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Posted: Mon Nov 06, 2006 10:35 pm
by Tim
Hi again Amelia, I saw on Gayle's site that you did contact the Dr that posted on our Google Group. Thats great and I hope you are able to get into the study. I only wish the testing could be done closer to home. I also wish that Keith had been able to get into the study. Dr. K called me and said she had only a few spots left so I hope things work out. Tim
Posted: Tue Nov 07, 2006 7:18 am
by amelia
I did not know about the traveling until AFTER I e mailed her. There is no way Gary can make that trip. We just want to get a hold of his regular DR which is getting harder and harder to do! I would go to a Devic's specialist. haha
Posted: Sun Nov 12, 2006 1:34 pm
by beyondms
Hughes (antiphospholipid) syndrome (APS) can mimic multiple sclerosis (MS). The authors of this article believe that testing for aPL should become routine in all patients with MS:
http://www.ncbi.nlm.nih.gov/entrez/quer ... t=Abstract
Another site is the Hughes Syndrome Foundation:
www.hughes-syndrome.org
Look at how the MRI and symptoms can easily mimic MS in some patients suffering from Hughes Syndrome. The good news is that this syndrome can easily be treated using anti-coagulants.
beyondms
Posted: Mon Nov 13, 2006 8:16 am
by amelia
The saddest thing is when they did not know what was going on with Gary, they called it everything in the book, EXCEPT DEVIC's. When others were ruled out, it should have been tops on their list. We can't blame our present Neuro since there have been virtually no testing going on while Gary has gone to her. Also, the records already showed him as having MS. No reason to doubt it. At our request, she did not do MRIs because of lack of money.