Page 2 of 2
Re: Question on flares (symptom development within one flare
Posted: Fri Aug 05, 2016 2:24 pm
by ScaredStray
Haven't had a sleep study done. Whatever's causing the injuries only seems to happen at the onset of whatever this is. Both times that lasted ~2 weeks and then the real neuro symptoms began. By the time I was talking to my doctor it had pretty much subsided.
It's worth noting that I was a personal trainer before I lost my job due to the injury so my muscles are extremely developed. Spasticity/spasms would presumably have more serious consequences for me than it would for an average person.
The other possibility is just that my brain is misinterpreting the distress of a muscle that's actively spasming. I'd been assuming I was injured in my sleep, but that never woke me up. It could be muscles spasming as my brain first wakes up.
Re: Question on flares (symptom development within one flare
Posted: Fri Aug 05, 2016 2:45 pm
by Snoopy
In a previous post you suspected sleep seizures, was that ever investigated? Sleep seizures sound very possible but what connection it would have to the Neurological symptoms you experience afterwards, I don't know.
Re: Question on flares (symptom development within one flare
Posted: Fri Aug 05, 2016 3:03 pm
by ScaredStray
I saw an epileptologist who ordered the sleep deprived EEG and did some physical examination. Concluded no sign of epilleptiform activity which I thought was weird because following the rhythmic breathing portion of the EEG I felt like there was a hurricane in my head. Suspected epilepsy was also the reasoning for my MRI initially as they thought it might be TLE so the radiologist who read my films was looking for any sign of epilepsy.
Re: Question on flares (symptom development within one flare
Posted: Fri Aug 05, 2016 11:12 pm
by NHE
ScaredStray wrote:NHE, if I'm being honest it doesn't feel like I'm being helped, it feels like I'm being sold. My B12 was on the HIGH side of normal to begin with. I'm taking methyl B12 anyway and it appeared to work and then seems to have stopped working. I am 99.99999% sure it is not a vitamin issue. Please stop trying to sell me vitamins. I have a very simple question that is being outright ignored.
I feel like anyone who has remit/relapse MS should be able to talk about whether, in their experience, the symptoms show up all at once or if they develop sequentially. That's what I want to know.
If you don't have MS or firsthand experience with it and are only here to push vitamins, I'm sorry, but that is a terrible thing to do and you should be ashamed of yourself.
I'm not trying to sell anybody anything. It's unfortunate that you feel that way. I only wish to help people if possible. I shared with you my personal experience with Jarrow methylcobalamin. In my opinion it was worthless and didn't work for me. Supplements are grossly unregulated. It's often a hit or miss proposition and sometimes the cost of a "miss" can be quite high. There was a PBS Frontline documentary that discussed how some people required liver transplants from contaminated supplements.
http://www.pbs.org/video/2365646371/
Yes I have MS. I have also sustained a 7 cm lesion to my cervical spinal cord consistent with subacute combined degeneration due to a combined B12 and folate deficiency where I temporarily lost the use of my legs. My homocysteine was also elevated and I had irregular heart beats, chest cramping and cardiac fibrillations. Correcting my B12 and folate and thereby lowering my homocysteine likely saved me from a heart attack. B12 deficiency is a serious matter.
I've shared my MS story here on the site several times. It's not hard to find with a little searching.
http://www.thisisms.com/forum/avonex-f5 ... ml#p163704
http://www.thisisms.com/forum/post23817 ... ry#p238178
Regarding MTHFR, you may be interested in the following presentation by Dr. Ben Lynch.
http://www.seekinghealth.com/media/MTHF ... -Basic.pdf
There's much more on youtube. Just do a search.
https://www.youtube.com/results?search_ ... ynch+mthfr
Lastly, the human central nervous system in incredibly complex and people experience MS relapses in great variety of ways. There is no one paradigm for an MS relapse. Moreover, if you have MTHFR snips, then it may be premature to start considering MS.
Re: Question on flares (symptom development within one flare
Posted: Fri Aug 05, 2016 11:46 pm
by NHE
Oh, and if you have MTHFR defects, then I strongly recommend that you stay away from green tea. EGCG inhibits dihydrofolate reductase which is the first enzyme in the biochemical pathway for processing dietary folate. It also inhibits the cellular uptake of folate.
http://www.thisisms.com/forum/natural-a ... 26996.html
Re: Question on flares (symptom development within one flare
Posted: Sat Aug 06, 2016 11:04 am
by ScaredStray
Sorry, I'm not seeing things very clearly right now. Everything feels really high contrast. I'm not sure if it's a symptom or just me being run ragged by all this. I really appreciate the EGCG tip as no one had me me aware of that and I do drink green tea occasionally (though thankfully I hadn't been doing it regularly).
The more I read the more it sounds like I was misinterpreting my experience of the initial pain. I'm reading about the MS hug and it sounds like what I dealt with in my ribs. For me it was almost always just on one side but it did feel like some of my intercostals were just stuck on. That can be how the body deals with injury (which is why people with spinal injuries get muscle relaxants) in an attempt to immobilize damaged tissue. I was taking it as a familiar indicator of injury (well, that plus the pain) rather than thinking of it as it's own thing (muscles are spasming locking me up and hurting).