Poland part 2

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
BBE
Family Member
Posts: 65
Joined: Sat Sep 05, 2009 2:00 pm
Location: Slovakia
Contact:

Post by BBE »

In case of restenosis after ballooning do you have to pay again for the whole procedure incl. stents or just the extra costs?
Rokkit
Family Elder
Posts: 669
Joined: Tue May 19, 2009 2:00 pm

Post by Rokkit »

Has anyone heard from Wonky1?
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: Many times

Post by Cece »

fiddler wrote:Leetz, the price list has been posted MANY times in this forum: the cost for the assessment and procedure altogether will total between 6,000 and 7,000 US, depending upon the exchange rate on the day of the transaction.
Wasn't it raised to 10,000-11,000 now but including the hotel stay and transportation to and from the hospital?

It's moot, I suppose, if he's so far booked out that he's no longer taking bookings.

It is discouraging to hear about restenosis occurring (although in wonky1's case, good that he can get it redone and stented). Not sure when the average USer will have access to being stented. Angio seems like such an easier hurdle.
Last edited by Cece on Fri Feb 05, 2010 1:00 pm, edited 1 time in total.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
User avatar
wonky1
Family Elder
Posts: 113
Joined: Thu Oct 08, 2009 2:00 pm
Contact:

Post by wonky1 »

Hi yall
I’ve just got back home.
This time I had a stent fitted in my left jug’ and the right one was ballooned.
My first procedure opened the inverted valve in my left jug’ but it closed again.
There was not a stenosis but a membrane on my right which was broken open and an inverted valve on my left which was turned back the correct way.
I’ll try and explain…….In the first procedure the leaves of the valve were pushed back so they faced the right way ( south ) that worked for a while but then the leaves of the valve closed tight, I guess they were trying to head north again.
This time I have had a stent fitted where the valve was so it will stay open. Apparently I don’t need a valve there.
I have also had re-ballooning of my right jug’, I’m not sure what’s going on with that. It was not suitable for a stent or one was not required.

My symptoms are much the same except my feet are warm. I have returned home to a freezing cold house and my nose is cold BUT I’m sitting here with just socks on my feet yet they are nice and toasty.
I didn’t get much sleep while away, I never do in hospital. Hopefully a few nights sleep in my own bed will bring on further improvements.

They are still a really nice bunch of people.
I was charged 10’000ZL this time and was able to pay with a visa debit card, I don’t know what that converts to yet.
I’ll let you know if there are any further developments.
User avatar
Algis
Family Elder
Posts: 829
Joined: Sat Nov 21, 2009 3:00 pm
Location: XinYi District, Taipei City, , Taiwan

Post by Algis »

Thanks Wonky; take a good rest and be well :)
User avatar
ozarkcanoer
Family Elder
Posts: 1273
Joined: Thu Oct 15, 2009 2:00 pm
Location: St. Louis, Missouri
Contact:

Post by ozarkcanoer »

Thanks for reporting on your second adventure, wonky. I hope the months to come bring you steady improvements.

ozarkcanoer
User avatar
sunlounger
Family Elder
Posts: 110
Joined: Wed Nov 04, 2009 3:00 pm

Post by sunlounger »

Hi Wonky thats good to hear they where able to put a stent in there.
I hope your feeling those improvements again soon :D
User avatar
crocky
Family Member
Posts: 69
Joined: Wed Nov 25, 2009 3:00 pm

Post by crocky »

thanks for letting us know how you are - hoping that it all works out for you this time and look forward to your updates - S
User avatar
acol
Family Elder
Posts: 157
Joined: Mon Oct 12, 2009 2:00 pm
Location: Bucks, England
Contact:

Post by acol »

Hi Wonky1

Pleased that you got yourself sorted and back home safely. I am now much more relaxed about stents and in the light of your experience and others, stents would now be my preferred choice. Rather than being anxious about stents I would be more worried about the procedure not lasting.
Nigel
User avatar
shye
Family Elder
Posts: 758
Joined: Sun Nov 29, 2009 3:00 pm
Location: NYC
Contact:

Post by shye »

thanks wonky for reporting so quickly-
and wishing you well with this new procedure.
User avatar
wonky1
Family Elder
Posts: 113
Joined: Thu Oct 08, 2009 2:00 pm
Contact:

Post by wonky1 »

I can’t keep a lid on it anymore, I have to declare in best James Brown stylee



♪♪♫ I feel good ♫♪♪



10 days after the procedure

My fatigue is gone

My legs are stronger, I can get up stairs without resting half way.

There’s no sick giddy feeling when moving my head fast

Balance is better, I can stand at the sink or in the middle of the room without support.

My voice is stronger and clearer.

Spacticity in legs has gone

I can drive again, even enthusiastically

Night-time twitching has stopped.

General cognition has improved, I think quicker clearer and sharper.

Heat tolerance is much improved.

There’s no more choking on food or fluid.

Improvements were slower to kick in this time but they are definitely happening.
I was determined not to build myself up this time in case it all went away again but I can’t help grinning.

Hey, this really works!
User avatar
Algis
Family Elder
Posts: 829
Joined: Sat Nov 21, 2009 3:00 pm
Location: XinYi District, Taipei City, , Taiwan

Post by Algis »

So good to read that you feel good :) (for whatever reason tho).

Keep it on Wonky!!! 8)
User avatar
costumenastional
Family Elder
Posts: 743
Joined: Sat Jan 31, 2009 3:00 pm
Location: Greece
Contact:

Post by costumenastional »

Thank you for posting !!!

Continue to feel better and better please...
User avatar
eve
Family Elder
Posts: 117
Joined: Tue Jan 05, 2010 3:00 pm
Location: Netherlands
Contact:

Post by eve »

Great news - it just keeps coming today! Best of luck Wonky, thank you for updating!
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
acol
Family Elder
Posts: 157
Joined: Mon Oct 12, 2009 2:00 pm
Location: Bucks, England
Contact:

Post by acol »

Wonky 1

Absolutely wonderful news! Stories such as this tend to negate the placebo effect which critics of CCSVI often put forward. How on earth would you know that the blockage had reoccurred? If it was the placebo effect then you would surely expect the surgery to last more than a few weeks? I believe that this tends to show that the improvement was real and that when the blockage re-emerged this was also real and was noticed by you immediately.

Anyway, whatever! Super news! :D
Nigel
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”