annbbe - second day after procedure
CCSVI
Good Morning annbbe,
Well done on getting the procedure done.Try not to worry & be happy.1 day at a time.
Slainte Mo Chara
Edser & Anna
Well done on getting the procedure done.Try not to worry & be happy.1 day at a time.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
Edss Before Procedure:6
Edss After Procedure:4
- sunlounger
- Family Elder
- Posts: 110
- Joined: Wed Nov 04, 2009 3:00 pm
- thornyrose76
- Family Elder
- Posts: 462
- Joined: Mon Nov 23, 2009 3:00 pm
Has your fatigue eased up any?
This isn't a cure... don't expect all your symptoms to go away, might take years to heal up. The main thing is to stop you from getting worse. I know when I was on rebif(while it actually worked) it took over a year for alot of symptoms to heal and the odd thing is they heal so slowly you don't notice alot of them.
This isn't a cure... don't expect all your symptoms to go away, might take years to heal up. The main thing is to stop you from getting worse. I know when I was on rebif(while it actually worked) it took over a year for alot of symptoms to heal and the odd thing is they heal so slowly you don't notice alot of them.
- fogdweller
- Family Elder
- Posts: 412
- Joined: Tue Dec 08, 2009 3:00 pm
news from annbbe
Hi everybody! I am 2 months after my procedure. My EDSS came down from 4EDSS to 3.5EDSS. Not much, but still something.
3 weeks ago I started my rehabilitation stay in a hospital. I exercised 3 times a day. I walk without fear of falling down now, I don't have to grab a handrail while walking up/downstairs. So - it's ok.
Unfortunately I noticed that I have dropping foot and I haven't had it for a quite long time. I have to check it out. On april the 22nd i have my control Doppler in Katowice, so we'll see if it's the restenose or maybe it's just because of...I don't know..the weather?;)
I still take tysabri, but because of the lack of the money I take the next infusion on wednesday, the 7th - 8 weeks after my previous infusion. Well, this is the life. The previous one I had to take after 8 weeks as well.
Take care and have a very happy easter!
3 weeks ago I started my rehabilitation stay in a hospital. I exercised 3 times a day. I walk without fear of falling down now, I don't have to grab a handrail while walking up/downstairs. So - it's ok.
Unfortunately I noticed that I have dropping foot and I haven't had it for a quite long time. I have to check it out. On april the 22nd i have my control Doppler in Katowice, so we'll see if it's the restenose or maybe it's just because of...I don't know..the weather?;)
I still take tysabri, but because of the lack of the money I take the next infusion on wednesday, the 7th - 8 weeks after my previous infusion. Well, this is the life. The previous one I had to take after 8 weeks as well.
Take care and have a very happy easter!
Polish, 33yrs, dx 2000 RRMS, 2013 RSPMS EDSS 6.
liberated in february the 2nd 2010:). Currently just on LDN.
liberated in february the 2nd 2010:). Currently just on LDN.
- Brightspot
- Family Elder
- Posts: 207
- Joined: Fri Jan 15, 2010 3:00 pm
- Location: Vancouver, Canada
Hi annbbe!
Thanks for your post telling us of your recent procedure and progress.
I am sending my best wishes for the maximum benefit from your procedure and rehab.
I was interested that you mentioned you will go to rehabilitation hospital, and I am wondering if you can give us some more information about the rehab hospital you will go to or other such places. I know in Europe there are quite a few medical facilities offering physiotherapy, massage and other rehab type treatments. My understanding is that these are medically focused, no fancy frills, and reasonably priced, so that average people to be able to afford to use them. In Canada the public health care system is focused mostly on acute care, and not so much on rehabilitation.
My sister and I are on a wait list to go to Poland from Canada (next March), but we are starting to make plans, and would like to include some intensive rehab. in our plans.
Any information that you might share about rehab. would be of help to my sister and me, and perhaps others who will be traveling to Poland for liberation.
Our thoughts and hopes for your improvement are with you.
Thanks for your post telling us of your recent procedure and progress.
I am sending my best wishes for the maximum benefit from your procedure and rehab.
I was interested that you mentioned you will go to rehabilitation hospital, and I am wondering if you can give us some more information about the rehab hospital you will go to or other such places. I know in Europe there are quite a few medical facilities offering physiotherapy, massage and other rehab type treatments. My understanding is that these are medically focused, no fancy frills, and reasonably priced, so that average people to be able to afford to use them. In Canada the public health care system is focused mostly on acute care, and not so much on rehabilitation.
My sister and I are on a wait list to go to Poland from Canada (next March), but we are starting to make plans, and would like to include some intensive rehab. in our plans.
Any information that you might share about rehab. would be of help to my sister and me, and perhaps others who will be traveling to Poland for liberation.
Our thoughts and hopes for your improvement are with you.
- Villagemaid
- Family Elder
- Posts: 198
- Joined: Sun Mar 14, 2010 3:00 pm
- Location: BC, Canada
- Contact:
- sunlounger
- Family Elder
- Posts: 110
- Joined: Wed Nov 04, 2009 3:00 pm
hi sunlounger! i don't really know why this foot is dropping. maybe is because of this kind of fatigue after excercices. maybe it could disappear after some time? we will see. the rest of things are still good.
fingers crossed for your stenting!
anna
fingers crossed for your stenting!
anna
Polish, 33yrs, dx 2000 RRMS, 2013 RSPMS EDSS 6.
liberated in february the 2nd 2010:). Currently just on LDN.
liberated in february the 2nd 2010:). Currently just on LDN.