This Is MS Multiple Sclerosis Knowledge & Support Community

Johnson wrote:
I am taking anti-fibrotic enzymes (nattokinase)

Consulting with your doctor regarding Nattokinase if you are taking other blood thinning medications such as Warfarin. Natto is a poweful blood-thinner, and the combination may be dangerous.

tzootsi wrote:ndwannabe, check your PM.

Yeees? (there is nothing from you tzootsi)

I had the liberation treatment on April 12th and did great for approximately 1 week. I can't say I'm worse off than I was pre-procedure, just not as great as I was post procedure.

I am waiting for appointment to be tested for re-stenosis (which I believe is the case).

Cece wrote:I think restenosis comes from elastic recoil: the vein is used to being stuck a certain way and it goes back to what it's used to. I don't think vein health even helps us here: the healthier the vein, the more likely that it'll retain its elasticity.

I think that the veins are being constricted by tight muscles in the neck. Veins lack a ridged structure compared to arteries and their shape can be changed by the surrounding muscles.

I recommend anyone with MS have a massage therapist work on the muscles of the neck and spine.

I was good for 6 days then suddenly back to pre procedure. I have a blood clot in the left jugular. I am on coumadin now and recheck in 2 months.

sensfantodd- I agree with you . This is a question that I would like the CCSVI experts to investigate and explain . It might explain the dynamic stenosis that have been observed. Does it not make sense that external pressure on veins can flatten them ? And when we relax and lie down .... the external pressure eases up .... and flow resumes ??






Mr. Success

I suppose those who haven't experienced restenosis will be happy to not look at this forum so often.


Also, from a post last week

ndwannabe wrote:P.S. Quitting smoking is HARD. I'd been a smoker for 17 years. Interestingly, the onset of my MS happened a couple of months after I quit Also worth mentioning is that it was the MS diagnosis that made me not re-start (as was the rule with other quitting attempts).

There was some research a couple of years back which concluded that nicotine is beneficial to MS (this sort of thing http://www.medicalnewstoday.com/articles/6544.php). The act of smoking and what it does to your lungs and circulation is very bad for MS, it makes the likelihood of developing the illness greater and is said to make progression more rapid.

I developed MS before I gave up smoking but, when I did, my MS progressed more rapidly. I have read of other cases of people who develop MS, like yourself, shortly after giving up.

I was thinking that, perhaps, the neuroprotective effect that the nicotine component provides was enough to hold the auto immune response that was provoked by the deoxygenating/suffocating component (making CCSVI more acute) at bay for some time.. Or, on the other hand, so very many people are diagnosed with MS, it might all be a coincidence.

A little off topic I know..

PS, anyone who wants to give up smoking, try the Allen Carr book. I was very sceptical but it reall;y works! It actually, amazingly, makes the process quite enjoyable. And I was hopelessly addicted, or so I thought..

L wrote:There was some research a couple of years back which concluded that nicotine is beneficial to MS (this sort of thing http://www.medicalnewstoday.com/articles/6544.php). The act of smoking and what it does to your lungs and circulation is very bad for MS, it makes the likelihood of developing the illness greater and is said to make progression more rapid.

Sounds like a good argument for trying nicotine gum, even if you're not a smoker trying to quit!

L wrote:I developed MS before I gave up smoking but, when I did, my MS progressed more rapidly. I have read of other cases of people who develop MS, like yourself, shortly after giving up.

This is exactly what happened to me. I gave up smoking on January 1st and had my first relapse on February 5th of that same year. I always wondered if there was some correlation.

Wow. So, the moral of the story is - keep on smoking?

How very weird. I have to research on this now. But wow.

Anybody tried to restart (smoking that is)?

the moral of the story is if you take up smoking again you might die of cancer but your ms might be a little better.

btw the key to this thread is that a lot of people don't have stenosis but have membranes, or tissue blockages or valve issues. Poland finds mostly that. These don't reclog.

HELLO
I have been liberated in sydney on 19th MAY.AT st'vincent hopital
by the DR.BESTER In my original doppler examination only i had right juguler vein was narrow but during DR. BESTER'S VENOGRAPHY examinations he founds my left and right JUGULAR VEINS ARE severe stnosis SO DR. does the angioplasty for both sides and open the both veins
no venous stents. i hope they will open permanently.
T HE DR. bester IS VERY GOOD man he expliened all during procedure. no pains at all. the nurses in the hospital were all grate. The procedure tooks only 60mins and 2hours opsavation time. by 5.00pm i am back from hospital.Intantly i had warms hands and feet
the first night i noticed my bladder controll improved as i ysed to getup atleast 5times in the night. but the first ninght i have gotup only once and had good sleep too.My balance improved slightly too.
now the second and third days my bladder system improved and my walking is also a lot stedier and my speach is much clear. all in all i nortice after procedure varying degrees of improvements
I have to wait more weeks and find out mre improvements
and i will let our TSMS members.
During ballning i have noticed big noice other than this all went without any problems.
regards
seeva

Any thoughts on rechtsregulat? The lyme folks(Dr. Klinghardt) recomend this for for heparin like capabilities-thinning thick sluggish blood-would love to hear from Europeans on this for MS?

ndwannabe wrote:Wow. So, the moral of the story is - keep on smoking?

I am pretty sure that is not the moral of the story.

Smoking is supposed to be one of the worst things an MSer can do...while some people would be outliers and have different experiences, smokers have been shown to get MS sooner and worse than nonsmokers. Even if nicotine is neuroprotective, the reduction of oxygen in smokers and all the crap in cigarettes getting across the BBB are not good things.