This Is MS Multiple Sclerosis Knowledge & Support Community

Hello Billmeik,

IF you need stent and decide to go for it, I am very interested to know what your GP wife will make with the different dosages in the medication prescribe.
My doc does not want to have anything to do with me but he said:
After stent: one year Plavix + 80mg aspirin for life
DR Kostecki: 6 weeks Plavix + 150mg aspirin for life
My doc will NOT write the request for Dopple follow up!
I wrote to dr Kostecki, no answer yet.

Thank you

sindy, as I wrote before my 1st encounter with my doc was not pleasant, try to get your ENTIRE prescription filled in Poland. Dr K prescribe for ONE month. you will need to get the FULL 6weeks Plavix THERE. Unless the medical care system is not the same in your part of the country.

Good luck
I wish I was eating one Polish chocolate bar "Prince Polo" sitting under the sun.

The price I was given was:

-Accomodation (including breakfast), transfers, transport to/from airport, doppler, vascular consult, MRI, Neuro consult, hospital stay
-- 3900 PLN paid in advance by bank transfer

-Liberation treatment (if required)
-- 13000 PLN can be paid by credit card on site


I'm wondering why there's so much difference in the price from other clinics. It seems that the testing/consult/accomodations/transport is usually the bulk of the costs, and the treatment is a little cheaper.

Don't get me wrong, I'm happy with this; if my brother doesn't end up having CCSVI (not likely) then we'll be saving over $4000CAD.

Can anyone who's been there shed any light on this?

I'm all for site seeing absolutely, but from the gound LOL I am happiest enjoying things from where I can safely observe.

I still haven't heard back for the deposit etc. Making me nervous since the arrangements have all been made, anyone else wait a while?

Bill your wife sounds like a good physician (first do no harm) and supportive.

vivavie
Thank you Vivavie for all the info here, how are you doing now do you have to go back to poland for a check up later?or are you able to do every thing from home now.
Ihave been trying to find a Dr here that will see him after,everyone is saying the have warm feet and hands he usaly has very hot feet and hands, i guess we are just excited now to see if he dose have blocked veins and with luck this will help him in some way.

Whitey
Hello Whitey i did ask Kate about the cost as well, she told me that the DrK was in it to help people with ms that is why he price is less. My husbands Ms DR said it should not be done ........lol and that it was all about money, we told him isn't that why we all work .lol When do you leave Whitey? and if you can pm me and tell me what flight you will be on i will look for you,my biges concern is the DR after the treatment , and now hopeing he has this problem as well.
It would be so nice if canada would hurry and do somthing for the people who are worse off then my husband,i just feel we are so far behind things here and yet i know they need a study but that will take lots of time and maybe years befor they do any thing here.

@1_sindy

I understand that he's doing it out of compassion, but I just would have thought the accommodations and tests would have cost more than $1250 CAD, and the treatment a little less. I suppose it all evens out in the end though!

We haven't booked flights yet, but we'll be leaving on June 22nd from Winnipeg, most likely to Toronto, and on to Frankfurt. Once I have our flights, I'll let you know! Have you booked already? Perhaps you could let me know and I'll see if we can't get on the same flight!

I sent the MRI form, and a note from my brothers doctor about surgery he had on his leg (they were concerned about it being metal, but it's titanium, and therefore safe for MRI). I sent that to Kate on Tuesday, and am waiting for a confirmation of our dates before I book flights. I hope it comes soon!

I don't really want to bother her with so many e-mails, I'm sure she's busy enough...

I hope to hear soon too! I found out the clips I was worried about are also titanium, plus I've already ha 4 mri's and the last one was stronger than the one Kate told me about. So I also added a note that my doctor said to go ahead, no problems and it would be find to have the MRV. I had to send it email though, I couldn't get to a fax machine, but no word back as yet.

From what I understand Dr. K is also doing this as part of a study, so he needs people that will commit to show up, and that is also why he charges less. I am sure committed!

Who should I be contacting to get my name on the list? I sent an e-mail to Dr. K, but never received a response. Can someone give me Kate's contact info?

Trine

Trine wrote:Who should I be contacting to get my name on the list? I sent an e-mail to Dr. K, but never received a response. Can someone give me Kate's contact info?

Trine

This is Katherine's e-mail

biuro@europanostra.com.pl

ndwannabe wrote:

Trine wrote:Who should I be contacting to get my name on the list? I sent an e-mail to Dr. K, but never received a response. Can someone give me Kate's contact info?

Trine

This is Katherine's e-mail

biuro@europanostra.com.pl

THANK YOU.

have patience since they're receiving 60-70 requests per day now. It's like when Dr. Simka had to stop making his own arrangemtns.

Two night shifts to go, two days off for rest lol Then i'm of to POLAND. Hubby is going to drive my friend and i to Baie Comeau ,Quebec. We are leaving on the 22 and will get there on the 23. We leave to return back on the 31. Home on june 2, i guess.
I emailed dr Kosteski, i didn't get a email back for about a week or more i guess. It may have been longer. I also sent an email to about four other hosptials ect. I wanted the treatment and whatever or where ever it took me. lol Then i started to phone Dr Kostecki, another week. Then coming of night shift one morning, i finaly got him. He sent me an email after that conversation. But also refered me to Kate. I,ve spoken with her a few times now. I found, i got little bits of info at a time. On here was better info realy. It puts your mind at ease. I have in fact spoken with a few from this site. Who ever gives me their number i call them. I have spoken with some realy nice people on here, who have had treatment, who are going and have gone. I love that personal touch. oops out of room here lol

Hi, so happy you are going! I have dates but still nothing for first payment but it's not until beginning of the second week of june. I guess we'll be passing each other!
I'm concerned right now because something is up with my ears. I have lost most of the hearing on one side, part on the other. I don't have pain so I don't know if it's an infection (which would have to be cleared up before I leave) or if it's a CCSVI thing.
My flights are booked though, so I certainly hope I get word on time to send the payment

wishing you well Maureen ,keep smiling im sure good things will come to you very soon.

Maureen, talk about brain fog, I didn't realize that was you that posted LOL Anyway, safe trip and let me know when you get back how it went!
great talking to you!!