Received another opinion, and off to NIH tomorrow

whyRwehere · Post by **whyRwehere** » Wed Aug 19, 2009 4:29 am

Thanks for checking in before you go, and I look forward to the NIH opinion. Good Luck.

CureOrBust · Post by **CureOrBust** » Wed Aug 19, 2009 4:35 am

prof8 wrote:Did you get a sense of why the radiologist in NY would not recommend stents be placed that high up in the jugulars?

I do not know if it is related, however, in the preliminary results paper from Zamboni (http://www.fondazionehilarescere.org/pdf/CX.PDF) there is the following section:

Zamboni wrote:However, no attempt at a stenting procedure was made in the absence of a dedicated device capable of preventing migration. This device would fit the particular morphology of the intemal jugular vein, similar to a upside down milk bottle, and, finally avoid protrusion into the brachiocephalic trunk.

mrhodes40 · Post by **mrhodes40** » Wed Aug 19, 2009 6:08 am

The brachiocephalic is at the bottom end of the jugular vein, not high, so that is probably not the reason considering it had something to do with the "high" location.

zap · Post by **zap** » Thu Aug 27, 2009 3:07 pm

Bump

Loobie · Post by **Loobie** » Thu Aug 27, 2009 4:18 pm

Best of luck Marc!!

zap · Post by **zap** » Sun Nov 08, 2009 4:44 pm

Hope it's not rude to bump again, but I'd REALLY like to hear what the NIH has to say about all this, as my Dec 7th scan with Dr Dake comes closer ...

cheerleader · Post by **cheerleader** » Sun Nov 08, 2009 5:18 pm

zap wrote:Hope it's not rude to bump again, but I'd REALLY like to hear what the NIH has to say about all this, as my Dec 7th scan with Dr Dake comes closer ...

Hey Zap..it's not rude, we're all curious. Marc's just had his second cataract surgery, after another trip down to NIH, and is taking some time away from the computer to heal. Read his blog:
http://www.wheelchairkamikaze.com/
As always, he is an articulate and thoughtful man- I hope we get the report from him in the near future.
cheer