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Posted: Sat May 16, 2009 9:18 am
by Artifishual
unfortunatly i was being serious (not about the beer) it usually takes just a few minutes for it to become normal or as normal as it gets. I had ON really bad with this eye when i was dx'ed. almost completely blind. now it's just alittle color saturation, extra heavy when trying to exercise......texas heat really hepls 8)

Posted: Sat May 16, 2009 9:47 am
by Lyon
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Posted: Sat May 16, 2009 10:14 am
by Artifishual
Regardless of whether or not I am having a exaberation or not certain symptoms are still present. The fatigue, bladder issues,optic neuritis, back pain, lately foot pain ?, sleeplessness, bowel problems have never completely vanished, they just show up like an unannounced cousin that you really don't like. :? I do think that exercise in proportion to your ability is a good thing, but i have always been the type to over do. I guess this stems from being pushed so hard by college football coaches. I have mentioned before that up until ms came into the picture I ran 5-7 miles a day regardless. I stopped only because it just became to difficult. I really miss being able to take off and run as far as I want. I think the furtherest I ever went was 15 miles. You've heard of the runners high, well that was a great feeling. You just keep going and going like running is almost as natural as taking a breath. Unless you have had this experience it's hard to understand what I'm talking about. I really miss the running. Doubt I will ever be able to do it again.

Posted: Sat May 16, 2009 10:40 am
by Lyon
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Posted: Sat May 16, 2009 1:08 pm
by Loobie
Man I miss that too. I would just get to a point where I wasn't even feeling my legs and feet. And it usually came on after many miles, like "why aren't I falling over right now?". Damn I do miss those endorphins.

Posted: Sat May 16, 2009 3:43 pm
by Lyon
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Posted: Sat May 16, 2009 3:55 pm
by ellen
I so-o miss the running. If you have never run you just can't quite understand. But I do encourage others to run if they can.

ellen :)

Posted: Sat May 16, 2009 6:31 pm
by Loobie
I can go about three steps that are about 1-1/2 a walk step when the symphony of muscles required to maintain balance falls out of rhythm. I really don't know any other way to describe it. Imagine a million lights that all have to go off right to left in order. They are OK until the motion starts. Then the 599,000th one blinks at 498.000 and so on and so on until you can't turn, you can't stop, you just crumble. It just doesn't work. It doesn't matter how hard you push at this point in the disease. It's not a question of will. No one knows about pushing themselves more than I do. It's not about the height of the bar. It just don't work! And the occasional good time where I can take a good long walk, it IS somewhat a matter of will. You start to get so uncoordinated that steps start to hurt because your knees hyperextend and your feet feel like you're walking barefoot on cobblestone; literally. I usually just sit down and wait about ten minutes. But sometimes it gets to the point where you just can't walk. I'm not usually fatigued at all at this point until later. It really isn't a question of effort. If it were only that, my legs wouldn't know I had MS. The stuff just doesn't do what it should. Hard to explain without a frame of reference from the old days. Prior to this I had never felt anything like this. And there were times when I had 5 pounds to lose the night before a wrestling match that I pushed myself to the point of puking. It's not like that.

The limit now is reached at about the third step. So I can push myself to the limit. It's just the limit is right on top of you. Believe me, if it were just a question of choosing to push yourself, there wouldn't be a problem. I mean I've never been an oz. overweight until about the last couple of years, and I'm losing that now. It's kind of a bleeped up question. You know how this shit works.

Posted: Sat May 16, 2009 6:44 pm
by Loobie
Sorry about the last two sentences Bob. For some reason I felt like you were thinking maybe I just wasn't trying hard enough. That's not the case, so I guess you were maybe thinking about exercise in a vacuum. This stuff all works together against you so much that it's just all intertwined and if you have issues with a system, you can push it at the beginning, but if it gets to a certain point, you just can't. Sorry about being so smarmy.

Posted: Sat May 16, 2009 7:11 pm
by Lyon
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Posted: Sat May 16, 2009 7:55 pm
by pinda
I can relate to the not being able to walk after a short time. Legs get heavy, foot drop, balance off, knees hyper reflex, etc. Use to walk 4 or 5 days a week 3 - 6 miles. Now short distances but still walk when I can. I'm very slow, use to walk very fast, use a stick and rest if I have to. Do not walk on my own, not sure if my legs will keep going. Will start short distance walking this summer but take my cell phone :) Linda

Posted: Sun May 17, 2009 7:55 am
by msmything
I feel like I'm jumping into the boy's club here, I ONLY like the catching part of fishing, and that worm thing is too gross..who knew worms could bite? and I feel sorry for the bait fish when I stick a hook through their face,
Anyway, there is alot of research done on the anti-inflammatory benefits of exercise..in fact you can type in that very phrase on a search engine
If, I was an organized kinda person I could reference one for ya, but I've got a mountain oa papers in my diningroom/office that I need to file..
However, my tackle box is impeccably organized

Posted: Sun May 17, 2009 8:16 am
by Artifishual
hey i also collect antique fishing lures. just thought i would put that out there if anyone has any laying around and wants to send them to me to inspect :wink: i will have to post some pictures someday.

Posted: Sun May 17, 2009 11:13 am
by Mike56
Hey Skydog.....I always set out to go catching, but it usually turns out to be just fishing. The most excercise I get is the walk on the docks. Luckily for me my peaceful time on the water is not usually spoilled by having to put down my beer and clean fish. I'll have to try that sometime.