This Is MS Multiple Sclerosis Knowledge & Support Community

Dania, I sent you a PM.

I don't like remembering something and not remembering it fully. Here it is. It was in LR1234's thread, back in July:
www.thisisms.com/ftopicp-123432.html#123432

silverbirch wrote:LR

So sorry to hear this I know how this delays your plans.

Bulgaria- on the reformed MS there is a Dr who had procedure done and a vein in his leg put in his neck.
Would this be an option for you ?

Hey PM me if you fancy a coffee & chat

Silverbirch

It would be good to know how the patient is doing six months out. By reformed MS, that's the forum at the Reformed MS Society webpage.

Congratulations to Italy
In Poland it is also a very good hospital which agrees to open operations jogularis
Regards
Rici

There was a transplant procedure in India that was done for Matthew Nomm.
The risk involving transplant of leg veins is that they are much smaller in diameter than the IJV. ie 6-7mm compared to 12-14mm for jugular.
The youtube post is still up for Matthew, but he has had a terrible relapse.
I was able to speak to him, and he had a colapse of the transplanted vein, and is in very poor shape at a rehab center.
He had experienced wonderful results for some weeks. He was exploring
what could be done for him back in India....and not finding any good response.
The idea of doubling the size of the vein sounds curious.
How is that done?
I am in need of a correction.
My first procedure, had my left jug with 2 narrowings...from 12 mm to 2mm, The right jugular went from 13mm to 3mm.
I was trying to post the image..but cannot. a 12mm balloon was used and for 2 days I had wonderful response. That recinded back to all symptoms returning. We were able to do the 2nd procedure 4 weeks later, but the IR could not locate the left IJV, it is a mess of colaterals. I am lucky the right jug was clear, but had to be opened by 30% the 2nd time. Sadly, there was no thinner prescribed. It appears that it may have been wise to have plavix for after care. I know many IR's are providing blood thinners directly after. I have an image of the collateral veins, but cannot post.
There is some development of a Lab grown vein...
http://www.24x7updates.com/content/lab- ... 09421.html

That could have some application for transplant.
It would be wonderful to have a procedure to correct the flow.

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Thank you for sharing that update on Mathew, although I wish it had gone better.

Aha! Dr. Zamboni's team in Italy is doing venous jugular grafts!

http://ccsvism.xoom.it/ISNVD/Abstract-Gabbiani.pdf

We have examined several venous specimens from MS patients in which CCSVI had
been diagnosed. Five of these specimens were obtained from patients undergoing
jugular vein reconstruction after restenosis following angioplasty

I can't wait to hear the results on those reconstructions! Maybe next year's ISNVD will tell the tale!

Cece wrote:Aha! Dr. Zamboni's team in Italy is doing venous jugular grafts!

http://ccsvism.xoom.it/ISNVD/Abstract-Gabbiani.pdf

We have examined several venous specimens from MS patients in which CCSVI had
been diagnosed. Five of these specimens were obtained from patients undergoing
jugular vein reconstruction after restenosis following angioplasty

I can't wait to hear the results on those reconstructions! Maybe next year's ISNVD will tell the tale!

I wonder what is entailed with vein reconstruction?
There is no mention of vein graft. It would be nice to have more info.

I can't think how else to reconstruct a vein except by vein graft? It could mean something else though. The abstract was of an analysis of actual tissue samples cut from the jugulars of live patients undergoing surgical jugular reconstruction. (There were also tissue samples taken from cadavers of both CCSVI patients and healthy subjects.) So, definitely surgery going on, with the CCSVI portion of the jugular being removed, in at least five patients.

Perhaps someone is talking about it on the Italian CCSVI forums, if there are such forums....more information would be very nice.

If in google you search for jugular J1, the first thing to come up is a presentation by Dr. Zamboni. On page 5 of the presentation, there are some images of a sideways valve and the tissue specimen to go with it. Perhaps a sideways valve was unable to be treated by ballooning? A stent would've done it, but stents have their own issues. I would hope this was a specimen from a patient and not a cadaver, I prefer happy endings. The size of the tissue specimen is not much larger than the valve itself.

maybe they're using bionic veins

http://www.cbc.ca/news/health/story/201 ... ineer.html