium and zinc sources!)
"Studies that have been successful in improving nerve function in diabetics have used 600 mg of alpha-lipoic acid per day in divided doses."
more interesting info
Sources of alpha-lipoic acid
Alpha-lipoic acid can be synthesized by plants and animals. The biosynthetic pathway for alpha-lipoic acid is not known, but it appears to be synthesized in the mitochondria from an 8-carbon fatty acid and elemental sulfur. Most alpha-lipoic acid in food is derived from lipoamide-containing enzymes and is bound to the amino acid, lysine (lipoyllysine). Animal tissues that are rich in lipoyllysine include kidney, heart, and liver, while plant sources that are rich in lipoyllysine include spinach, broccoli, and tomatoes. Somewhat lower amounts of lipoyllysine have been measured in peas, brussel sprouts, and rice bran. Lipoic acid can be found in many common foods such as potatoes, carrots, broccoli, yeasts, beets, yams, and red meat. Dietary sources of ALA include flaxseeds, flaxseed oil, canola (rapeseed) oil, soybeans and soybean oil, pumpkin seeds and pumpkin seed oil, purslane, perilla seed oil, walnuts and walnut oil. The best food sources of lipoic acid are believed to be those foods rich in mitochondria - red meat (skeletal muscle, heart, liver, kidney). Other sources are yeast, spinach, and broccoli.
an interesting search listing foods high in lysine, magnesium, and zinc:
http://www.nutritiondata.com/foods-0000 ... 00000.html
easy to mix up ALA alpha lipoic acid with ALA alpha linoleic acid which as u know is the omega fatty acid deal.
"food sources" of ALipoicA include "spinach, broccoli, beef, yeast (particularly Brewer's yeast), and certain organ meats (such as the kidney and heart)"
(coincidentally, in combo a pretty good set of magnesium and zinc sources!)
"Studies that have been successful in improving nerve function in diabetics have used 600 mg of alpha-lipoic acid per day in divided doses."
more interesting info
Sources of alpha-lipoic acid
Alpha-lipoic acid can be synthesized by plants and animals. The biosynthetic pathway for alpha-lipoic acid is not known, but it appears to be synthesized in the mitochondria from an 8-carbon fatty acid and elemental sulfur. Most alpha-lipoic acid in food is derived from lipoamide-containing enzymes and is bound to the amino acid, lysine (lipoyllysine). Animal tissues that are rich in lipoyllysine include kidney, heart, and liver, while plant sources that are rich in lipoyllysine include spinach, broccoli, and tomatoes. Somewhat lower amounts of lipoyllysine have been measured in peas, brussel sprouts, and rice bran. Lipoic acid can be found in many common foods such as potatoes, carrots, broccoli, yeasts, beets, yams, and red meat. Dietary sources of ALA include flaxseeds, flaxseed oil, canola (rapeseed) oil, soybeans and soybean oil, pumpkin seeds and pumpkin seed oil, purslane, perilla seed oil, walnuts and walnut oil. The best food sources of lipoic acid are believed to be those foods rich in mitochondria - red meat (skeletal muscle, heart, liver, kidney). Other sources are yeast, spinach, and broccoli.
an interesting search listing foods high in lysine, magnesium, and zinc:
http://www.nutritiondata.com/foods-0000 ... 00000.html
Hey Nenu
Try this link and see if the symptoms sound familiar - note the distribution of the branches of the 5th cranial nerve include gums, cheek, jaw etc.
http://www.ninds.nih.gov/disorders/trig ... ralgia.htm
Try this link and see if the symptoms sound familiar - note the distribution of the branches of the 5th cranial nerve include gums, cheek, jaw etc.
http://www.ninds.nih.gov/disorders/trig ... ralgia.htm
Al