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Posted: Wed Aug 12, 2009 6:43 pm
by Sharon
Tomorrow I will start a new thread about Feldenkrais -- I think we kind of hi-jacked LadyStewarts log - sorry Sharon
There is quite a bit of information on the Internet -- I was hesitant when I first heard about it - now it is part of my MS therapy.
Sharon
Posted: Thu Aug 13, 2009 12:14 pm
by ladystewart
No apologies for anything Sharon. I was actually researching the topic as well! Will help all.
Posted: Tue Aug 18, 2009 3:24 pm
by Sharon
Hey, Sharon - was wondering how you were doing? Do you have any significant recovery issues?
Check back in if you have a moment
Sharon
Posted: Fri Aug 21, 2009 12:08 pm
by MaggieMae
LadyStewart,
It has been too long since you posted. How are you?
update
Posted: Fri Aug 21, 2009 1:25 pm
by ladystewart
k--my mother and grmother had problems with coumadin. Nose was bleeding and Dr. Dake told me to go off of all medicine. I have and bleeding stopped. Blood levels have lowered. Waiting for MORE/GOOD changes.
Not an MS cure. trying to decide what meds to go on now? Been on copaxon, rebif, novantrone............
Posted: Fri Aug 21, 2009 1:27 pm
by LR1234
Hi Lady,
Do you mean that CCSVI is not an MS cure because you still feel as if you are progressing?
L x
update
Posted: Fri Aug 21, 2009 1:37 pm
by ladystewart
No--I do not think I have progressed but this is a surgery not a 'cure' for MS. RIGHT??????????
Posted: Fri Aug 21, 2009 1:47 pm
by LR1234
I have no idea! I think probably not a cure for MS... although I think people are hoping it is a cure. I will take prevention of progression though, thats great in itself.
Posted: Fri Aug 21, 2009 4:23 pm
by Sharon
I will take prevention of progression though, thats great in itself.
YES!!
Re: update
Posted: Fri Aug 21, 2009 6:56 pm
by CureOrBust
ladystewart wrote:No--I do not think I have progressed but this is a surgery not a 'cure' for MS. RIGHT??????????
How do YOU define what YOU see as a cure? stopping the disease process? or that AND reversing the damage?
update
Posted: Sat Aug 22, 2009 5:00 pm
by ladystewart
A 'cure' would reverse anything like you NEVER had MS. Like a heart transplant--for example. I would be happy to use a cane again--using wheelchair now.
Posted: Sat Aug 22, 2009 7:34 pm
by Jamie
I respectfully disagree.
If you had breast cancer and had a breast removed or say testicle cancer and that was removed and you had chemo and radiation and had no further cancer after 5-10 years then you'd be cured.
Would you only consider yourself cured if your breast/testicle had grown back?
Posted: Sat Aug 22, 2009 9:16 pm
by CureIous
Posted: Sun Aug 23, 2009 6:02 am
by Sharon
Mark
Come on body, you can do it! Wishful thinking I know, but what's wrong with dreaming a little???
NOTHING! Especially since those dreams are now about recovery and not about getting worse.
Did you know that when you imagine moving a body part, the brain is firing? So, those dreams are helping to heal you.
Sharon
Posted: Sun Aug 23, 2009 7:29 am
by bestadmom
I am severly limited in my mobility and I haven't set the bar higher as far as a cure goes. For me, a cure would stop the autoimmune attacks, thereby halting progression. Repair is a whole other ball game, and I think stem cell transplants and physical therapy will take care of that.