Longest month of my life!
Longest month of my life!
Dr. Simka has scheduled me for February 10th for testing, and 11 for the procedure if any found. I am sure they would find vein problems.
The wait is so LLLLONNNNGG.
Every day seems like a month.
Can't wait.
I am so excited, even if I don't get any improvement (I'm sure I will), I'll be happy with stabilizing.
We are all on quest to defeat this disease for us, for our children, and everyone who might get this dreadful disease. We must win, we will win.
And who are the heroes? Dr. Zamboni, Dr. Simka, and their teams, to be the first to "boldly go where no man has gone before" as captain Kirk said it.
The wait is so LLLLONNNNGG.
Every day seems like a month.
Can't wait.
I am so excited, even if I don't get any improvement (I'm sure I will), I'll be happy with stabilizing.
We are all on quest to defeat this disease for us, for our children, and everyone who might get this dreadful disease. We must win, we will win.
And who are the heroes? Dr. Zamboni, Dr. Simka, and their teams, to be the first to "boldly go where no man has gone before" as captain Kirk said it.
That's graet news alby, the wait will be worth it!!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
Got my ticket1
i bought my tickets to Poland and hotel reservation. i am pretty much ready to go. another 30 days to go. I don't want much, just stabilizing would make me happy, so we'll see what happens.
That's great news alby, we're all ticking the days off with you!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
29 days and counting.
This year is the year that MS will be defeated. I love this group, everyone in it and support given. I am sure I will see a few of us over there, we might even be on the same flight. I will write in detail about my experience, you guys can count on it.
- ozarkcanoer
- Family Elder
- Posts: 1273
- Joined: Thu Oct 15, 2009 2:00 pm
- Location: St. Louis, Missouri
- Contact:
It is conditional.
I contacted Dr. Simka in December, and told him about my desperate condition:
I am EDSS 7 or 7.5.
I am on Novantron chemotherapy, which I hate. Even with that I am still getting worse. I told him the truth about my worsening condition. Every day I am worse than the day before.
numbness, weakness of legs and arms, problem with fingers, bladder problem, stiffness of legs, spasticity. Right hand fingers starting to act up on top of numbness and weakness.
If I could afford to wait, I would, but the way I am spiraling down, I can't wait. Next year may be too late.
For those who are curious:
Flying from Los Angeles to Munich, non stop with Lufthanza, then to Katowice, arriving there around 11 PM.
I chose to fly back from Krakow, decided to stay there for couple of nights.
I am EDSS 7 or 7.5.
I am on Novantron chemotherapy, which I hate. Even with that I am still getting worse. I told him the truth about my worsening condition. Every day I am worse than the day before.
numbness, weakness of legs and arms, problem with fingers, bladder problem, stiffness of legs, spasticity. Right hand fingers starting to act up on top of numbness and weakness.
If I could afford to wait, I would, but the way I am spiraling down, I can't wait. Next year may be too late.
For those who are curious:
Flying from Los Angeles to Munich, non stop with Lufthanza, then to Katowice, arriving there around 11 PM.
I chose to fly back from Krakow, decided to stay there for couple of nights.