This Is MS Multiple Sclerosis Knowledge & Support Community

Posted: **Thu Jul 07, 2011 4:20 am**

For those of you who are interested, I handed the topic regarding EDS and MS over to my boss and editor-in-chief who is also responsible for fact checking. Her comments follow:

With reference to the Abstract, "Ehlers-Danlos syndrome and multiple sclerosis: a possible association," there are two sentences with important implications regarding the cause of MS. The first: This frequency suggests 10-11 times increased prevalence of EDS in MS patients compared with the general population. The second sentance and the one that is referred to on the page on our website is: Suggested implications include a possible causal relationship on a connective tissue level with a higher susceptibility to MS in EDS. This statement underscores the reason for the page in the first place and that is to point to the cause of MS as a structural cause (specifically the upper cervical spine and base of the skull) as opposed to or in addition to the commonly known auto-immune cause which is where current funds and research are directed, as well as 95% of all treatment.

Respectfully submitted
Dr. Flanagan
Editor of Upright-Health.com

*please note above that there is a: causal relationship between EDS and MS, not a "casual" relationship as someone previously posted. The term causal refers to cause.

Right now I am busy finishing a page on different types of skull deformation called craniosynostosis and craniodyostosis. I had to bump the page way ahead of schedule so I can get it to National Geographic on time for the project they are filming this summer as well as to protect my copyrights.

Posted: **Thu Jul 07, 2011 5:39 am**

Hello CN,
Thanks for your continued support and for giving me a great idea.
We are having our annual family party starting tomorrow. The house will be packed. Many rooms have been booked at local hotels and there will be tents and a tent trailer pitched in the backyard. I'll have my wood charcoal grill fired up all weekend. In addition to smoked cassoulet I think I might try some souvlaki on the grill with tzatziki on the side to spice things up. Thanks for your culinary input. I will be raising a glass to the Greeks this weekend.

Posted: **Thu Jul 07, 2011 12:37 pm**

costumenastional wrote:
blossom wrote:i doubt very much that there is anyone else that could explain the spine and ccvbp like you can.i
This makes two of us.

Actually there's three team!

Posted: **Thu Jul 07, 2011 1:46 pm**

G'day Nigel and thank you,

As it turned out my sister is making a Greek salad so I told her to make sure to get some anchovies while she is at the store and pick up some lamb for the souvlaki. No luck on the lamb and I'm certainly not spending 9 stones per English pound on a Flanagan family party. They eat too much. It'll have to be chicken and pork. If they don't like it then, "Let them eat cake."

Posted: **Thu Jul 07, 2011 8:41 pm**

have fun dr. flanagan. sounds great. wish you dry and sunny days.

Posted: **Fri Jul 08, 2011 4:24 am**

Thanks B,
I watch very little TV so I had to google Dr. Oz to find out who he is. His credentials are impressive, he looks like a movie star and you say I would be good on his show. Thanks for your vote of confidence. He does reach a lot of people though so I will have to give your suggestion and his show some serious consideration over the summer. Interestingly, my younger brother is an engineer. He developed the software that does finite element analysis for nearly all heart valves.

Posted: **Fri Jul 08, 2011 4:55 am**

Hello Nigel,
If you need help communicating your situation to your health care providers you can have them contact me directly. I would be happy to explain your case, my position and why I think upright MRI with flexion and extenion views are appropriate.

Posted: **Fri Jul 08, 2011 12:36 pm**

Thanks Dr. F this is the sort of help I may need. Thanks will see what happens, waiting on my Dr to reply to my discussion earlier in the week which will give some insight to what approach I need next. Thanks.

For those wanting to read Dr. F's latest;

http://uprightdoctor.wordpress.com/2011 ... sclerosis/

Regards all,
Nigel

Posted: **Fri Jul 08, 2011 3:22 pm**

uprightdoc wrote:I will be raising a glass to the Greeks this weekend.

Please do so, and while you are at it, inform your guests that Greece is under siege friend. Let them know that this is only the start of something global.

Have fun and try not to consume a lot of tzatziki haha

Posted: **Fri Jul 08, 2011 8:16 pm**

you stay safe costume. yes, you are right--the trickle down effect. kinda like a funnel.

Posted: **Sun Jul 10, 2011 9:14 pm**

Hello Dr. Flanagan,

Apologies for not responding sooner as just bogged down these days but thank you for your response.

My daughter is continuing her weekly treatment with Dr. Cindrich. I asked her if he uses blocks and she said he does but not every time and he checks her muscles but again not all the time. She is not usually with
him for that long - I think he adjusts her and she leaves which usually takes about 20mins I think.

Her hips and knees and ankles go out all the time and he recommended she wear her hip belt again. She has not seen the AO for some time now as she had some issues with him and is looking for another in NYC - any suggestions? Her neck has been giving her trouble.

Are there any exercises she can do that will strengthen her areas of weakness? Is it a good idea to go to the gym? Will she need adjustments continually?

Sorry to bombard you with questions and yes Blossom is right you should be on the Dr. Oz show - he has a huge following.

Blossom sorry to hear you have not been well. Hope you are on the mend.

Drury

Posted: **Mon Jul 11, 2011 4:37 am**

Hello Drury,
I am in recovery from a family party and still have five over night guests. Technically, it's called PFPSD (post family party stress disorder). I stepped on a toy train in the dark and later crossed paths with my pregnant niece eating a big bowl of cereal at 4:30 in the morning. I will be digging out from the debris today and get back to you.

Posted: **Mon Jul 11, 2011 8:40 am**

Hello Blossom,

You're idea about the Oz show was excellent. Thanks for the tip. I contacted the show today with a proposal. We'll see what happens. I just found out that Montel got tested for CCSVI and will be on the show. TV is not my thing but it could be fun.

Posted: **Mon Jul 11, 2011 9:12 am**

blossom wrote:hi dr. flanagan, i have got to update you on things going on with me and get your input. as you are my "mentor". but will do later.

ok, remember some of my private pm's to you a good while back?

now, the world pretty much knows that montel williams is gonna be on dr. oz,
and ccsvi is going to be really put out there. which is great and hopefully this will benefit us all.

now, it is only fair and right that ccvbp be known to the world.

i applaude the chiro.'s and thankful there is a trial going on we are aware of.

it would be the greatest thing since chocolate if you would get on dr. oz. i doubt very much that there is anyone else that could explain the spine and ccvbp like you can. any naysayers or doubters would have their work cut out for them, and they are not gonna stump you. how about you and dr. schelling and perhaps a chiro. conducting the trial getting together. WOW!

as on other dr. oz's shows, there are usually patients that come on who have benefited from a health problem the dr.'s have treated-such as montel will be doing.

well, you have "the happypoet, bestadmon, cosumesnational, civickiller, and many more who have benefited. "lasting with no side effects!"

besides, it is vital in my view that this be one of very first tests and treatment with many diseases but especially when neurological is involved. and caught early, as with anything, the better results. i am a perfect example of being poo poooed by the med. field, and though i searched and tried chiro.'s, i did not have the info. available to me i have now. age and yrs. of symptoms has taken its toll-and it is a slippery slope at this point.

everyone deserves to hear the info. and knowledge you offer.

Blossom, WOW!

Everything you say, you say so perfectly... from being doubly sweet (a pun for you) with "it would be the greatest thing since chocolate if you would get on Dr. Oz," to being so funny and so right with, "they are not gonna stump you," to your heartbreaking, "it is a slippery slope at this point," to your spot-on closing statement, "everyone deserves to hear the info. and knowledge you offer."

Posted: **Mon Jul 11, 2011 10:14 am**

Thanks Poet.

Blossom actually brought it up to me awhile ago but it took time to sink in. The timing is perfect.

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CCSVI and CCVBP

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ccsvi

ccsvi

Re: ccsvi