Page 8 of 22
Posted: Wed Mar 17, 2004 7:36 am
by pincushon
Hi everyone, I just joined the group. I am 64yrs old and have RRMS. Finaly got a definete dx. about 14mos ago. My first attack goes way back to 30 yrs ago at least. Lost sight in right eye for about 4wks. Lots of other things happend during the years that followed, but the double vision I had finaly got me to an opthamologist, neurologist, and for an MRI. Then came the dx. It was no surprise to me. I have been on Avonex for a year. Can't get my neuro to listen to me about LDN. Sure would like to try it.
Posted: Thu Mar 18, 2004 11:59 am
by finn
Sorry, time to leave the board.
-finn
welcom finn!
Posted: Thu Mar 18, 2004 4:09 pm
by VirtuallyFine
hello finn,
your english is fine...in fact it is better than some people i know who have english as their first language!
it will be wonderful to have your perspective on things.
welcome!

Posted: Fri Mar 19, 2004 6:37 am
by fightingms
Welcome to the group Finn...Don't worry about your english....just post away. Glad to have you on board.....Kim
Posted: Fri Mar 19, 2004 8:25 am
by finn
Sorry, time to leave the board.
-finn
I am so young!
Posted: Fri Mar 19, 2004 9:40 am
by Discoverme83
Hello Everyone! My name is Valerie and I am from Ontario Canada...I am only 20 and was diagnosed in July of 2003. I am on my 4th week of Avonex but have been doing alot of reading about ldn. Does anyone know someone my age who has ms...? Hope to talk to some of you very soon! Take Care!

Posted: Mon Mar 22, 2004 7:36 pm
by Shayk
Hi Valerie and welcome to this site
I'm probably the last person you want to hear from

because I could probably be your grandmother since at 57 I could well be the oldest member.
What we do share is "newness to MS". I'm on my 14th or so Avonex injection. The good news is I think the side effects are starting to decrease
As a "newbie" to MS, I think this is a great site. Lots of information and the latest news.
I'd really love to hear the perspectives on MS from someone as young as you, so please stick with us and let us know what's up. I don't know the ages of members or I'd send them a pm and ask them to consider contacting you.
I hope you're well

and WELCOME
Sharon
Posted: Thu Mar 25, 2004 11:28 am
by pincushion
Greetings all! Nice idea to have introductions...I'm "pincushion", real name Jean, dx'd 1/02 on Copaxone, RR now second. progressive. 55 years old, 30 years with "significant other", own jewelry store, 3 cats and 3 parrots. Pleased to meet everyone!
Posted: Thu Mar 25, 2004 11:43 am
by BrendaH
Hi Jean! Welcome on board!
Hugs,
Posted: Thu Mar 25, 2004 11:49 am
by BrendaH
Hello, also, to Finn and Valerie and all the others! I don't have much time lately to read all the messages, but I'm glad we have new friends every day.
Valerie, have you visited the alt.support.mult-sclerosis Google forum? You may find others your age there, and they are also a very welcoming group.
I am 43 and diagnosed when I was 37, so a bit 'old' - sorry!
Finn, I agree with the others, your English is very good and I'm glad to meet a 'neighbor' from this part of the world!
Hugs to all,
Posted: Fri Mar 26, 2004 7:56 am
by fightingms
Welcome Valerie and Jean!! Always good to see new faces...er..I mean....new keyboards....

.......Kim
Posted: Fri Mar 26, 2004 3:36 pm
by Guest
Hi to Kim, Valerie and Brenda and others as well. It is nice to get to know new people.
Brenda, I didn't mean to beg for compliments about my english (or who knows, maybe I did

). I only wanted warn you about it and to say that if you don't quite understand something that I have sent here, please, let me know. BTW, it is great to meet somebody living as "close" to Finland as you.
Valerie, here's a direct link to
alt.support.mult-sclerosis. Like Brenda wrote, it is a good forum.
Take care you all,
Finn
Posted: Fri Mar 26, 2004 3:40 pm
by finn
Sorry, time to leave the board.
-finn
Getting to know you
Posted: Mon Mar 29, 2004 12:52 am
by hummingbird
Hi,
I discovered this impressive site earlier today, but put off exploring too far until I got conf. of my registration. All I can say is WOW!
And it doesn't even erase what I have already typed when there is an unexpected, dreaded click when my cursor is somewhere near the centre of the page.
Oooh...I like the way the emoticons work so easily.
I'm Linda, and I have already given a clue to my country....Canada. Like the first message I read, (only when I went back to find the name I couldn't locate it), I am 57, was dx 3 yrs ago with RRMS, but my typical symptoms go back to the 60s.
I am now early-retired....mandatory from permanent disability when I hit the "magic #" of age plus years worked. Since I likely had MS all of my adult life, my working career was often a nightmare of fatigue and never being to do things as easily as colleagues and friends could. I figured I was in some way an inferior kind of person. Through the decades, my absences from work increased and gradually came closer together until I could not manage to work at all. You can imagine how unpopular I was... especially when all my doctors could come up with was "depression".
I was the one to first suspect MS (thanks to getting my first computer, after it sat mfor 3 months before I got brave enough to try it out, LOL). I had most of the symptoms on all the lists. My determined battle for dx worked its way through various offices and examining rooms with me shedding neuros and family doctors. Finally I was dx 3 yrs ago and began Copaxone at the end of that summer.
It has helped improve my relapse/remittance cycling pattern, but I still get definite relapses...they are shorter and my remittances are longer than my almost steady relapses before Copaxone kicked in. I am in a relapse right now.

In fact I have no idea how I stumbled upon this site...I was exploring and wandering as a way to block pain, found it, registered, and left the computer for a few hours.

(we need an emoticon for 'SHRUG')
I am single, and have a dog who makes sure I get some laughs every day. She also gets me out either with my wheeled walker or in my power wheelchair.
I recognize a few names here, and those from another group will recognize mine....
Linda
Look for joy in some part of every day!
PS I just noticed the Spellcheck.....love this site! But it is late and I am exhausted so won't try it til another time. (Is there an emoticon foe "exhausted"?
Posted: Mon Mar 29, 2004 7:08 am
by fightingms
Hey Linda....Welcome and how are you doing. Nice to talk to you here. This is a very good forum. I thought ,when reading your description of yourself, it sounded familiar....when I got to the bottom and read....look for some joy in every day...I knew it was you!
Take care....Kim