Hello all!
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flautenmusik
- Family Member
- Posts: 49
- Joined: Wed Feb 04, 2009 3:00 pm
- Contact:
Hello all!
I have been visiting this site for a few months, so I thought I should join and introduce myself! I am recently diagnosed as of December, from some ON and facial numbness. Started Rebif, but am really interested in the drugs that are being developed and researched. You will find me to be very optimistic and willing to fight for all it takes.
Hi All
I am new to this forum as well. Native to So Cal and the only one in my family that I know of with MS.
I was dx in May 08 after a surprise flare in April. My neuro said I have had MS for a few yrs, I can trace the sx back 10 yrs. I thought it was from my age and weight, I surely wish it was that instead of MS. SIGH...
I think what brought this flare on was being in 101 temp with 25mph gusts of wind on a day we were set up for an outdoor market. With the winds blowing all my product and the canopy over, we tore it all down and had to set up for a 3rd time indoors. I had weak knees that evening and became numb all over with bad balance issues. I couldn't wear shoes or walk because of the "bubbles" on the soles of my feet. Fatigue and insomnia along with numb left arm and hand(bad for a lefty) Using my left hand at times made it feel as if it was in boiling oil.
My GP thought it was a stroke (not sure what's better) and I had the usual blood, xrays and MRI to rule that out. That's when he saw the lesions on my brain and spine.
I started Avonex in July 08 after the steroid treatments. My sx have decreased quite a bit but, I do have days when I just want to hide.
I'm glad I found you, I have seen other forums for MS and try to gather as much info and support as possible. My dad and one sis treat me with kid gloves, my hubby has been supportive and the other sis keeps me going, she is ruthless, lol. All in all this has brought my family closer together which is the one good part of this disease.
That's my story and I'm sticking to it!!!
I was dx in May 08 after a surprise flare in April. My neuro said I have had MS for a few yrs, I can trace the sx back 10 yrs. I thought it was from my age and weight, I surely wish it was that instead of MS. SIGH...
I think what brought this flare on was being in 101 temp with 25mph gusts of wind on a day we were set up for an outdoor market. With the winds blowing all my product and the canopy over, we tore it all down and had to set up for a 3rd time indoors. I had weak knees that evening and became numb all over with bad balance issues. I couldn't wear shoes or walk because of the "bubbles" on the soles of my feet. Fatigue and insomnia along with numb left arm and hand(bad for a lefty) Using my left hand at times made it feel as if it was in boiling oil.
My GP thought it was a stroke (not sure what's better) and I had the usual blood, xrays and MRI to rule that out. That's when he saw the lesions on my brain and spine.
I started Avonex in July 08 after the steroid treatments. My sx have decreased quite a bit but, I do have days when I just want to hide.
I'm glad I found you, I have seen other forums for MS and try to gather as much info and support as possible. My dad and one sis treat me with kid gloves, my hubby has been supportive and the other sis keeps me going, she is ruthless, lol. All in all this has brought my family closer together which is the one good part of this disease.
That's my story and I'm sticking to it!!!
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lyndacarol
- Family Elder
- Posts: 3394
- Joined: Thu Dec 22, 2005 3:00 pm
- Contact:
Welcome to Weena and flautenmusik
Welcome, Weena and flautenmusik.
As the site's believer that excess insulin is at the root of MS, I think diet is more likely to trigger a flare-up than weather conditions, wind, or over-exertion. But then, you will find that many of us here have our own particular suspicions. Generally, we are allowed to have those opinions without attack by others.
Feel free to join in and share your ideas and ask questions. We might even learn from each other!
As the site's believer that excess insulin is at the root of MS, I think diet is more likely to trigger a flare-up than weather conditions, wind, or over-exertion. But then, you will find that many of us here have our own particular suspicions. Generally, we are allowed to have those opinions without attack by others.
Feel free to join in and share your ideas and ask questions. We might even learn from each other!