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alanbrowne wrote:Well, my time has come.....
Flight to Katowice from the UK this evening then MRI tomorrow, should be liberated on Friday

Excited, nervous, it's going to be an emotional week I think.

Very best of luck to all others having the procedure around the world this week.....our time has come

Take care,
Alan

Alan, wishing you all the best! I hear you about being nervous... I am not flying until the 22nd (May) and I am already nervous!

Please let us know how this all works out for you.

Sorry if I cut it short, my brain is like Jello hitting my skull for 3 days now, I had to take a break. I blame all the blood thinners, that's why I was so happy to finish the Clexane yesterday!

Yes they start the aspirin and Plavix 2 days prior to the procedure.
Dr K: Injection 14 days, Plavix for 6 weeks, aspirin 150mg life, Doppler follow up in one month.
GP CDN protocol (but did not prescribe): Stent= Plavix for ONE year, aspirin 80mg life. NO Doppler check up even though I now have a stent in my left jugular.

I am not sure what to do yet with the Plavix dosage difference between CDN and Poland.

I will work on this and I am not easily defeated... Dr K could not get into my Azigos. They tried 3 times without success. I will look into that too.


I am liberated but not cured... I want to allow time to recover from the stress (procedure, volcano, etc), the sightseeing for 10 days, the time zone jet lag, the bleeding (15 days)... I am doing better but I am a bit jealous of the big recovery we see everywhere! I will go in more details soon.

It took us triple the time to get to Tychy because of the volcano. We were the 1st flight out of Montreal after the BIG shut down in April. But I did just fine because I was on my way to my LIBERATION!!! I am sure it will be the same for you! Don't worry things always work out for the best. It is meant to be.

Sylvie

Other tip: make sure your potassium level are OK, easy here to find supplements but not in Tychy. They gave me some at the hospital.

Yes they do the procedure even if you are indisposed (feel like my mother talking). Better to use a tampon since you will be completely naked under the gown - no underware. They will shave the sides of your Venus mount - and I keep it short and bikini electolysed.

Other very female orientated info: the hopital gown are not only thin but very very translucide. The one at the MRV place was ridiculous. It would have been less Erotic to be naked! Yes I choose the word correctly even though English is not my primary language.

God! this is so intimate after knowing you for only a few sentences...

Ok, last intimate info, after that I return to be the nice dainty lady that my mother wished she has raised: One of my best recovery symptom is... My bowel mouvement!|!! (well said, not too vulgar)

Yes yes, I go every day after breakfast since day one! I used to go once every 7 to 10 days!?!?? I was litterally poisonning myself. I always blamed all the narcotic I take for the pain. Now I know it was MS because my pharmacology has not been modified except for the blood thinners.

I read on this forum that AMcG has some more pleasant "rendez-vous" with the white porcelain too.

Please don't be nervous, go with the flow, enjoy every moment of your Liberation week! It is painless, it will make you better (if not immediately in time it will or at the very least it will stop the progression), Poland is worth the visit for sure, Dr Kostecky and everybody in his team are nice and compassionnate people. Food is good, the weather is nice at this time.

I would do it all over again any time! Good luck to all of you!

Sylvie

@Sindy
My Brother (and I as escort) are also booked in to Dr. Kostecki June 23-29. We're from Winnipeg, MB. Where are you from? Maybe we'll see you there.

@Everybody
Just wanted to say thank you to all who have posted about Dr. Kostecki, as I would be lost without it! It's good to hear reviews (good and bad) about the Dr's and the effects on your MS, and it really does help others such as myself and my brother!

Hi everyone,


A little bit of help needed, just received mri questions ect. Kate sent them on pdf format. It will not let me fill it in. Any ideas out there? Im just basic at computers.
With thanks

Caraboo

caraboo wrote:Hi everyone,


A little bit of help needed, just received mri questions ect. Kate sent them on pdf format. It will not let me fill it in. Any ideas out there? Im just basic at computers.
With thanks

Caraboo

If you don't mind - PM me your e-mail. I just did mine, I have the full Adobe Acrobat (that lets me edit), so I made up the fillable-outable form out of the PDF Kate sent.

I can send it to you

*************************************************

Sorry guys. I tried and the forms can not be saved unless I purchase more Adobe software

I just received mine as well, and my photocopier at work scans to a PDF, so I'll print it, fill it out and re-PDF it. You can also print it out and Fax it in.

Re: Ladies Only,

Not to worry, we don't know anyone here personally, and maybe I am "abnormal", but I have always been intimately involved with my wife on every level. Menses is a fact of life. There are alternatives to tampons and pads, which might be useful while having the procedure. eg: http://en.wikipedia.org/wiki/Menstrual_cup. My wife has found it useful for "short-term" applications.

Heck, I'll even tell you about my Peyronie's syndrome, if it would level the playing field!

caraboo wrote:Hi everyone,


A little bit of help needed, just received mri questions ect. Kate sent them on pdf format. It will not let me fill it in. Any ideas out there? Im just basic at computers.
With thanks

Caraboo

ya a pdf is acrobat reader and you can't fill it in(unless you own the authoring app).


I would open it in an art package and put the text in that way, dunno how you're supposed to..(print it out, fill in the form with pen, scan it,send it back)

Hello nice to meet you , we are in alberta so will leave from edmonton on the 22, were will you fly from ? we go to toronton then frankfurd , i hope we get to meet when there . please email me or message me and maybe we can make plans to meet there . i would love to meet up some where .sindy

I feel like I'm loosing my mind....well more of it anyway. I also received the PDF and can't fill it in. I can print it, I was hoping to perhaps scan and attach it, but what if they can't open my file? I'm going to try to phone in the morning....very early and before total available bran function. We are supposed to fly out on the 5th of June from Alberta, and my original date for procedure was the 11th, but now is the 13th...so it's a good thing I booked a longer stay. It just won't give us much time to do a little side trip, but not the main focus of our trip anyway.
One other question: I noticed on the form they ask for a referring physician, did anyone else have one? I guess I can ask Kate that tomorrow, but just one more thing that's worrying me since our flight is booked already.
phew....honestly, I hope we liberati can one day all meet up and celebrate!

One more question (hopefully the last one) what should I pack for my night stay at the hospital? I am thinking socks, slippers, night gown (a less erotic one for sure ), toothbrush, maybe even some incontinence underwear. Anything else?

What is the sleeping and bathroom arrangement for people that are not so lucky to get a private room? Are you allowed to go to bathroom after some time (is it 6 hrs?)

I am asking a lot because my mobility is limited and knowing that I will be alone that night (no company of husband) I want to prepare myself properly.

Thanks so much for the valuable information from all you Dr. K pioneers.

Hale

Hi Hale,

Yes, you can go to the bathroom after 6 hrs (and I was counting and every room I saw had a bathroom (but I did not see them all !). For those of you who are sensitive to light (I need it real dark to sleep), I would recommend an eye mask ! Definitely, a night gown or long T-shirt, because as someone mentionned before, those gowns they give you a quite transparent...and although you have to stay in bed for 6 hrs, it felt good to have something "real" on, at least on the top part !
Also, an ipod is a good idea...

Good luck !
Michelle

So may I ask what the cost of the whole procedure is? With Dr. Simka, I believe it's 6500 Euros (?). In Bulgaria it's 5000 Euros (?).

Hello Hale, everybody is alone at the hospital between 6pm and 8am. One thing I brought with me is food (munchies). No food after 10pm night before and You have to wait 6 hours after the procedure! I was starving and they serve cheese, hard boil egg (I'm allergic) and bread. Breakfeast was at 9am. At least bring something to drink, the only thing they serve is a disgusting dard brown warm liquid!?!? Not tea not coffee


We had the OK to leave at 1pm only. (It was a nice warm day, we had a piece of apple pie outside at the hotel, I was liberated:)
Also brought ear plugs.
I had a list of words translated, the nurses really don't speak a word of English.

Here is the list of my recovery so far (15 days)
Most improved (and most surprising):
- I have so much saliva that I sometimes feel sick to my stomach! (I had no saliva before and I thought it was the result of my previous tongue cancer - curietherapy + radiotherapy.)
- My bowel mouvements are now regular and easy: once a day. (It used to be once every 7 to 10 days, which I blamed the pain killer pills I take)

Those improvements were not expected hence can not be placebo effect!

No more hands and eyelids tremor.
Warm hands (on/off warm feet)
No more legs stiffness after effort or long sit down period. (even after 6hrs of site seeing)
I always walk straight (no more hip compensation)
Much better and deeper sleep
Calmer bladder
No migrain or headache so far (even after a beer - it was automatic before)

No improvements in Fatigue and pain in the feet/legs. (My worst symptoms)

New symptoms:
Left arm and hand tingling
Pain in the lower back on left side head when under stress
Jello brain slushing against the skull for the pass three days?!??

I am very happy and I'm positive I will get even better in time.
This is such an amazing journey we are on aren't we lucky!!
I am definitely be doing what I can to pass it forward and help extend the privilege to others.

6 years ago my son (11 then) started activities to collect money for MS Society. We are now piling 35K per year for the cause but they (SCSP) will not see one more penny of it...

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