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CD, Wow! that is intense. Are all of your veins open now as far as you know?

Do you mind me asking what Dr. is treating you? From what I have read/heard if you have a blocked vein you will continue to have relapses. This is concerning to me.

I've been reading some stuff on Facebook about the development of artificial valves and another piece on relieving the stress of the collaterals with the development of a medical device for the jugulars (similiar to a stent). Is this all for nothing if you have a blocked vein? What use are these developments if they can't enter your jug or azygous? Do you think one day they will find a way to open up our veins?

It makes sense to me that the longer this goes on the worse our venous systems get. And the less likely it is to fix it. I sound very pessimistic in my questions, sorry for that. I just have so many unknowns.

How are you feeling now?

prosthetic valve

To answer your question WPGirl:

I don't know if they are all open, the left has collaterals so I don't worry, and the others are open I am sure. (knock on wood)

I will go next week to find out with an US and consult with Dr. Gary Siskin in Albany. He did my procedures. I am very happy with him. We all have choices, I made mine. There are many great doctors to choose from.

I stopped my LDN a week before the first procedure. I felt like I was going into a relapse. I have had tons of them for 30 years, but LDN did stop the 2 to 3 times a year ones. Also, no progression on MRI and an increase in Endorphins makes me a happy camper.

Since I thought I was relapsing because all the old residual crapola was worsening and yet my Neuro said, I seemed fine. Hah! Oh well, it might have been a pseudo-exacerbation, due to anticipation of having the procedure. I did not tell her I was going to get the CCSVI procedure.

I was excited too, but I hate snow and driving in snowy places, and zero temps get to me. Brrr We have lots of snow here but I can stay in. Lol

I knew I met the criteria two months prior, and then got the flu in a crummy Albany hotel. That didn't help my symptoms either.

WPGirl, believe little of what you read on Facebook, and half of what you read on forums. Unless it is backed up by a doctor's discussion, his presentation to colleagues, or his real treatment read or viewed.

Of course if you have the treatment yourself you can understand it, just like those without MS don't really get "us".

That said, I have to answer I don't know about medical devices. I am not a doctor. I have read sites that show new tools, stents, and medication for IR's to use, and they do discuss back and forth to each other and in person, or on conference calls to Europe.

I heard that vein bypass, taking a vein from the leg and putting it in as a new Jugular will only end up clotted. Is this fact?.. I don't know, even though Dr Bill Code said this on a great video I just viewed.

We just have to have "HOPE" in the future of procedures, more knowledge will be gained, and let it all play out. They have a starting line, so I am sure they all will follow this through to the finish line. We will get the benefit.

Young people and little children will certainly get a fix from MS in the future also. I believe other Neurological diseases will see improvements too.

We just can't wait around 10 to 12 years for clinical trials to conclude. This is not a new procedure for these doctors, just a different body part.
CD (rambling again)

HI CD. I totally agree with what you are saying. You mentioned LDN...I've thought about trying it out. I have been unlucky in finding a doc that will prescribe it. I am reluctant to purchase it over the net. Are you still not taking LDN? Why did you stop?