Question????

Bubba · Post by **Bubba** » Wed Mar 04, 2009 9:44 am

After doing ALOT of reading, it seems to me that I am changing my mind on what drugs to start on. I figured I would get a few opinions from ya'll. Now when the doctor was giving me a choice, I dont remember LDN being one of them. However, I have (I think) narrowed my choices down to two from copaxone, and they are:
1. LDN & Lipitor (statins)
2. Avonex
3. Rebif

I know what your thinkin and your right. With the LND combo I wont have to take injections....

robbie · Post by **robbie** » Wed Mar 04, 2009 10:26 am

tried ldn for8 months bubba did nothing for me, maybe the combination will work for you.

chrishasms · Post by **chrishasms** » Wed Mar 04, 2009 10:35 am

I use LDN and Copaxone because it's the only disease modifying drug that won't cancel out the LDN.

I tried Avonex and I felt like I was thrown down a flight of stairs 2 days a week.

CureOrBust · Post by **CureOrBust** » Wed Mar 04, 2009 4:23 pm

Bubba wrote:Now when the doctor was giving me a choice, I dont remember LDN being one of them.

Neither are "approved" MS treatments, I am surprised that your neuro even offered Lipitor?

Bubba wrote:I know what your thinkin and your right. With the LND combo I wont have to take injections....

No, not at all. Different strokes for different folks. Rebif failed for me, LDN didn't seem to help, Statins worked. It was trial and error. For others, LDN is their saving grace, or injections work 100% for them. I think the combination is acceptable as LDN is not thought to work in opposition to Copaxone. While, for example, Statins have been tested and found to interfere with interferon.

But understand, only the injections have been through the formal phase III and FDA processes.

chrishasms · Post by **chrishasms** » Thu Mar 05, 2009 8:38 am

I did HiCy but when I popped off the lesion, the one that healed, I told Dr. Kerr the best luck I ever had with disease modifying drugs was a combo with the Copaxone and LDN. He said 'sure we can throw some LDN in there with the Copaxone as well' and since December I have taken LDN too.

Someday I am supposed to be able to stop them all but it may not be for another 6 months to a year or longer who knows. The real hope is I don't fire off anymore lesions for the next 6-12 months or I too may end up re-dosing.

Bubba · Post by **Bubba** » Thu Mar 05, 2009 5:55 pm

Well, I believe I am going to try the Rebif. Anything I need to know?
It seems that the Rebif people had the best luck overall. The other is that its only three days a week. Should I ask for something to go with it?

DIM · Post by **DIM** » Thu Mar 05, 2009 11:46 pm

Bubba wrote:Well, I believe I am going to try the Rebif. Anything I need to know?
It seems that the Rebif people had the best luck overall. The other is that its only three days a week. Should I ask for something to go with it?

What makes you believe Rebif people has the best luck, copaxone has less side effects and works with other medications.
And why not Tysabri, LDN etc. have a look here:
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ursula · Post by **ursula** » Fri Mar 06, 2009 5:45 am

all the DMDs have the same efficacy, but the Interferons have very often more side effects than Copaxone.
That´s also my experience.
Rebif was crap.

chrishasms · Post by **chrishasms** » Fri Mar 06, 2009 7:44 am

Do Copaxone. It's easy and it's effective. All the other drugs suppress the immune system and God only knows what that may do long term.

Plus if you are that low on the EDSS, it would stand to reason you are early in the disease. If that is the case and the folks after chemo are using Copaxone to retrain the immune system to not reactivate, the odds are on your side.

I agree with the shot and wussy thing to lol. Daily is an inconvenience but Rebif or Avonex side effects are way more so.

LR1234 · Post by **LR1234** » Fri Mar 06, 2009 7:50 am

Someone posted a trial which showed that copaxone was just as effective when shots are given every other day. Hopefully the Dr's will start recommending this (although I am sure the drug company will disagree!)

chrishasms · Post by **chrishasms** » Fri Mar 06, 2009 9:20 am

Well if you are on disability or low income Teva has a program where they will give you the drug for free. They have made enough of of it. I'm on it. However, every other day would be nice for duration.

Bubba · Post by **Bubba** » Fri Mar 06, 2009 5:40 pm

[quote="Petakitty
huh?? Rebif people do the best? That's news to me and I been battling this beast for 15 years. By the way I am on copaxone and I am 1 on the EDSS and been on cop for over 11 years. There are no side effects with cop, no flu like symptoms and yes it does not interact with any other medications.

.[/quote]

Thats the reaction I was needing! Thank You. I am very "green" and this is greek to me. I have been trying to study this on my own and I am not confident in my decisions. I wasn't saying that rebif peeps do better, thats just the things I had read. I have a script for copax so I will go with that. The needle thing doesnt bother me. Thank You for everyones input.

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