Canadian Documentary ????!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Mutley
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Post by Mutley »

Thanks LR
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
LR1234
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Post by LR1234 »

Wow!! Great documentary:) Joan...looking good:) Nice to see Jeff in his studio and playing trumpet:)

Thanks again for getting this news out there to the masses.....I hope this news spread across the world!! I am so looking forward to going to Poland next month!


L
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CureIous
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Post by CureIous »

Oh Joan, you and Jeff and son looked great what a wonderful interview! Man there sure are a bunch of videos up there now whoo hoo! Can't wait to copy it to send to others. I thought Dr. Dake would have been on there no? No matter you both are a perfect match and spokespersons for us.

Thanks Jeff for stepping up to the plate to help liberate us!

Wow this is so awesome. Think about how many other diseases get this kind of "gotcha" moment and so much excitement building on the grassroots level!

:) Put a smile on my face, thank you thank you thank you!

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
radeck
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Post by radeck »

It seems to be still going on. Much more detailed interview with Zamboni than in the 15 minute snippet.
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CureIous
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Post by CureIous »

radeck wrote:It seems to be still going on. Much more detailed interview with Zamboni than in the 15 minute snippet.
There are multiple segments beyond the Pt 1 and 2 worth watching, stuff that didn't get into the special probably for time considerations but all of it's good!

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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bestadmom
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Post by bestadmom »

We think we saw it all, but not in the correct sequence. But it's good. I wonder how Buffalo will deal with the phone calls on Monday?
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daniel
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Post by daniel »

It's posted online now

http://www.ctv.ca/servlet/ArticleNews/s ... ?s_name=W5

Edit: sorry this was posted earlier, didn't notice it
Last edited by daniel on Sat Nov 21, 2009 5:17 pm, edited 1 time in total.
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ozarkcanoer
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Post by ozarkcanoer »

My husband and I watched all the segments. The long interview with Zamboni was wonderful. What a great man. And there is a segment with Dr Haacke. I wonder why there was nothing on Dr Dake ?? My husband cried when Dr Zamboni was telling his story. I hope that the world will be different for all of us tomorrow. It was wonderful to see Joan and Jeff. Thank you Joan and Jeff for everything you have done for people suffering from MS.
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Post by radeck »

bla
Last edited by radeck on Sat Jan 16, 2010 6:46 pm, edited 1 time in total.
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jennifero
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Post by jennifero »

I am so glad this has finally aired!! Yes, it has been 10 months since my Liberation in Italy and am so happy I was able to do this in January for my brothers&sisters around the world to help end the suffering. It is nice to put a face on this disabling disease you, can see me @ Buffalo for my Neuro visit, I can be seen for the eye segment & reflexes segment while MD was working on arms. HUGS from Buffalo
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Post by radeck »

Jennifero, thanks for coming online. You should know that there is a tracking sticky on top of the CCSVI forum. It would be so informative for all of us and the rest of the world if you could post your story there. I even had it translated into Italian (titled SCHEDA CCSVI). Also if you know any others in person, please let them know that we have this tracking thread and would be delighted if they come online and share their experiences.
Last edited by radeck on Sat Jan 16, 2010 6:44 pm, edited 1 time in total.
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bestadmom
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Post by bestadmom »

Jenifero, thanks for 'coming out" and thanks for going to Italy for us. I'm watching it for the 2nd time, and I'm looking for you.

How did it feel to watch the show? Had you seen in before it aired? I'm pretty speechless.
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bestadmom
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Post by bestadmom »

Jenifero, thanks for 'coming out" and thanks for going to Italy for us. I'm watching it for the 2nd time, and I'm looking for you.

How did it feel to watch the show? Had you seen in before it aired? I'm pretty speechless.
radeck
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Post by radeck »

redundant
Last edited by radeck on Sat Jan 16, 2010 6:42 pm, edited 4 times in total.
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cheerleader
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Post by cheerleader »

wow...Facebook CCSVI fans went up by 400 people today. And they're all posting. yikes! If anyone can come over there and help me answer questions and point people in the right directions, it would be greatly appreciated. I feel a bit overwhelmed. Jeff's getting tons of e-mails, too. I just hope and pray folks can use the excitement and energy to contact their neurologists, vascular docs, the MS Societies, and local universities with the research. There's a tremendous groundswell of interest and hope, and it makes me choke up. There's no way the neuros can deny this now. No way.

OK, thanks for the good wishes...weird seeing our family on the computer screen...but a good weird. Really thankful the story was well told and I'm SO glad Avis went to Dr. Haacke to ask him to help explain this...I had suggested him to her, and I think it added so much more med cred. And I'm really proud of Dr. Z and Elena going public about their personal life...that was hard, I know...but makes this tale so compelling and real for people. And congrats to all the Liberation patients and thanks to everyone who shared their journey. So powerful. I thought this was very well done...congrats and thanks to Avis and Elizabeth for their hard work.

OK, off to Facebook to try and answer questions...anyone else care to help? please?
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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