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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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cheerleader
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Welcome to New Visitors from Facebook!

Post by cheerleader »

This is the place to come discuss, learn, share and encourage. We have people from all over the world who have been tested and treated using Dr. Zamboni's CCSVI protocol. Use the search function to find the topics you are interested. The search button is up above, and you can search one word or many (make sure to click "search all words" if using more than one term)

Many of your questions may be answered already. Check out the "stickies" at the top of this forum. Read from the first page.

Yes, there's alot of info on here, and yes, it can get confusing....but we are all here to help each other-

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
radeck
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Post by radeck »

Oh, and you may want to chose "Display results as POSTS" instead of "TOPICS" when searching. Depending on how much time you have.
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cheerleader
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Post by cheerleader »

note to "old timers" -that means anyone here since last week :)
CTV linked to the Facebook page, and we got 1,000 new members overnight. I am rerouting people here...lots of questions that have aleady been answered will be brought up again. We'll need to bring new folks up to speed, so patience, sense of humor and helpfulness are appreciated. If you see a question that's up your alley, go for it.
thanks!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Ana
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Post by Ana »

cheerleader wrote:note to "old timers" -that means anyone here since last week :)
CTV linked to the Facebook page, and we got 1,000 new members overnight.
cheer
That's fantastic! Today I also wrote a mail to a critical journalist from a big German mag linking the Canadian TV report. So I hope that in Europe there will also be a push!
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whyRwehere
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Post by whyRwehere »

I have trouble with the search tool on here, but actually read the directions the last time and it helped...you have to put "and" between each word searched. Another option might be to do a google search with this is ms and the term you are looking for. But I don't mind answering questions, either, if I have anything to say.
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ozarkcanoer
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Post by ozarkcanoer »

I'll do my best. I'm still learning too !!!
chrishasms
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Post by chrishasms »

123
Last edited by chrishasms on Sat Dec 05, 2009 12:47 pm, edited 1 time in total.
Rokkit
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Post by Rokkit »

radeck wrote:Oh, and you may want to chose "Display results as POSTS" instead of "TOPICS" when searching. Depending on how much time you have.
Excellent tip. It only took me about 6 months to figure that out on my own. :-)
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CRHInv
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Post by CRHInv »

we got 1,000 new members overnight
This is amazing! Me and my newly clear brain are in!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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schnittke
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Post by schnittke »

I just saw a link to the Canadian broadcast on a stock trading board of all places. I thought the I was on this board for a sec. I hope this gets some media attention.
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Loobie
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Post by Loobie »

chrishasms wrote:I sent that news program to every TV station here in Denver and told them I knew someone locally who could talk to them about having it done and if it was worth it.

We'll see ;)
Chris,

I forwarded your facebook link to everyone I know!
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paulmur
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Any one know who are the biggest Stent Manufacturers?

Post by paulmur »

That's why it was on a stock trading site. Bad news for pharma's good news for stent manufacturers.
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Ruthless67
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Post by Ruthless67 »

Palmur,
do you have a link to an article on the stock trading site? If it's an article, I'd love to read it. It tickles me that the market would get wind of it so fast!
Lora
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cheerleader
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Post by cheerleader »

lots of new folks in the intro section...maybe pop up and say hi-
Over 2000 on Facebook this am (1500 new members in one full day!)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
LR1234
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Post by LR1234 »

Cool:) word is spreading and that = Pressure on the neuros and societies plus maybe some new vascular dr's will take up the challenge of scanning MS Patients, I so hope so, the UK is in major need of some!!
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